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Gluten Free Carbs Hindering Recovery


Songbird1976

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Songbird1976 Rookie

Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.


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Juliebove Rising Star

I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

Songbird1976 Rookie

I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

That's very interesting Juliebove, thank you for sharing. I couldn't agree more about the diet. :)

ButterflyChaser Enthusiast

Amen to that. I am in your same situation, Songbird. I cannot even have rice, and don't know for how long I will have to be grain-free and legume-free (I don't seem to have issues with dairy). My doctor originally thought three months would be enough, but now it looks more like nine months, and then we'll see. In my case, even smaller quantities of these cause me almost instant GI reactions and a worsening of my edema in the legs, probably because they exacerbate my protein-losing enteropathy.

Lady Eowyn Apprentice

Hi

I too am very suspicious of the fact that high-carbs could be the problem, as opposed to specific foods themselves.

Have noticed that all my problem foods (over and above gluten) are high carbs!!!!!

dilettantesteph Collaborator

In my case, I looked at carb contents of foods and which bothered me the most. Some high carb foods didn't bother me. When I considered cc, it seemed a more likely source of problems. Super sensitive celiacs can react to even the low levels allowed in gluten-free foods. I was fortunate to have a GI who told me about this. Knowing about this enabled me to find a safe diet. I don't know if it could be a possibility for you or not, but I thought that being aware of this issue might help.

pricklypear1971 Community Regular

I've noticed I can't eat sweets made with gluten-free grains, in any volume. One slice a cake for two days, fine. More than that - I start to feel bad (belly, blood sugar, cravings).

I can eat coconut/almond/full fat dairy sweets in a higher volume for longer without cravings, bloating, blood sugar issues. They also hit the "stop eating" button in my brain, whereas gluten-free grain sweets don't.

gluten-free grains+sugar= bad news for me.


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Lady Eowyn Apprentice

It's all such a jigsaw puzzle.

I do consider myself a super sensitive and have yet to find a so called 'gluten-free' food (processed) that I can eat :( .

I do have problems with carbs though, especially combined with sugar which I am also not tolerant to. High carbs give me cravings too, which are worth avoiding!

I find it very helpful here to know I'm not alone :) .

ndw3363 Contributor

Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.

I too have this same problem - grain free is really helping.  May I ask what supplements you are taking?  I've been experimenting with various things, but would love to know what worked for you.  Glad you found an answer!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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