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Recently Diagnosed Celiac

Mgyoung77

By Mgyoung77
in Coping with Celiac Disease

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Mgyoung77 Apprentice
Mgyoung77
Posted

I was informed of my celiac diagnosis this past Thurs. the doctor said you have celiac, avoid gluten as soon as you walk out this door or it can lead to lymphoma, I want you to do a capsule. He then sent me on my way. To the best of my ability I have avoided gluten. I still feel miserable today from a cold that has been lingering in my house. However, I have been starving. It's like I can't get enough to eat today. BeforenInstarted going gluten free, I had very little appetite. Has anyone else experienced this?

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Adalaide Mentor
Adalaide
Posted

When I first went gluten free I started eating like a HIPPOPOTAMUS! I was so hungry all the time. Eventually this faded and I have a normal appetite now. You'll notice you go through a lot of changes, your body will begin healing and you may go through all sorts of stages between now and health. I sure did, heck I'm still on that path.

Welcome to the fold. Be sure to check out the newbie topic to help you find your way. We all understand that this is a trying time and that topic is there to help you find and stay in the straight and narrow, as it were.

nvsmom Community Regular
nvsmom
Posted

Welocme to the board.... but sorry to hear of your diagnosis.

I ate a fair bit at first but I'm not sure if it was because I was hungrier or I felt deprived so I ate more to prove I wasn't. I ate a fair bit of junk at first and then I tapered off. Now (5 months later) my appetite is actually a bit down.

Best wishes settling into the new diet. Hang in there, it gets pretty easy after a couple of months.

Takala Enthusiast
Takala
Posted

Celiac causes malnutrition..... your body just woke up to it.

Try eating more good fats, such as olive oil, coconut products such as coconut milk, nuts, avocados, etc, and more protein, less carbohydrates. That will help keep your blood sugar from going on a roller - coaster. Also, taking a B vitamin complex and a calcium/D/magnesium supplement helps.

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    • Scott Adams
      Gluten free stuff

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      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
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