Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Leukocytoclastic Vasculitis


susiq

Recommended Posts

susiq Newbie

I have just been diagnosed with leukocytoclastic vasculitis after an accidentally being glutened. Does anyone else have have this or know of this? Any nformation would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)

Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

  • 2 months later...
jhd666 Newbie

I'm a celiac and I'm also sensitive to a lot of other allergens that lurk in processed food.  Ingesting gluten (by mistake, of course!) makes me vomit within about ten minutes but other food items like spices - which often contain food colouring or preservative - usually bring me out in a rash or give me diarrhoea.  I've just come back from a holiday in Malaysia and I have been a little bit lax, as I wanted to be sociable, and other people can be hostile to the "I have food allergies" comments.  I drank some white wine (often contains sodium metabisulphite - a killer for my gut) and I ate some local spicy specialities under persuasion.  Now, a couple of days after arriving home, I have those tell-tale purple dots on my ankles and calves, which look like the vasculitis rash.  Sometimes I get these spots under my instep when I know I have eaten an allergen by mistake.

Some years ago I had a giant aneurysm in my brain - in my right carotid artery - but, as you can see, I did get through it.  My experience tells me there must be a link between the two: celiac disease and vasculitis, in spite of the fact that doctors and specialists look at me like I'm crazy when I suggest this.  I'm going to pay attention to those purple spots and keep off the allergens!

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)
Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,788
    • Most Online (within 30 mins)
      7,748

    SClark
    Newest Member
    SClark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...