Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Gluten Free Has Affected Your Life


happy-2b-me

Recommended Posts

happy-2b-me Newbie

Hey people,

so I wanted to ask everyone what their journey with gluten-free has been like. Personally, I have been gluten-free since the age of 6 (1999, when celiac hadn't gone mainstream yet), due to a wheat allergy, so I've pretty much lived my whole life with it, and it's not really that big of a deal. My friends understand what I can and can't eat (most of the time) and I've become good at creating my own meals (since pre-made gluten-free can be EXPENSIVE). I'm in college, but I live at home. That comes with its own set of problems, right?  ;)   So, basically I'm wondering, 

 

1. Are you G sensitive, or Celiac?

2. What's your gluten-free story, has it been frustrating, easy, expensive, scary, funny...?

3. Do you think that being gluten-free make you unique, does it define you as an individual?

4. What do you think needs to happen in the gluten-free and non-gluten-free communities/industries to help us all out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

1) I am a self-diagnosed celiac based on family history and response to the diet.

 

2) It was frustrating and downright heartbreaking at first. Now that I've adjusted, it's a piece of (gluten-free) cake! :)

 

3) Being gluten-free is no different to me than having blue eyes or being tall. It doesn't define me, it's just part of living that I only think of when contemplating eating out.

 

4) Being that I live in a tiny and rather isolated town, my wish is that there were more gluten-free options locally. My local health food store carries some decent breads and some gluten-free sausages, pizza (Against the Grain - YUM!!) and a few desserts. The trouble is, a lot of the gluten-free foods contain soy or corn, both of which I am also intolerant to. If Against the Grain can make such delicious foods in a gluten-free, corn-free and soy-free facility, why don't others? Also, it is really hard to find vitamins and supplements that are free of all three.

 

It would be nice if more restaurants had truly gluten-free menus and educated their staffs on CC. But I'm not holding my breath. <_<

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748

    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.