Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared To Tears

bellybattle

Recommended Posts

bellybattle Apprentice
bellybattle
Posted

Well, my blood tests finally came back. Here are the results:

GLIADIN ANTIBODIES IGA = 4

GLIADIN ANTIBODIES IGG = 25

REFERENCE RANGE FOR BOTH < 20 UNITS

So basically, the IgA showed up negative while the IgG showed up as a weak positive.

The doctor scheduled me to do an upper endoscopy/biopsy and I'm sooo scared! :( From what I've heard, most people say it's easy, but I've never had anything even close to this done and I'm not taking it too well. I'm practically in tears! Any words or wisdom or advice?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Hi,

I'm having mine done in a few hours. I'm not scared or nervous at all. I only wish they would've done it when I was still eating gluten and sick. The test probably wont show damage now but at least I'll know if anything else is going on or not.

Everyone says its no big deal...I'll let you know when I get back. :)

Remember keep eating gluten until AFTER your scope!

tstarbrat Newbie
tstarbrat
Posted
Well, my blood tests finally came back. Here are the results:

GLIADIN ANTIBODIES IGA = 4

GLIADIN ANTIBODIES IGG = 25

REFERENCE RANGE FOR BOTH < 20 UNITS

So basically, the IgA showed up negative while the IgG showed up as a weak positive.

The doctor scheduled me to do an upper endoscopy/biopsy and I'm sooo scared!  :(  From what I've heard, most people say it's easy, but I've never had anything even close to this done and I'm not taking it too well. I'm practically in tears! Any words or wisdom or advice?

<{POST_SNAPBACK}>

Hi

To be honest I don't remember how my endoscopy went. I had it done april 04. I guess I just fell asleep during the procedure and then woke up groggy and confused. All I remember is getting the Iv set up and then drifting off. I was scared before I went but It all happened so fast. I was finished and found my mom smiling down at me in no time. Don't be afraid, it will be over before you even realize its begun. Hope this helps!

skbird Contributor
skbird
Posted

I'm having one done on Thursday, along with a colonoscopy at the same time. What scares me (more like fills me with dread) is the prep day - I am hypoglycemic and I am supposed to not eat the whole day before, starting at 7am. I sure don't plan on doing anything that takes any energy because I will be fried. Blech...

From everyone's review of it though, it is no big deal. Try not to worry about it, you won't remember it! :)

Stephanie

laurelfla Enthusiast
laurelfla
Posted

i had my endoscopy done in late june and all i remember is waking up and feeling very affectionate towards the nurses. and then i had a coke. mmmm...

i was scared beforehand, too, but it was painless, and nothing hurt afterward. :)

skbird Contributor
skbird
Posted

My mom told me this weekend when she had her colonoscopy, they gave her the first does of whatever, and she said that she involuntarily said, "Mmmmmmm, that's like a good martini." The doc said, "Want another?" and she said, "Yessssssssssssssss......." and fell asleep before she could finish the "yes".

Cracked me up.

Also, my dad said he was going to stay awake to watch the screen. When he came out he told my mom that once he got past the red part, where it shows the blood, he didn't remember the rest. My mom looked at him and said, "Uh, it's a black and white monitor, you wouldn't have seen red blood - you were asleep!!!"

You'll be fine...

:)

Stephanie

rmmadden Contributor
rmmadden
Posted

If I could get thru an endoscopy than anybody can!

I am a lousy patient. I'm not kidding. I get woozy and nearly pass-out from needles/blood draws/IV's, etc. It really isn't that bad of a procedure. The worst part is the gas pains and the sore throat the next day.

Hang in there & best of luck!

Cleveland Bob B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bellybattle Apprentice
bellybattle
Posted
  • Author

Thanks for the encouragement guys - I really needed that! I think I just need to stay off the WebMD website because it gives info on every possible little thing that can go wrong! :o It mentioned possible complications from punctured organs to developing infections to even getting pnemonia (if one were to accidentally inhale vomit into their during the procedure). I didn't even know this procedure could cause vomiting - which, by the way, I'm really afraid of throwing up. I don't know why I'm such a baby but I've always been this way! :rolleyes: I think I'll stay away from that site and listen more to the people who have actually been through it. Thanks again for calming me down!

bellybattle Apprentice
bellybattle
Posted
  • Author

By the way - I was told to fast for 12 hours, and that was about it on the directions. Does anyone know if it is ok to take Imodium or Lomotil the night before (as long as it is before that 12 hour time frame)? I've basically been living on this medicine and I'm not sure if it would upset the results at all. I'll probably have to give my doc a call just to be sure. Thanks again!

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Hi :-)

The test itself is a breeze :-)

What was hard on me was 'the prep stage'...

Don't worry, though, even that is just a matter of grim and bear it...

The test is actually an opportunity to get more rest!

Go home afterward, have something light to eat and take a cozy nap while the sedatives make their way out of your system! ;-)

Love, Gina

2Boys4Me Enthusiast
2Boys4Me
Posted

My five year old had an endoscopy no problem. Just remind the nurses of the most important thing: the popsicle afterward. Ty's was blue and later, he had an orange one.

You can do it! Good luck.

Lisa Mentor
Lisa
Posted

I had an endosopy two months ago. I can attest that the worst part of it is the anxiety before. My father used to say "expectation is always greater than the realization". In this case it is true.

The nurses are always very nice and calming. They even put on music to calm the patients. They will put on a blood pressure monitor on you through the proceedure. Once you get that shot in the arm..."say goodnight". I guess it wasn't more than a half hour and I was awake. My husband was in the room and talking to the DR. Apparently, I asked him several questions, but can't remember. Make sure that you take someone with you who will ask question so that they can convey them to you when your head is clear.

Came home and slept for the rest of the day, until dinner. I did have several days with a bad sore throat. Nothing that wasn't managable.

I ended, for the next three days, asking my husband about what was said, what I said and what the DR. said. He thought it was funny.

It truely is no big deal and getting answers is always a great relief. Good luck and relax. Let us know how you are doing.

Lisa B.

Rachel--24 Collaborator
Rachel--24
Posted

Well I'm back and I survived the procedure. :)

I'm pretty groggy right now...just want to sleep. I don't remember anything once they started the drugs. I was getting nervous during the preparation though. As many times as I've been poked with needles the last 3 years you'd think I'd be used to it...but I still don't like it. That was the worst part of everything. I woke up and I thought they hadn't done anything yet but they told me it was all over. I'm still fuzzy and can barely type but my throat feels fine. They sprayed some stuff to numb my throat but it wasn't bad at all...I think I crashed out right after they sprayed my mouth. Now I have bad hiccups. I wonder if anyone else got hiccups afterward. I tried to talk to the GI but my mom said I wasnt making sense really. :huh: I go back on the 27th for results.

Also I wasnt given any popsicles.

skbird Contributor
skbird
Posted

Wow, good to have the fresh experience. I asked my mom about having my husband in there with questions but she said the room isn't big, there won't be room for him. I'm hoping he can still get in somehow and ask some questions because I'll want to know something. Sort of feel like a control freak now, but I don't know if I could handle not knowing the results for a few weeks... :huh:

Anyway, I'll post on Thursday afternoon my impressions, if I have any.

Stephanie

skbird Contributor
skbird
Posted

Wow, good to have the fresh experience. I asked my mom about having my husband in there with questions but she said the room isn't big, there won't be room for him. I'm hoping he can still get in somehow and ask some questions because I'll want to know something. Sort of feel like a control freak now, but I don't know if I could handle not knowing the results for a few weeks... :huh:

Anyway, I'll post on Thursday afternoon my impressions, if I have any.

Stephanie

bellybattle Apprentice
bellybattle
Posted
  • Author

Thanks for the support everyone! I feel better now. :)

2Boys4Me Enthusiast
2Boys4Me
Posted
Well I'm back and I survived the procedure.  :)

Also I wasnt given any popsicles.

<{POST_SNAPBACK}>

What!? :o Maybe you have to be five to get a popsicle.

Lisa Mentor
Lisa
Posted

Stephanie:

Have your mom there or your husband. You will need someone to drive you home anyways. They may not be able to be in the room as the proceedure is being done.

My gastro dr. was able to tell my husband "what he saw". My husband suffers from CRS (Can't Remember S...) so.........tell whom ever brings you to have some paper and a pen/pencil. Have some pre-questions about the post-proceedure (make sense?) You should have some information from the Dr. that day, but results of any biopsy will be sent off and you will be notified later. Even if you have a conversation with your Dr. after, you will not remember. So therefore, you need someone to write things down for you.

I (my husband) was told that I have a large (sliding?) hernia, gastritis and scalloping in small intestines, consistant with Celiac. The biopsy confirmed Celiac.

He told my husband any myself. He barely remembered, and I of course, did not.

As difficult as dealing with celiac disease is, it a far better alternative to many other things that effect the digestive tracks. You can control Celiac/Sprue. It does not control you.

Take care, it will be ok? Lisa B.

Lisa Mentor
Lisa
Posted
Well I'm back and I survived the procedure.  :)

I'm pretty groggy right now...just want to sleep.  I don't remember anything once they started the drugs. I was getting nervous during the preparation though. As many times as I've been poked with needles the last 3 years you'd think I'd be used to it...but I still don't like it. That was the worst part of everything. I woke up and I thought they hadn't done anything yet but they told me it was all over. I'm still fuzzy and can barely type but my throat feels fine. They sprayed some stuff to numb my throat but it wasn't bad at all...I think I crashed out right after they sprayed my mouth. Now I have bad hiccups. I wonder if anyone else got hiccups afterward. I tried to talk to the GI but my mom said I wasnt making sense really.  :huh:  I go back on the 27th for results.

Also I wasnt given any popsicles.

<{POST_SNAPBACK}>

Rachel:

I know that your are a little doppy right now. Glad you are home and confortable. It is a relief when it is over, but the proceedure, you just don't remember. Wish childbirth would have been that easy. If I wasn't too old, next time I would holler for drugs.

I "think?" I had hiccups, it sounds vaguely familiar. Maybe that is the reason that my husband was laughing at me on the ride home.

You know what, I just rembered. When I woke up they gave me "nabs" - peanut butter and cheese crackers..............(welll I'll be dam..). They saw signs of intestinal damage due to gluten intolerance, and they gave me CRACKERS.

GO FIGURE??????????????????

Rachel, I know that you will feel much more alert in the morning. We'll let you sleep. Good night.

Lisa B.

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Sweet dreams ;-)

Gina

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Stepahanie - you'll be fine....your hubby would just distract the doc, so I wouldn't ask about having him be present....that's my thoughts about it...

Of course, he can still tell the doc, "Take great care with my angel!"

Gina

Lisa Mentor
Lisa
Posted
Thanks for the support everyone! I feel better now.  :)

<{POST_SNAPBACK}>

Bellybattle:

Sometimes when someone post a site, we all chime in. I hope that much of what you have read will make you feel better about your proceedure. We often get side tracked. I was worried and nervous, that is natual before something like this.

It will be ok. Trust your doctor and ask as many questions that you feel you need to before...afterwords, take a good nap.

It is a good step to solving a puzzle. Thinking of you. Lisa B.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I had an endoscopy and colonoscopy on the same day -- the endoscopy was a piece of cake -- they gave me some lidocaine syrup to drink to numb my throat, then put a bite guard in my mouth so that they could guide the tube. Then they gave me medication called Versed which just puts you in La-La land, and added some Demerol to help control the pain. It was no big deal. B)

They didn't appreciate my humor prior to the procedures, though. I asked them that if they were going to use the same tube, would they please do my throat first. They were not amused.

Canadian Karen Community Regular
Canadian Karen
Posted

Wow, they sounded rather anal! <_< (pardon the pun :P )

Sounds like they need to lighten up a bit! B)

Karen

nogluten- Newbie
nogluten-
Posted

Don't worry about the endoscopy. The fentanyl usually makes you nice and happy (like many others have mentioned)before you have a chance to feel a thing. I told my doctor he was very handsome before passing out ! :lol: (I had never thought that before, but i guess the fentanyl gave me some beer goggles.) :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.