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Where Can I Get A Test Done

melisadki

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melisadki Explorer
melisadki
Posted

Hi Everyone,

New to the forum. I was kinda thinking I have Celiac Disease. I am pretty sure I am gluten Intolerant from some muscle testing I had done but I would like to find out for sure on the celiac disease. Is there somewhere on the internet I can order a test for at home or do I need to see my doctor and hope he believes me since I am overweight. <_<

Thank you so much I am feeling so awful.. ;)

Mel

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KaitiUSA Enthusiast
KaitiUSA
Posted

Well you have 2 options....you can go to a doctor and request a complete blood panel for celiac, even if they do not think it is that they have an obligation to do a blood test if you request it...if they won't then find some other doctor who will.

Second, you can do an Enterolab test...this is accepted by some doctors but a majority do not accept it yet. It is a good alternative. They send you a kit and you send it back. The gene test they do is a mouth swab and they will identify celiac genes and gluten intolerance genes...then the rest is a stool test where they look for gluten sensitivity, malabsorption, tTG, etc.

You can find out more about that at www.enterolab.com

Make sure you are still on gluten for testing though

melisadki Explorer
melisadki
Posted
  • Author

Thanks Kaiti

Yes I think I will check with my doctor. He may be open about it since he thought I had low thyroid and my test were still in the normal range. I hope so I just want to find out why I am so ill. Depression and Diarhea are my worst symptoms.

I also had some alternative therapy done called muscle testing and I tested positive for gluten, corn and chicken and dairy so I dont know how much truth there is to that. I tried the gluten-free for a week or so although not strictly enough and I felt better but I went back to eating gluten stuff and now I am feeling it again... :rolleyes:

Mel

floridanative Community Regular
floridanative
Posted

I'm new too and waiting on testing myself. But I was wondering if you had anything particularly stressful happen before the time you noticed your symptoms. About 38% of us have the Celiac gene but it's not necessarily active. Something can trigger it and walah - you get sick - sometimes even without symptoms. I had shingles at 40 and never felt right after. Since then I know my unexplained anemia is due to my not absorbing nuturients properly which happens frequently with celiac disease but I have to rule out more serious things before my doc will do the biopsy to test for celiac disease. So all this is to say if you did have something stressful (death in family, divorce, sick kid or even moving to a new place) happen, it could have triggered your celiac disease gene IF you have it. Good luck and I hope you feel better soon!

Tiffany M.

melisadki Explorer
melisadki
Posted
  • Author

Hi Tiffany

Yes I was married 4 years ago which brought on alot of stress especially since my mother died 1 year before that. I was thrown into a deep depression and I am still struggling with that.. :( This year I had a miscarriage in March which I think brought on more symptoms as the diarhea has been worse etc...If it was just the depression I would have never of thought of Celiac but now it is constant diarehea but occassionally I will have a solid stool but it mostly is TMI....runny, or floats, light colored with food and greasy spots in the toilet. I also bloat really easily and I look 5 months pregnant but I am not.

I think I definetly have food allergies if not celiac disease something??? :huh:

Good luck to you on your diagnosis as well. I just want to know something... :unsure:

floridanative Community Regular
floridanative
Posted

Well all that would definitely be able to trigger your celiac disease gene if you have it. Or really just one of those things could have done it. So sorry for your loss.

I too want an answer. I certainly can't take iron pills forever. Plus now I found out there are other things I'm not absorbing correctly. Of all the things that could cause malabsorption, my dermatologist (best doc I have sadly) told me he hopes I have parasites because the next best thing to that is Celiac desease and after that it's all downhill from there. He said 'if you don't have parasites you should be happy to have celiac disease. You can treat it with diet alone' blah, blah. I know he's right but we eat out a lot and travel a lot. This is fairly hard to do while eating a gluten-free diet from what I understand. Guess I'd rather worry about that than get chemo treatments for something horrible.

Take care,

Tiffany M.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Dear Mel,

I was very lucky that, through a web of multiple specialists, I was referred to a Gastrointerologist who was empathetic, kind and thorough. I saw him on a Thursday, he did the bloodwork for Antigliadin antibodies, Antiendomysial antibodies and Antitransglutaminase antibodies that day, and scheduled my small intestine biopsy for the next Wednesday. He was a great guy. He asked me -- why are all these doctors speculating and D****ing around with the diagnosis -- do you want to find out? When I said "Yes", he said, "Let's do it." All tests were negative -- I have now been diagnosed with "gluten ataxia" or "cerebellar autoimmune ataxia", but in terms of getting a celiac diagnosis, I could not be a more strong proponent for a GOOD GI physician. Go to a Celiac support group meeting in your area, and ask for names of good GI docs. I can guarantee you that they'll know the ones to see, and more importantly, the ones NOT to see! Good luck.

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melisadki Explorer
melisadki
Posted
  • Author

Thanks All

I ended up ordering the stool test from Enterolab so I am waiting to get it and send it in and see what that says. Guess I will go from there with the biopsy etc... :)

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