Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Feel Like A Hypochondriac


jvdb

Recommended Posts

jvdb Rookie

Does anyone else feel like they are driving themselves crazy trying to figure out what causes their stomach issues?  At first I thought my issue was just chocolate milk and ice cream since I ate dairy on a regular basis and those two were the only ones that caused immediate symptoms.  I still often got chronic and urgent diarrhea but didn't connect it to dairy since I probably had milk products at least three times a day and grew up in a house where we had a glass of milk with every meal.

 

Fast forward to this year and I decided I was sick of being sick so I decided to try cutting ALL dairy, my issues improved immediatly.  No more unexplainable running to the washroom, no more sitting in the washroom with my stomach spasming uncontrollably...  I've found the problem I thought.  But realized although my symptoms were 80% better I still was experiencing loose stools 3-4 times a week, and major bloating.  My sister suggested getting tested for celiac and at first I thought she was crazy until I looked it up and read the connections with lactose intolerance and celiac.  We do have two cousins who have been diagnosed so it wasn't a long shot.  After looking at celiac symptoms I also realized that perhaps this was the solution to my adult acne, fatigue, and daily mild headaches.  It HAD to be celiac, well the test ended up being normal.

 

Now a friend who HAS celiac (blood test diagnosed) has told me to try going gluten free anyways and perhaps I still do have issues with it.  I'm tempted to try this however I am starting to feel like a major hypochondriac.  Although milk definitely doesn't agree with me, maybe the rest is all in my head?  My husband thinks I am overreacting and yet gets annoyed with me that I am tired all the time even though I sleep a solid 8 hours every night.  And WHY do I have acne at 25 years old when I eat NO processed foods, why does my stomach look great in the morning and then pregnant by evening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

It's worth a try. I know a lot of people who feel better when they go gluten free (even without having Celiac). Non-Celiac gluten intolerance is not a rare thing these days. 

 

I went dairy free for the first few months of my Celiac diagnosis. It turns out that I can eat dairy just fine these days. But it didn't hurt to try.

 

Just make sure that if you try it, you do it 100%, otherwise what's the point?

 

Also, people who haven't dealt with constant stomach aches, cramping and bloating for years have no idea what that feels like. My (now ex) boyfriend didn't understand why I was so eager to figure out what was wrong with me. He was in complete denial that I was sick. (Meanwhile, I was thinking, "Well, it's not like I invite you into the bathroom to share that experience..."  :wacko: )

  • 2 months later...
ktylizbth Newbie

I would do a food log and note your bowel movements as well as other symptoms. Have several days without gluten. Then have a day with gluten and then note your stools. Take gluten out, take it back, take it out....Then maybe you might be able to see more of a connection. It'd be curious to do some type of elimination reintroduction diet to see what could be causing your bloating and loose stools. I would also consider getting allergy IgG and IgE testing if you can. 

1desperateladysaved Proficient

I remember being asked when the baby was due.  It isn't normal for a belly to stick out like that.  My issue was celiac and for years I thought I was lazy or hypochondriac, or it was all in my head.  IT WASN'T.  I would do all I could to find out if I could do it again.  In the end I  just decided that people could think "ill" of me if need be, because I couldn't keep living and dragging through life.  I want the same for you, answers to your questions, and the ability to make a difference.

 

Were you eating gluten when you had a celiac panel done.  Did you have a full panel done.  Have you ever checked your nutrient levels?

 

D

Rhonlynn Newbie

I found this forum looking up gluten intolerance. I'm 51 and was born with allergies. Here's my allergy list:

Milk (I can tolerate it in baked items, and most cheeses. But too much ice cream, or milk will give me an asthma attack. I was born this way.)

Eggs,

chocolate (I am able to eat cacao.),

some nuts (cashews must be soaked hours before I use them with cashew cheese recipes then there's no problem.)

Casein in milk gives me an awful migraine. It's been this way for years, getting a migraine after certain dairy products. I finally got tired of it, and thought, "milk protein." yep....

 

Then seasonal allergies.

 

I have eczema, which bugs me and I've had it all my life, on my outter arms near my elbows.

 

So I began working out doing P90X. I followed the diet in the book, and gained weight. I felt sluggish, depressed. I ended up hurting my shoulder so I stopped. I felt like a slug by then. I noticed something I've always done. I would get a rash, about the size of a small egg. I would itch it until the middle blistered in the center, it remained mild but embarrassing.. While reading up on milk allergies, gluten intolerance came up. I thought, why not? So I took myself off of wheat in general. That's not an issue, I have thousands of no cook food recipes, or grain free.

 

In the past 2 weeks, I feel lighter. It's winter, so I can't say about my skin yet. But I get up early, and stay up later. and my face is changing. I feel happier, and not like a slug...my scales died on me, so I have no idea how much I weigh.

 

I'm not one to go to a doctor very much, I'm a nurse. But sometimes, I felt like a hypochondriac, until I found this forum. 

 

Juliebove Rising Star

You might possibly have what my daughter has been going through.  Have they ever taken an X Ray of your stomach and the surrounding area?  She and I do both have multiple food intolerances, but...  She also suffers from severe constipation.  So much so that the last X Ray showed over 4 feet of impacted crud inside of her.  She was very bloated, in pain and had clusters of pimples on top of clusters of pimples.  I surmised that the constipation made her somehow toxic.

 

The Dr. told her she will need to take Miralax daily for the rest of her life.  Said she just has slow digestion although not quite what I have which is gastroparesis.  Said it is genetic and there really isn't anything she can do about it except to drink extra water and take the Miralax.  It took her a full week to clear it all out. After the second dose of Miralax, her face totally cleared up.  And she was pooping some that wasn't big D but not much.  Until a week later where she had to sit on the toilet for a full hour and a half.

 

The Dr. said that what happened was that she was so stuffed full and impacted that the only thing that could pass through was liquid.  Hence what appeared to be big D.  Not quite the same though.

 

Of course I can't say for sure if that is the case with you but from what I have read about the Miralax it seems perfectly safe to take so you might try it for a week and see if it makes a difference.

 

But I understand feeling like a hypochondriac.  My reactions to foods are often quite delayed and I can't always tell what is causing my symptoms.  But testing showed odd things like mint, cloves, thyme, lovage and other things.  Only after I stopped them did I see the problems they were causing me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    2. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - knitty kitty replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,044
    • Most Online (within 30 mins)
      10,442

    Cayla
    Newest Member
    Cayla
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
    • knitty kitty
      @Jmartes71, Been here.  It's okay.  You're not imagining things, but there's no bugs or parasites in your skin.  The cats are not infecting you with anything.  That's a hyperkeratotic plug that builds up in a hair follicle which does go deep and is attached by the hair sheath that looks stringy.  It's a type of thing seen commonly in Dermatitis Herpetiformis.   Niacin B 3, in the form Nicotinic Acid (active form that causes flushing) or in the form Niacinamide will help immensely with clearing this up.  Take 100 mg three times a day, and Tryptophan (another form of Niacin) to help you sleep and heal your intestines at night.   Kidney stones can result when the body doesn't have sufficient Thiamine B 1.   Are you taking a B Complex supplement?  The eight B vitamins are water soluble.  Many people with Celiac Disease benefit by taking a B Complex to boost absorption.   The cloves are great because they can reduce inflammation, but your body needs the Bs and extra Niacinamide as well.  Benfotiamine, a form of Thiamine B 1, is also needed in higher doses to heal the intestines.  If you get your intestines calmed down, your skin will calm down, too.  Benfotiamine has anticancer potential in higher doses. Rapid resolution of delusional parasitosis in pellagra with niacin augmentation therapy https://pubmed.ncbi.nlm.nih.gov/19061687/ Tryptophan metabolism: From physiological functions to key roles and therapeutic targets in cancer (Review) https://pmc.ncbi.nlm.nih.gov/articles/PMC12139378/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
×
×
  • Create New...