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Advise On Range Of Symptoms

CR5442

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CR5442 Contributor
CR5442
Posted

Hi all, this is about my Dad, not me.  I am not biopsy diagnosed but have Celiac (ataxia, stomach problems, migraines, weight loss etc when eating gluten - worse after two years avoidance).  My Dad has been admitted to hospital with severe prostatitis, liver stones, kidney stones, renal failure and bleeding gut (alternating const/diarr).  Does anyone recognise these as celiac symptoms?  He also has MS, and has had digestive problems his entire life...particularly in adulthood.  Any advise on what to ask the doctors?  He is very stubborn and proud and wants to do everything himself but I'm sure he'll think the celiac connection is lala unless I can come up with some peer reviewed medical articles to show him.  He has been treated shockingly by his GP surgery and I think is honestly expecting to die some time soon. Any help will be welcome.

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Posted

Hi Caroline.  I'm so very sorry to hear about your Dad.  I will pray for him.

 

As far as your questions are concerned.   The prostatitis, if bacterial should be able to be cleared up, if not bacterial then I don't know.  The renal failure does have a connection to celiac.  Here is the information about that. Open Original Shared Link. Since the stones and the bleeding gut are also digestive issues they may have a connection but I'm not personally aware of it.  

 

I do think it is worth mentioning it to the doctor even if not to your Dad.  I do hope they can get him stable.   Don't hesitate to ask more questions if you would like.  We are not doctors here but we have a wealth of experience.

 

All the best to you and your Dad.

 

Colleen 

CR5442 Contributor
CR5442
Posted
  • Author

Thanks so much Colleen.  I haven't had a chance to talk to the doctors as visiting is out of daylight hours.  He is now out of hospital so that his kidneys can recover enough for them to do the barium meal contrast scan... but he is still very poorly.  I'll see if I can mention to his wife this weekend about the celiac.

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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