Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache


Mgyoung77

Recommended Posts

Mgyoung77 Apprentice

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Monklady123 Collaborator

I was diagnosed with celiac November 15. Earlier that week, my OBGYN tested my iron and it was 5.4. After a few days of going gluten free, I could tell a huge difference. My stomach issues and headaches went away immediately. My energy level slowly started coming up. However right before Christmas I started getting headaches again. I thought my iron was dropping due to some female issues. However when I got it checked it had gone up to 10.5, and less than a week later 11. So that is not the cause of these headaches. I have had a headache for two weeks straight now. Medication only provides temporary relieve. Any ideas, suggestions, or similar experiences?

Are you 100% sure that you've been gluten free? For me the headache is the first sign that I've been glutened. I would suggest taking another look at everything -- your kitchen prep stuff (cutting boards, knives, etc.), toaster, toaster oven, foods you might not have thought of such as regular Rice Crispies which clearly have no wheat in them but are sweetened with barley malt. Stuff like that. Good luck. :)

cavernio Enthusiast

Ditto on looking over everything and everywhere you eat for gluten.

I get headaches when I eat too much tyramine. It's high in cured meats, nuts, aged cheese and pickles and probably a few more things. Some people here follow a very strict low tyramine diet; I don't but my headaches have improved a fair bit and I know I should avoid eating all those foods in one day.

Either low zinc or magnesium can be a cause of headaches, (I forget and I learned about this from when I looked up why pms causes headaches and I remember those 2 minerals being involved) and if you're supplementing with iron your body might be absorbing more iron instead of either of those elements because apparently that's how metal absorption works, all of them using the same method of absorption or something.

KMMO320 Contributor

Besides stuttering and word slurring, headaches are the first indicator for me that I ate gluten. Tonight, in fact, I came home from the gym with such a headache, I had to lay down. Then the nausea.My husband kept asking me what did you eat? I said, just because I have a headache doesn't mean it's gluten! I ate good today ( I am still fairly newly diagnosed and have a bad day maybe once a month, hopefully never again though) I had yogurt and a banana, and then some gluten free chicken tenders and sweet potato fries. He was like well, maybe the chicken tenders are not really gluten-free. SO, to indulge him, I looked..well, they were certified gluten-free..but...I looked at the bag of sweet potato fries...Ore Ida..and there in the ingredients COntains; WHEAT! DOH!! I really feel stupid. I am so used to eating regular frozen fries with no problem, I just grabbed the sweet ones thinking they would be fine. I am so mad at my stupidity. I threw them right in the trash,because no one else will eat them, and here I sit achy, and sick :( SO, it could be non gluten related, or there could be traces you have not thought about :(

Mgyoung77 Apprentice

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

tarnalberry Community Regular

My headaches were caused by muscle tension due to poor head posture. Chiropractic, massage, and a lot of work re-aligning my posture is the only thing that made them go away on a permanent basis. (These were chronic, debilitating migraines.)

cavernio Enthusiast

You live in shared house and eat shared meals. Residual gluten could be more diffuse than you think. From what I've read of people's stories here, many people experience full-out attacks when they've eaten enough gluten beyond some sort of personal threshold, but will feel just a little of before that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

I don't think it's from gluten. I can think of three occasions where I was glutened and all three times I had tummy troubles from it, not a headache. My husband made gluten free brownies using butter he had double dipped in to.make toast. It took the second time of eating them and getting sick to realize the mistake. The third time I got careless when we had hamburgers and hot dogs. I think some crumbs from everyone else's buns got on my plate somehow. I did eat some tastefully simple garlic 3 weeks ago. I realized after the fact that it was tastefully simple. None of their products are safe. It did not cause tummy troubles, but would it cause a headache to last 3 weeks?

My biggest symptoms of glutening are headaches, which usually turn into full-on migraines. I get dizzy, and I start to stutter and slur my words. Then, I get nauseous, and then have stomach distress usually the next day.

alesusy Explorer

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

Mgyoung77 Apprentice

MyYoung, I don't know if this can help. If drugs don't do much, they might be tension headaches. Tension should ease goin gluten free, but there are relaxation tecniques that can help anyway. I mention this because I was really scared after one continuous month of headaches, and I felt much relieved when my dentist showed me where it was coming from.

Is your headache mounting up from your neck, or is it around your eyes or one of your eyes, or around the temples or on the forehead? In all these cases it might come from tension in your jaws. Try touching the point on your cheeks where the lower and superior jaws meet, and press with your fingers. Aching?

(I don't have headaches any more now but my jaws are still aching if I press them like this).

alesusy

It is difficult to describe. When I first wake up or when it first starts later in the day, my head feels fuzzy inside. It starts out as a minor annoyance. If I do net take something it gradually turns into a very painful headache. It hurts on top of my head and my forehead. Medicine does give temporary relieve.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    2. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,452
    • Most Online (within 30 mins)
      7,748

    Bonnie McBride
    Newest Member
    Bonnie McBride
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.