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Not Trying Enough New Foods...scared Of Allergies..


123glldd

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123glldd Collaborator

Thing with the tomato is i'm unsure if it's tomato in general or just ketchup and paste. I don't know if the paste caused me a problem with the pizza or if it was something else. I was worried about the paprika even though it was mccormicks. I'm not sure why....but next day sure enough...reaction. Felt sick a couple hours after eating it but the diarrhea and mucus was next day. NO idea what i reacted to. So I'm not sure if tomato is a problem or if it was just that i was so sensitive at that point and sick that anything with any zing to it my tummy said no more?


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123glldd Collaborator

I should probably add anything including jalepeno kettle chips did the same thing the ketchup did..which is why the only potato chips i'm having now is sea salt or beanitos.

123glldd Collaborator

But it can't be a nightshade thing...because...i eat ore ida french fries all the time...potato.

mushroom Proficient

Can you have chicken too? I would tend to rotate between them if I were you. How about some salmon or tuna? You don't have to eat a whole meal of these things to try them. Just a mouthful or two and see how it goes. If it is all right, try it again the next day. See if you can add some more things in.

As for the paprika, it is in the nightshade family along with the tomato so it would be perfectly possible to react to that too after the tomato reaction.

mushroom Proficient

But the jalapeno is a nightshade too.

123glldd Collaborator

Why am i ok with potato though??

123glldd Collaborator

Another thing I forgot to mention about what helped to make me this phobic was...when my attack first happened I posted about it on here and someone suggested a salicylic acid sensitivity. Which...if you go off of them..then back on..CAN apparently cause anyphylactic shock if reintroduced too quickly etc. But then I eat broccoli and what not with seemingly no problem. And that was listed as being high. Tomato and peppers...paprika...all listed as VERY high in salicylic acid. Potatoes are not.


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123glldd Collaborator

But then I don't seem to quite have that either...

shadowicewolf Proficient

And what exactly is the scientific backing or statistics for the shock?

Some food for thought, anything spicy sets my GERD off like mad (reflux). Tomato paste generally is just pure tomato and some mild seasonings (salt, suger?). Ketchup is much akin to that. I'd call out tomatos on that.

At any rate, the internet does not help in this case and often sets us off on "whatgonnahappentomenow" tangents.

Coping thoughts ("its fine, nothings going to happen") can help some.

123glldd Collaborator

Do you think I should never try tomatoes again? Or do you think it's probably just a temporary thing because i over did it? I never had any issues just that one time. Ketchup wasn't the only thing giving me that stuff either but it's the one that sticks out in my mind. I had a lot of that around that time no matter what i ate... eventually it stopped.

123glldd Collaborator

This was the website someone gave me on here... Open Original Shared Link

123glldd Collaborator

Here's a direct link to where they talk about when you re-introduce to be careful. Open Original Shared Link

mushroom Proficient

Perhaps best to go easy on potatoes and eggplant for a while??? Like potatoes not an every day thing? I'm not trying to make you more phobic here, just reinforcing the rotational aspect of eating until your gut gets itself settled down and not so reaction set :) At first I was not too okay with peppers, then I was not at all okay with potatoes, and then came the tomatoes. So at that point I quit eggplant as well, didn't even wait for it :D

The tomato paste, ketchup, pasta sauce and pizza sauce all make sense because they are very concentrated tomato, with all the liquid cooked out of them. So if you were going to react to tomato, that would be the place. And no, I think you may be able to add them back in later, but just give them a break for now. Six months is generally recommended before challenging a food you react to like that.

Yes, a lot of people do react to salicylates. You will just have to test some of them that you do not currently react to, and see what your reaction is. I have no problem with salicylates personally.

Again, people are just making suggestions of things you can explore to see if they are a cause of your problem.

123glldd Collaborator

Been eating potato almost every single day since that incident and that is a lot longer that what I was eating a ton of tomato for so i dunno? The tomato was maybe a few weeks to a month.

123glldd Collaborator

Oh yeah..was also eating amy's palak paneer which had tomato in it but was fine around that time...so not sure wha to think of that. I stopped eating it though because of dairy.

Juliebove Rising Star

I don't have celiac. I don't have food allergies. But I have a lot of other allergies. I have OAS to some nuts. I have a lot of food intolerances. You could start with food allergy tests. Tell them not to test you for wheat. Tell them to test you for the other things. Is there egg in the Scharr crust? Egg gives me a reaction like you had. I can't eat eggs at all.

123glldd Collaborator

Not sure on eggs actually. Not sure if there is egg in rice chex, or ore ida fries but i don't think so. I'll have to check. I've been having very few processed things and i generally don't eat eggs so i'll have to check that out.

123glldd Collaborator

Don't think there is egg in anything including the pizza crust. Just checked. It does have milk protein and YEAST tho. I did wonder about yeast in my bowel.

tom Contributor

Do you think I should never try tomatoes again?

Oh yeah..was also eating amy's palak paneer which had tomato in it but was fine around that time...so not sure wha to think of that. I stopped eating it though because of dairy.

I don't think we should convict tomatoes so quickly.

Ketchup has more than a couple ingreds, incl corn syrup often & it's probably been awhile for a lot of those ingreds.

Jarred sauces have long lists too. And organic non-GMO tomato sauce/paste/etc is a gamechanger for some.

123glldd Collaborator

Or hey maybe it's just pastes i don't like? I was fine until that..or maybe paprika just doesn't agree with me? Could just be peppers? I know my mother in law can't eat green peppers for whatever reason but if they are cooked she's good ...so many options...kinda scary to someday try and figure out what it could be exactly. How do you get tested for nightshade intolerance?

shadowicewolf Proficient

there are no tests for intolerences as far as i know outside of removing them completely from your diet than readding them later.

123glldd Collaborator

Wouldn't it also be possible my reaction could have simply been a product off too much spice? Peppers were in the bruschetta...we were having cilantro chutney all the time..that had peppers..then the paprika....perhaps a healing bowel just couldn't handle the spice and it wasn't tomatoes at all? I find ketchup to have a hell of a lot of zing too. Tart. But does that rule out whole tomatoes?

mushroom Proficient

Peppers and paprika are both in the nightshade family and therefore closely related to tomato. I know tomato is a hard one to avoid, but try it for a week (and the other nightshades - potato, eggplant) and see how you go. With food intolerlances, almost anything is possible, and it is a trial and error kind of thing. We can talk about it all day, but unless you experiment you are not going to be able to find the culprit(s). :)

123glldd Collaborator

The only nightshade i've been eating since august is potato in ore ida fries...sooo...I have avoided the rest. And I never eat eggplant. My onlly point being since the other things were spicey type foods isn't it possible it's not necessarily a nightshade issue but a spicey issue? I'm just throwing it out there as a possibility. I've had zero issues with potato. The rest i haven't touched an ounce of it. Aside from those amys meals for about a month after the incident.

123glldd Collaborator

I'm not having illness issue now so i'm not sure how avoiding anything for a week is going to help i guess is what i'm saying..i've been avoiding the rest for months.

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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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