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  1. Past hour
  2. icon Zuma888 reacted to an article: Celiac Disease Blood Antibody Tests
  3. Indian Room
    Indian Room joined the community
  4. icon Zuma888 reacted to a post in a topic: I am wondering if my symptoms are Celiac Disease related..
  5. icon Zuma888 reacted to a post in a topic: I am wondering if my symptoms are Celiac Disease related..
  6. icon Zuma888 reacted to a post in a topic: I am wondering if my symptoms are Celiac Disease related..
  7. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  8. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  9. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  10. Today
  11. N00dnutt started following Probably celiac but also confused
  12. N00dnutt
    Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense...
  13. Pippa White started following The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
  14. Lynda H
    Lynda H joined the community
  15. jeriM
    Thank you Knitty Kitty, I have all the information for the nutritionist sitting in front of me, but I've procrastinated. Between you and Scott - I'll contact him tomorrow and get started on a better me. Thank you both for all the support and information.
  16. Maelyn
    Maelyn changed their profile photo
  17. Healthforme started following Nutrient Deficiencies and Celiac Disease: Understanding the Connection
  18. icon Healthforme reacted to a comment: The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
  19. icon Healthforme reacted to an article: The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
  20. April Martin
    April Martin joined the community
  21. knitty kitty started following Can Celiac flares affect my eyes?
  22. knitty kitty
    Hi, @jeriM, I can attest to Celiac and eye problems being connected! There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease. Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell. Have your doctor check for Sjogren's. Correct low Vitamin D, which regulates...
  23. Michaela Bair started following The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
  24. Jennifer Soric
    Jennifer Soric joined the community
  25. Yesterday
  26. Maxxerdog
    Maxxerdog joined the community
  27. icon Scott Adams reacted to a post in a topic: Can Celiac flares affect my eyes?
  28. Phyllis Ramsey
    Phyllis Ramsey joined the community
  29. dane.calkins
    dane.calkins joined the community
  30. Kevin Cavanaugh
    Kevin Cavanaugh joined the community
  31. jeriM
    Ah, Scott, Ha ha! Thats almost a reasonable assumption given the prices during the shortage. However, our eggs? We always gave them away to friends and seniors we know, so no mansion here. Now we have to buy eggs like everyone else. The house we found, we loved so much that it made it worth it for us to give up the chickens. A hard decision...
  32. Scott Adams
    Claritin is an allergy medication which can help with allergy symptoms, but may not be helpful with gluten exposure.
  33. Scott Adams
    I think vitamin & mineral supplementation is key for you, and at the very least you should consider taking 1-A-Day multivitamin and perhaps additional supplements. This recent study is interesting: https://www.gastrojournal.org/article/S0016-5085(20)30239-0/fulltext The most common nutrient deficiencies associated with celiac disease that...
  34. Scott Adams
    I know what you mean about the high cost of drugs. I recently had to get meds for my mother from a Canadian pharmacy because only the non-generic version is available is the USA, and it is ~$550 per month here, while in Canada the generic version is only around 1/3 the cost.
  35. Scott Adams
    Reddit is another place to search, which I found this thread:
  36. Scott Adams
    I wish I had known you during the egg shortage! Are you living in a mansion now from the eggs sales?😉
  37. Scott Adams
    No, it means that you inherited one DQ8-positive gene from one of your parents. The people who did your genetic test should be able to tell you which parent has the gene, but that parent should also get a celiac disease blood test done annually, as should any of your siblings and/or children.
  38. KatieTrizzle
    KatieTrizzle joined the community
  39. xxnonamexx
    1st trip completed LBI in New Jersey. Found gluten-free restaurants and took gluten-free snacks like Snyder pretzels, Tates cookies, Veggie Stix, made my own gluten-free granola and took Silk almond yogurt. Dinner Steak at a gluten-free place, Salad at another place and Burgers from a dedicated gluten-free restaurant. So far so good. I am researching in Aruba...
  40. perrykarin started following The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
  41. perrykarin
    I was not diagnosed with Celiac until I was 50 (13 years ago). I have often said to my husband that I fear I have Alzheimer’s as my memory and word retrieval are often very compromised. I have also suffered from depression. After reading this article I wonder if I may have some neurological issues from years of eating gluten not knowing I had Celiac. Are y...
  42. Pgetha started following Gluten free thyroid medications
  43. Pgetha
    I have been dealing with this same issue for our son who has Down’s Syndrome and Celiac Disease. Insurance, (Medicaid) outright will not cover the Gluten Free which is a capsule under the brand name Tirosint and another manufactured by Lanette and a third by Yaral. Just yesterday, Medicare (not Medicaid) finally approved it but this was after 6...
  44. NoGlutenCooties
    Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny
  45. jeriM
    Thank you so much. It helps just knowing there is a connection and it's not my imagination. I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you. During one flare I went to see an ophthalmologist because my symptoms were so severe. He didn't draw any connection but just said that my eyes were extremely...
  46. Zuma888
    Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8?
  47. Scott Adams started following gluten-free in Wilmington, DE , Upset stomach and How to interpret my genetic test results
  48. Scott Adams
    Any chance you are getting traces of gluten in your diet? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  49. Scott Adams
    Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two alleles together form the HLA-DQ8 haplotype, so having both confirms the DQ8 positivity (not just one alone). Since you’re ...
  50. Scott Adams
    A quick Google search turns up lots of options, but be careful eating out, as cross-contamination is common--even in restaurants that offer a gluten-free menu: https://www.google.com/search?q=gluten-free+in+Wilmington%2C+DE&rlz=1C1CHBF_enUS981US983&oq=gluten-free+in+Wilmington%2C+DE
  51. Scott Adams
    It’s absolutely possible for celiac flares to affect your eyes—many people with celiac disease or gluten sensitivity report eye inflammation (like uveitis or dry eyes) during systemic reactions. Since celiac is an autoimmune condition, the inflammation isn’t limited to just your gut; it can trigger immune responses elsewhere, including the eyes. The fact ...
  52. Scott Adams
    Your journey sounds incredibly frustrating—dealing with mysterious symptoms for years, only to piece together the puzzle yourself, is both impressive and exhausting. It’s wild how something as routine as antibiotics can seemingly trigger such a cascade of issues, and it must’ve been scary to deal with the hives and swollen tongue without clear answers. The ...
  53. Scott Adams
    Welcome to the forum @drewsmom01, it’s frustrating how much trial and error goes into managing chronic digestive issues, especially when diagnoses seem to change or contradict your lived experience. It sounds like you’ve been through so much over the years, from the initial diabetes and gastroparesis diagnoses to the recent confusion after your upper GI/...
  54. Scott Adams
    Thank you, and be sure to check out these categories: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/depression-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ https://www.celiac...
  55. Emdoller
    Several years ago I took a very high dose of antibiotics. Since then l've struggled with strange symptoms that I thought were related to the antibiotic. Fast forward to roughly a year ago. I started having leg muscle pain. Tried lots of things and nothing seemed to help. A few months later i developed hives and would occasionally get a swollen tongue...
  56. jeriM
    It seems like eye inflammation comes at the same time as digestive upset. My system still hasn't completely settled despite adhering to a strict diet, and eye inflammation seems to coincide with celiac attacks.
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