Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Blood Panel Questions

haleym

Recommended Posts

haleym Contributor
haleym
Posted

Hi everyone! It's been a while since I've posted... I have symptoms of gluten intolerance and my doctor wants me to have the celiac panel done to check and see if I have celiac disease, or a non celiac gluten sensitivity. I ate gluten last Wednesday in the form of a glorious baguette and paid dearly for it all weekend. It was a re introduction of gluten after being off for about five weeks as part of a detox/elimination diet to figure out why I have been so tired for so long. Also found out today I have Hashimoto's disease. Nice.

I've read that one must be currently eating gluten before getting tested and I want to know how much and for how long before I go and get myself tested. I want the. Test to truly reflect what is going on so I can know if I have celiac or not! Knowledge is power!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Ah, a thorny question indeed, and one to which there as many different answers as there are people answering, it would seem.

Sadly, the middle ground, where you are likely to be sure of accurate results, is probably 6-8 weeks. However, each individual is different, has differint levels of sensitivity, has been susceptible to gluten for shorter or longer periods, has been gluten free for shorter or longer, and probably has different levels of damage to the small intestine, which can affect how long the trial should be. Also, some people heal faster than others. And you cannot always judge by the severity of the symptoms.

Many people have done shorter challenges of one or two weeks as recommended by their doctors; a few have come up positive regardless while most simply had not been at it for long enough and were disappointed.

Discuss it with your doctor, read what the major celiac centers (Mayo, Columbia, Maryland, etc.) recommend and then you will have to decide for yourself.

haleym Contributor
haleym
Posted
  • Author

Ah, a thorny question indeed, and one to which there as many different answers as there are people answering, it would seem.

Sadly, the middle ground, where you are likely to be sure of accurate results, is probably 6-8 weeks. However, each individual is different, has differint levels of sensitivity, has been susceptible to gluten for shorter or longer periods, has been gluten free for shorter or longer, and probably has different levels of damage to the small intestine, which can affect how long the trial should be. Also, some people heal faster than others. And you cannot always judge by the severity of the symptoms.

Many people have done shorter challenges of one or two weeks as recommended by their doctors; a few have come up positive regardless while most simply had not been at it for long enough and were disappointed.

Discuss it with your doctor, read what the major celiac centers (Mayo, Columbia, Maryland, etc.) recommend and then you will have to decide for yourself.

thanks- read the Chicago center and they say 1/2 piece of bread or cracker a day for 12 weeks before test. Will look at the other centers then decide.
guest134 Apprentice
guest134
Posted

Well actually - "Does this apply to you?

It is important to note that some people with Type 1 Diabetes,

Hashimoto’s thyroiditis and autoimmune liver conditions can have

a falsely positive tissue transglutaminase test."

Open Original Shared Link

That is from the University of Chicago Celiac disease centre. Biopsy and improvement upon gluten free diet is extremely necessary in your case, especially since your IgA class was negative.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.