Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Thought On Supplements


alesusy

Recommended Posts

alesusy Explorer

hello there. I've just been DX - the result of my bioopsy came in today and confirmed I'm a 3.b marsh celiac. As expected (all the bloodwork was positive).

This post is just a thought about supplements. I did ask my doc, and he said that my body will start to absorb nutrients on its own when I'm healing, and until I'm healing, my bowels would not absorb supplements anyway as they don't absorb nutrients from food. This makes sense to me - I wonder anybody had any thoughts about this?

alesusy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Here was my regular doctors thoughts on it and I think, for me , it made sense.

You have 16-20 feet of small intestine. It is unlikely that every square inch is too damaged to absorb anything. celiac tends to be " patchy". Even if only 20% of your intestines are absorbing nutrients, you want to make sure that 20% always has some to absorb. There are a few vitamins that are small enough to be absorbed thru the skin in your mouth. B12 is one.

mushroom Proficient

Some supplements are also available in liquid form which should be easier to digest. Another aid in getting the nutrients into your body is digestive enzymes. Part of the lack of absorption is that the food is not broken up enough into small chain fatty acids to pass through into the blood stream because of the negative influence gluten has on the pancreas and its output of enzymes. So supplementing with pancreatic enzymes helps break down both regular food and the supplements you take to help you get the nutrition out of them. It is a bit of a catch 22 at first but if you make enough nutrients available in the right form you will eventually start absorbing them. Some of them will undoubtedly be wasted, but in the case of something like Vitamin D, you don't want to leave your body without its availablility for too long or you are risking bone loss and lots of other negative effects. Again, the Vit. D available in gel caps in liquid form would be better absorbed, I would think, than regular tablets.

1desperateladysaved Proficient

My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

dilettantesteph Collaborator

There is little scientific evidence for supplements helping, and they are poorly regulated. I prefer to use whole foods, but I do use two very carefully chosen supplements where I didn't have that option.

Open Original Shared Link

petitesteph Newbie

My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

I strongly agree with you 1desperateladysaved - supplements were my life saver before I even knew I had a gluten intolerance. I was so low in magnesium and strangely enough b5 and a few other b vitamins that I was almost crippled completely. The lack of magnesium actually gave me an EXTREME migraine condition that worsened gradually as I got older (21 years of this!) until I was actually completely housebound. After that I had to take almost DOUBLE the amount of supplements - which gave me my life back! It was like a miracle!!!!

This actually led to finding out I was celiac! the question was, "Why am I so deficient and have to take SO MUCH via supplement to keep up?!" Answer = your intestines can't absorb it! super damaged!

Hopefully once I'm more healed, I can pull back on the dosage.

GOOD LUCK TO YOU!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,253
    • Most Online (within 30 mins)
      7,748

    catnapt
    Newest Member
    catnapt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.