Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Would It Take To Feel Different/better?


mars817

Recommended Posts

mars817 Rookie

I went gluten free 11 days ago. I'm feeling the same/worse possibly. I wonder how long it should take to feel better or at least a difference if gluten was my problem? I have had negative blood tests, inconclusive biopsy and a pill cam study that they said had nothing too concerning (whatever that means-they were looking for the source of my anemia), but I have a gene for celiac and my brother is a diagnosed celiac and I have so many symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

How long have you had symptoms?

What will you be willing to do in order to return to health? . CAn you continously pass by gluten foods inspite of social pressure?

Are you a smoker or do you drink heavily?

Will you take tests to discover which suppliments are necessary?

Are you willing to discover what other intolerances you have and avoid or minimize contact with them?

Do you have an excercise program, or are you willing to start one as you feel better?

Are you able to get some extra rest?

Are you willing to scrutinize each label on the food you buy? Some must even call companies and find out what products they use their equipment for.

I think the answer to these questions will help to decide how quickly you will heal. I can gage that if you have had symptoms for 30 years and had 5 nauseating pregnancies which nevertheless ended happily, you will be still trying to get better in 6 months. You will have some higher highs, but some awful lows too.

.

I hope you will be able to do all of the above things. Get better soon ****

GottaSki Mentor

worse in the first month is common.

The honest answer to your question is days, weeks, months or years. We are all different.

jcp Newbie

We are definitely all different, and some of the differences might depend on if you're totally gluten free and how you've gone about making the changes. I ended up going almost low-carb at first because I found it hard to figure out what to eat, and that can definitely change how you feel in hurry.

GFinDC Veteran

Hi Mars817,

You should plan to stay on the gluten-free diet for 3 months at least. 6 Months is a better test. It's not an instant cure, it takes time.

nvsmom Community Regular

I personally noticed my stomach aches and headaches were much less within a couple of days but I went through a withdrawl of sorts so I felt extra tired and cranky. Overall, in the first two weeks I really didn't feel much better. After a month or two I really noticed a difference, especially in the gut... I no longer looked pregnant. lol. Now that I'm 6 months in, my improvements are definitely slowing down and becoming more subtle.

Hang in there. As the others said, many people need a few months to see improvements, but I hope you start feeling better soon.

mars817 Rookie

Ok I guess I had just seen a lot of, I stopped eatiing gluten this morning and I'm so much better. I think my tummy is a bit better but I still am having issues and running for the bathroom and wondering if it is something else or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Ok I guess I had just seen a lot of, I stopped eatiing gluten this morning and I'm so much better. I think my tummy is a bit better but I still am having issues and running for the bathroom and wondering if it is something else or not.

So you weren't really gluten free for 11 days? Every time you start eating gluten again you set yourself back some. It only takes a small amount of gluten to start a reaction by your body. The longer you stay gluten-free the less the cravings for it will be. It is harder to resist at first because we are used to eating it. But once you get out of the habit of eating gluten and get in the habit of eating other foods, it is easier. Or just plain easy.

There are lots of plain whole foods that taste great and are better for you than refined flour and carbohydrates and sugar. Plus the whole foods have better nutrients like vitamins and minerals in them that your body needs. Gluteny foods are loaded with vitamins to make them acceptable, because otherwise people would get weak and sick from eating them too much and not getting enough vitamins in their diets. They really aren't healthy foods by themselves. Imagine a bread maker grinding up a vitamin pill and putting it in your loaf of bread. That's basically what they do with wheat flour to make it worth while to eat instead of just empty calories. They call it "vitamin enriched flour". It's like enriching a pile of sand and telling people they should eat it because it's good for them to get all those added vitamins.

And other bad things about gluten can be imagined here smiley. :ph34r:

Get back in the wagon woman, and stay gluten-free for 3 to 6 months at least. That will give your body a chance to heal and start absorbing natural vitamins and minerals from real food. That's a good thing. :)

If you want to do a gluten challenge after 2 months or 3 months that is a better time to do it. By then you will have learned how to eat right and your body is starting to heal. And you can get clearer results from a gluten challenge. Many people want to do a gluten challenge to self diagnose, I see nothing wrong with that idea. If you feel bad eating gluten it doesn't matter a whole lot what you call the condition.

All this is meant to help you evaluate your own situation, I hope it helps..

mars817 Rookie

So you weren't really gluten free for 11 days? Every time you start eating gluten again you set yourself back some. It only takes a small amount of gluten to start a reaction by your body. The longer you stay gluten-free the less the cravings for it will be. It is harder to resist at first because we are used to eating it. But once you get out of the habit of eating gluten and get in the habit of eating other foods, it is easier. Or just plain easy.

There are lots of plain whole foods that taste great and are better for you than refined flour and carbohydrates and sugar. Plus the whole foods have better nutrients like vitamins and minerals in them that your body needs. Gluteny foods are loaded with vitamins to make them acceptable, because otherwise people would get weak and sick from eating them too much and not getting enough vitamins in their diets. They really aren't healthy foods by themselves. Imagine a bread maker grinding up a vitamin pill and putting it in your loaf of bread. That's basically what they do with wheat flour to make it worth while to eat instead of just empty calories. They call it "vitamin enriched flour". It's like enriching a pile of sand and telling people they should eat it because it's good for them to get all those added vitamins.

And other bad things about gluten can be imagined here smiley. :ph34r:

Get back in the wagon woman, and stay gluten-free for 3 to 6 months at least. That will give your body a chance to heal and start absorbing natural vitamins and minerals from real food. That's a good thing. :)

If you want to do a gluten challenge after 2 months or 3 months that is a better time to do it. By then you will have learned how to eat right and your body is starting to heal. And you can get clearer results from a gluten challenge. Many people want to do a gluten challenge to self diagnose, I see nothing wrong with that idea. If you feel bad eating gluten it doesn't matter a whole lot what you call the condition.

All this is meant to help you evaluate your own situation, I hope it helps..

I guess I didn't state it right. I have been off gluten for 12 days now. My very bad tummy problem had nothing to do with gluten that day at least. All I had was ice tea before they started. That why I wonder. I'm still staying gluten free I just wonder how long I should expect to notice a difference if it is gluten that is bothering me. Like I said in 12 days I'm pretty sure I have not had any gluten yet I still feel the same, maybe even worse. Because I've dealt with it with my brother I have a pretty good idea of what is ok or not so I don't think I've been inadvertently eating any.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,211
    • Most Online (within 30 mins)
      7,748

    IvonneT
    Newest Member
    IvonneT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.