Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help With Lab Results. 6 Yr Old


radish

Recommended Posts

radish Newbie

Noob here.

6 year old daughter has had tummy issues since birth (mucous/bloody stool) Off dairy/soy since then.

2011 tests

Immunoglobulin - 142

IBD test -

"Atypical ANCA"

Cerevisiae Ab, IgA 2.1

Cerevisiae Ab, IgG 2.9

Do these low numbers mean anything? Ranges says below 20 is negative..?

more testing in 2012

the prometheus test shows the H.L.A. DQ8 gene

We are now off gluten, but I see that the DQ8 is only in 5% of Celiac patients..?

Any help is appreciated!

Regina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



radish Newbie

I cant edit my OP but here is a more detailed post, hope this helps

My 6 year old was tested recently.

Neutriphil <1.20 (range <1.20)

Atypical Open Original Shared Link (Atypical ANCA are found in 50-70% of UC patients)

Cerevisiae Ab, IgA 2.1 (range 0.0-24.9)

Cerevisiae Ab, IgI 2.9 (range 0.0-24.9)

It simply says status - "F". I assume that means negative..?

Do the low numbers mean anything, should they be 0.0?

Also, there is a genetics test that shows a STAT3 mutation detected..?

She also has a gene DQ8 that is in 5% of Open Original Shared Link patients (we're off dairy/soy/gluten).

shadowicewolf Proficient

the blood tests won't be accurate if she's off gluten. Furthermore, it doesn't look like she had the full celiac panal.

As for the genetic testing goes, It can be an indicator of the disease if it is likely.

mushroom Proficient

Did your daughter ever have any tests from the celiac panel?

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

It looks like they did run the Total Serum IgA (which is also known as Immunoglobulin) but I don't see any of the other tests mentioned?

nvsmom Community Regular

Ditto what mushroom said; I'm not familiar with those tests either.

Ollie's Mom Apprentice

To me, it looks like the doc was screening your daughter for ulcerative colitis, and the "ANCA" test result was abnormal (with a note saying 50-70% of patients with ulcerative colitis have abnormal ANCA values). But I'm not entirely sure her result was abnormal, or if they just put that note on the lab results report.

I did a quick Google search, and it looks as though that test is only a first screening step for UC, so the abnormal result can not be used alone to diagnose UC.

Did they say they were going to be testing for celiac as well?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.