Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results High Mcv

confused123

Recommended Posts

confused123 Rookie
confused123
Posted

Hi everyone!

I am new here! Have been reading a lot of posts and this forum has been super helpful!

Have had stomach issues for a very long time. This year some symptoms are more prominent ("fluffy stools", abdominal pain) Finally went to the GI who suggested based on my symptoms that I could have an ulcer, H pylori or Celiac Disease. He asked about my kids and if they had allergies... my oldest had very bad allergies and we had to use a nebulizer for him to stop coughing. He outgrew it. My youngest has eczema on his shins and elbows. He said he really thought this was gluten related and if I tested positive I should have my kids tested as well. He gave me Prilosec to take for 2 weeks.

He ordered the full Celiac Panel Blood Test, tested for H Pylori and some other things.

Just got a call from the nurse and said everything was normal, no signs of Celiac. H Pylori negative. I did have enlarged red blood cells (MCV) and now have to get my B-12 and folate checked. I am a vegan so it makes sense I could have a B-12 deficiency.

My question, what about my stomach? Why does it still hurt and why do I have the "fluffy" stools? Even with a B-12 deficiency these symptoms don't make much sense!

Anyone else have gone through this? Thank you so much in advance!!!!

:unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Hi, and welcome.

Just because you are not celiac, does not mean that you are able to tolerate gluten. And there can be false negatives on the blood test. If your B-12 and folate are low, indicating malabsorption (have him check your Vitamin D too) do you think you could talk him into doing a biopsy? Also, what celiac tests were run and what were the results and ranges??

I was personally never tested at all, but had high MCV and low B12, folate and D. Supplementing these and going off gluten (and several other things) made a lot of difference to me.

Even if you have a biopsy that comes up negative, you should stilll give gluten free a good trial because non-celiac gluten intolerance is much more prevalent than celiac itself.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hi everyone!

I am new here! Have been reading a lot of posts and this forum has been super helpful!

Have had stomach issues for a very long time. This year some symptoms are more prominent ("fluffy stools", abdominal pain) Finally went to the GI who suggested based on my symptoms that I could have an ulcer, H pylori or Celiac Disease. He asked about my kids and if they had allergies... my oldest had very bad allergies and we had to use a nebulizer for him to stop coughing. He outgrew it. My youngest has eczema on his shins and elbows. He said he really thought this was gluten related and if I tested positive I should have my kids tested as well. He gave me Prilosec to take for 2 weeks.

He ordered the full Celiac Panel Blood Test, tested for H Pylori and some other things.

Just got a call from the nurse and said everything was normal, no signs of Celiac. H Pylori negative. I did have enlarged red blood cells (MCV) and now have to get my B-12 and folate checked. I am a vegan so it makes sense I could have a B-12 deficiency.

My question, what about my stomach? Why does it still hurt and why do I have the "fluffy" stools? Even with a B-12 deficiency these symptoms don't make much sense!

Anyone else have gone through this? Thank you so much in advance!!!!

:unsure:

You could be a sero-negative Celiac? Around 20-30% of us are. If your testing is done you can try gluten-free and see how you feel?

Fluffy stools could indicate that your gallbladder isn't working properly. More of a reason to try the gluten-free diet IMO.

confused123 Rookie
confused123
Posted
  • Author

You could be a sero-negative Celiac? Around 20-30% of us are. If your testing is done you can try gluten-free and see how you feel?

Fluffy stools could indicate that your gallbladder isn't working properly. More of a reason to try the gluten-free diet IMO.

What do you mean by a sero-negative Celiac Bubba's mom? Is this when the blood panel test is negative? Thank you!!!

confused123 Rookie
confused123
Posted
  • Author

I asked for copies of my results but don't have them yet. Yesterday I was tested for a vit B12 and folate deficiency to explain the high MCV reading. Waiting for that as well.

However, I went to the dentist and he said my teeth are eroding. Another dentist 8+ years ago mentioned the same thing. I am starting to wonder if this is Celiac related???

Too many coincidences?

frieze Community Regular
frieze
Posted

I asked for copies of my results but don't have them yet. Yesterday I was tested for a vit B12 and folate deficiency to explain the high MCV reading. Waiting for that as well.

However, I went to the dentist and he said my teeth are eroding. Another dentist 8+ years ago mentioned the same thing. I am starting to wonder if this is Celiac related???

Too many coincidences?

remember that most labs still use articficially low "low" readings on B12 levels. It should be over 500. Methylmalonic acid/homocysteine are prob. better tests...
ravenwoodglass Mentor
ravenwoodglass
Posted

I asked for copies of my results but don't have them yet. Yesterday I was tested for a vit B12 and folate deficiency to explain the high MCV reading. Waiting for that as well.

However, I went to the dentist and he said my teeth are eroding. Another dentist 8+ years ago mentioned the same thing. I am starting to wonder if this is Celiac related???

Too many coincidences?

Welcome to the board. Yes those eroding teeth could be Celiac related. To answer your other question about sero-negative Celiac that is when you have a false negative blood test. I am one of that group and it took many years to get diagnosed because of that. Both my children did have positive blood tests though. After all Celiac related testing is done you should do a trial of the diet to see if it helps your problems. Sometimes the best test is our response to the diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused123 Rookie
confused123
Posted
  • Author

remember that most labs still use articficially low "low" readings on B12 levels. It should be over 500. Methylmalonic acid/homocysteine are prob. better tests...

Thanks for this info! Will post about my numbers once they call me with the results!

1desperateladysaved Proficient
1desperateladysaved
Posted

I asked for copies of my results but don't have them yet. Yesterday I was tested for a vit B12 and folate deficiency to explain the high MCV reading. Waiting for that as well.

However, I went to the dentist and he said my teeth are eroding. Another dentist 8+ years ago mentioned the same thing. I am starting to wonder if this is Celiac related???

Too many coincidences?

I just wrote a blog in celiac.com about the dentist. For the short version, I think yes the teeth can have problems because of celiac. Mine began to have problems in high school or before.

mushroom Proficient
mushroom
Posted

Dental enamel erosion is a typical celiac problem. Despite what the tests may be telling you, I would think you are most likely celiac. Flluffy, especially if they float, stools are very typical. You sound more and more celiac every day :rolleyes:

confused123 Rookie
confused123
Posted
  • Author

Dental enamel erosion is a typical celiac problem. Despite what the tests may be telling you, I would think you are most likely celiac. Flluffy, especially if they float, stools are very typical. You sound more and more celiac every day :rolleyes:

Did I mention that I have terrible leg pain? And let me add that my youngest son has the same "fluffy" stools! And he complains frequently about stomach pains but even more about leg pain!!! I always thought this was growing pains. I just wish there was a reliable blood test out there that just said YES or NO. I am started to get frustrated that I might have something more serious but then I remember about my son and we both have VERY similar things going on. I am worried that if I test him his results will be negative too! Ugh so frustrated!!!! Sorry, needed to vent! :D
mars817 Rookie
mars817
Posted

We sound similar. I have horrible blood work(all my numbers pretty much are high or low the opposite of what they should be) plus I'm having horrible problems with my teeth. I've already had 3 fillings from pits in enamel and have 5 or 6 more to have done. No decay just nothing left, even with prescription toothpaste and calcium regeneration paste that hurts. My brother has celiacs, I have the gene but am still testing negative for it bloodwork wise and my biopsy was fine so I don't know..

confused123 Rookie
confused123
Posted
  • Author

I finally have my RESULTS! I am kind of shocked to see just 2 things tested in what's called a Comprehensive Celiac Panel. I don't know if more testing was necessary. Please help fellow forum members! Here they are:

TISSUE TRANSGLUTAMINASE AB, IGA < 1 (Range: <4 no antibody detected)

IMMUNOGLOBULIN A 179 (Range: 81-463)

Now waiting on the B-12 and folate results.

Were more tests needed for the Celiac diagnosis?

Thank you!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748
    davidvibezb
    Newest Member
    davidvibezb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.