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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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  1. Past hour
  2. Thank you for your response, GFinDC. I agree that buying from a local producer is a safe bet.
  3. Today
  4. This is still not the place for your politcal feelings. this is not relevaent to the topic.
  5. That's because they were using DDT before round up which also contained glyphosate, which has been proven to cause Celiac's and many other diseases
  6. Hi all can you help i this query? Is Aldi stonemill shake n sprinkle chicken seaoning gluten free? 52g pot it does not state may contain and the ingredients are not to me obvious gluten
  7. Hi there KeriMary I think iron is something worth looking into on this one, too. My teenage daughter has been looking pale recently and has started using the wrong words for things - something that I do when my iron is low. It made life interesting when I used to have to give talks. One evening the audience was joining in as I tried to find the right word for 'lantern'. (I need to get my daughter's iron checked!)
  8. A quick update for anyone who gets these odd readings with their coeliac disease. My ttg was elevated - significantly - in November (86) and the LFT/LET they ran showed my immunglobulins are up yet again - three points above normal. So it seems to be that my liver gets angry when I get gluten in my diet. Two gastrenterologists didn't even mention it to me. Now I'm going to be ultra careful after a few slips this summer in the hope it comes down again.
  9. More and more, people are adopting a gluten-free diet due to perceived health and weight-loss benefits. A team of researchers recently set out to ask people with celiac disease and non-celiac gluten sensitivity about their views on the health effects of gluten, and safety of vaccines and gluten-free food products. View the full article
  10. Welcome! Get that follow-up testing. At least help confirm that you are compliant with the diet and that celiac disease is not the root cause of your brain fog and anxiety. Once ruled out, your doctors can focus on other possible AI issues that are beyond your control (unlike celiac disease). For now, you can focus on a good healthy diet. Consider a modified AIP diet. I just read a study involving this diet and IBD (autoimmune) done by Scripps in San Diego. There was a 77% remissions rate. Amazing! This can (in theory) be applied to other autoimmune issues. It helps to validate that diet can heal. http://journals.lww.com/ibdjournal/Pages/ArticleViewer.aspx?year=2017&issue=11000&article=00021&type=Fulltext here are some follow-up guidelines: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Hang in there. Consider Ennis’ tips too, but I prefer and do well without supplements. My doctor has checked me for deficiencies and so should yours. You need to really figure out what is best for you (food, supplements, etc.)
  11. I have seen info that children's antibodies can drop very quickly. The lucky little guys!
  12. I think if you search through this section of the forum, you will find that many children see a quick drop in their antibodies. Recovery can come fast or slow in both kids and adults. We are all different! I can tell you that my antibodies are still high, yet I had a repeat biopsy done last week showing healthy villi (Marsh Stage IIIB at diagnosis five years ago). So, here I was beating myself up for having elevated antibodies which made it look as if I was not diet compliant, and I was actually healed. Researchers have not done a lot of studies about repeating the antibodies tests after diagnosis to monitor progress (lack of funding for sure). Repeat antibodies testing is not perfect, but it is the only tool in the box right now. We suspect my antibodies (DGP IgA only positive on the panel ever) are up for other reasons (e.g. my Hashimoto’s, another AI issue, residuals from a previous gluten exposure). I do have symptoms but these were attributed to other things including chronic gastritis which, since I do not have active celiac disease, h. Pylori, drink alcohol, and am allergic to NSAIDs and other meds, is probable autoimmune. Great job on keeping him safe! I am glad he is feeling better. He is seeing results from the diet which helps confirm the diagnosis. Systemic issues can take longer to heal, so just keep moving forward.
  13. Magnesium, B-vitamins, Vitamin D etc. Should probably be supplemented. For the fog, stress, brain issues I swear by my regime of Liquid Health Stress & Energy, and Liquid Health Neurlogical support 1tbsp each 3 times a day in a beverage before a meal. Works wonders, magnesium is also wonderful, you did not mention constipation or D so I do not know which is best for you. There is Doctors best and Natural Vitality, Doctors best works great for relaxing and is easy on the gut but Natural Vitality is easier absorbed but can be harsh on the gut, it also is great for constipation. Doctors you dose as it tells you, Natural Vitality, you start off at 1/4 tsp and up it slowly to full dose over 1-2 weeks. Liquid Health also makes Vitamin D3 in a sublingual form. ALL of these can be found on Luckyvitamin.com and on Amazon. These will help with you fog, and anxiety.
  14. Our 6 year olds Iga test came back over >100 last May. We had him tested because he was thin, had dropped down in his weight charts and was losing his hair! He was also suffering from miscellaneous aches and pains. We immediately eliminated gluten and with only a few screw ups, 6 months later his level was 4! The doctor is astonished at how rapidly it decreased, and is questioning whether he has celiac or not. (has not had a biopsy, as they are so invasive and the testing is so accurate these days.) His hair is thicker and he has gone up in weight 5%, and doesn't complain as much about leg pains or aches. Has anyone else's child recovered this fast? Could something else be going on? His thyroid tests are normal, so the plan for now is to keep doing what we are doing and re-test both Iga and thyroid in the spring. thanks for any help!!
  15. Gluten attack

    I too have a servere but Of D. Lasting over 2 weeks I will try to find thisproduct. Like you nothing works. I am trying FiberCon says only take for 9 days. Feeling somewhat better. Thank you for your info.ism welling to try anything..
  16. Soft blended, soups, porridge, Personally I had to avoid the follow for my last gluten attack Spices (made it burn), any carbs, sugars even in trace amounts caused gas, We normally suggest removing dairy and oats also as they become problematic during healing. Simple soft cooked egg dishes (coconut/almond meal quiche and microwaved omelettes), nut meal porridge sit best for me. Many swear by peppermint and camomilla tea, and peptobismal but neither of those work for me personally, other swear by Imodium for the D. There is a product out there that is supposed to lessen the symptoms of a exposure called GlidainX that helps to break down some of the gluten in the intestines so it is not as bad but you have to take it right after realizing the issue. Not tried it personally but after my last exposure and the following 4 weeks of random bouts of D I had I would have tried anything lol. MY D did no stop til my antibodies went back down and my exposure was a low and slow exposure to a CCed food staple....
  17. Hi lex, I haven't tested anything with NIMA myself, since I don't have one. I did find some honey sites that claim they have gluten-free honey. This is just a couple I found in a quick search. It seems to me honey is made from nectar of flowers. The nectar is a precursor to the seed. So the seed isn't formed until the flower is fertilized. Then gluten is formed as the seed matures. So normally I think there is little chance of honey having gluten in it because the nectar and gluten are not present at the same time in the plants. I don't think it's impossible for honey to somehow get some gluten in it. Honey from china has been adulterated with other things already. Generally high fructose corn syrup. But who know what else they put in it? I think's its safer to buy local honey where you know the farmer than imported brands IMHO. If there were a large flour mill in the area where the honey was being harvested I'd be a little wary of it myself. At least for honey produced during the harvest season. http://www.barkmanhoney.com/faqs/does-honey-contain-gluten/ http://www.capilanohoney.com/au-en/faq/is-your-honey-gluten-free Is your honey gluten free? Honey is naturally free of gluten. It does not contain wheat or its by-products. Our honey is 100% pure and natural, nothing has been added to it, therefore it is 100% gluten free. In addition to this, no gluten containing products are handled or stored in our packing facilities.
  18. Hi everyone! New to the forum. I was diagnosed in 2012, told to never eat gluten again, and never had a follow-up or anyone really care about the diagnosis. My Endo checked my vitamin D levels (the low level and genetic history lead to my diagnosis) bi-annually which have remained now in the normal range. This level is what I was always told determined if absorption was happening or not. I have never heard of the things everyone on here gets tested for I feel so cheated out of my health in a way. anyways. I have severe, severe brain fog. I used to be so smart, sharp, witty, focused. I even have some personality changes and severe anxiety. I was put on Xanax after I was diagnosed but my tolerance to that medication is outrageous. I have to take three times the prescribed dose (my doctor knows this) in order to get any relief/clarity. I have a weight problem even though I work out four days a week (with a trainer), probably due to my flip floppy thyroid levels. Anyways, that’s my story! I have appointments with a new PCP, Endo, and GI doc in March! Just wanted to share with you all because you’re so kind and helpful. If anyone has any advice for this brain fog, I would be so appreciative. I should also mention that I was extremely smart and sharp before stopping gluten, ironic? Like the lack of gluten dumbed me down 🙈 I never ever cheat. I know restaurants aren’t 100%, but I rarely chance that. There may be SOME cross contamination but I never feel repercussions. Thanks for reading ☺️
  19. Does anyone one have the symptom of period like cramps? After menopause?
  20. I have an ipad and iphone - so not sure if these exact games are available to you. I like a word game called word crossy. Also "1010" games are good to try. Picross style games can be fun
  21. Same stuff, different brand. Ingredients Mung Bean Starch. Cellophane. I don't know why I thought glass. The Hokan Saifun is $2.09 for 3 noodle cakes 3.75 ounces. ingredients: mung bean flower and water. After it is cooked I snip it with scissors. Saifun noodles are known as: Mung Bean Threads, Cellophane Noodles, Bean Threads, Silver Noodles, Jelly Noodles, Fen Szu, Sohoon or Tanghoon
  22. If your concerned on wheat/gluten, see about getting a actual celiac blood test done, you have to be eating wheat for the test to be accurate. After that you will need the follow up endoscope and biopsy. http://www.cureceliacdisease.org/screening/
  23. I play a few online games...not as much as I used to, and I no longer really do the social aspect of them. EVE Online when bored I might just get on it and mine some asteroids, or run missions while watching anime or reading a book...makes me feel productive "Multitasking" lol. I have a few phone/tablet games like TrainStation where you just send trains out on contracts every day or so also.
  24. Two options for online noodles that are lower carb, the cellophane noodles as suggested but I really do swear by Miracle Noodles which are No to low carb. They have and adjustment phase...they are pure fiber noodles. They can cause issues if your not used to them, or if you have bad gut bacteria. But they have enabled me to enjoy pasta, rice, and noodle dishes without issues....>.< I always keep their MRE meals in my fridge for when I got to eat on the go. But anyway for a lighter easier ramen, or noodle soup they are also great, Good for pasta, fried rice, and risottos also without the heavy feeling. I suggest a sampler pack to get a feeling for each before doing a case purchase. Also keep a eye on them for sales. I normally nab a case when it goes on huge sale every few months. PS you HAVE to rince and preboil, then rinse again to give them a neutral taste. https://www.amazon.com/Roland-Bean-Thread-Noodles-8-8/dp/B0001840KW/ref=sr_1_sc_2_a_it?ie=UTF8&qid=1516107778&sr=8-2-spell&keywords=celloohane+noodles https://miraclenoodle.com/collections/miracle-noodle-rice-products
  25. Hokan Bean Thread Cellophane noodles. also called Saifun. Publix supermarket has it on the Ethnic food aisle bottom shelf below the Tamari, with the other aisian noodles.
  26. Hey everyone, just wondered if anyone can help. I recently got glutened For the first time since I bacame gluten free 18 months ago. I’m really struggling. The D and sick ness has stopped. (Thankfully) but I’m still getting unbareable cramps in my tummy. Anyone got any tips on how to help with the healing process and to ease the cramps Thank you 😘
  27. But we felt that if we turned this review over to the gluten-free beat, such as it is, that we'd be giving Sift (4557 Bloomington Ave S, Minneapolis) short shrift. We will however give short shrift to the controversy, such as it is, surrounding the steady rise (get it?) of gluten free. Yes, celiac disease is real, and it ... View the full article
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