Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Glutened...ugh


luvrdeo

Recommended Posts

luvrdeo Apprentice

I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously.  This was LAST Sunday...as in, the 13th.  It took a few days before I knew what was going on...but then it hit me, and hit me hard.  And still is.  I've been gluten-free for over a year now...this has to be my biggest unknown slip-up, and I'm miserable!  My stomach is making noises it never should.  Food is literally running out of me.  It's been almost 2 weeks...anything I can do to ease the "pain"??  I thought it would be out of my system by now!  Dang food anyway...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular

I've had a similar experience recently and the only thing that helped me was gluten and wheat free slippery elm (in capsule form). Hope this helps. Good luck. Hope you feel better soon.

notme Experienced

i am right there with you - not last saturday, but the saturday before we went out of town and one of the places we ate at (yeah, i broke my own rules - sick of hearing 'we're hungry, where should we eat" so i did the 'find me gluten-free' app (which is actually pretty good on the phone - i thought it was better than the website) and let them pick some places - MISTAAAKKE!)  evidently glutened me.  i am just starting to feel a little better today  :(  this thing is soooo miserable.  my digestive issues weren't as bad as the neuro ones this time.  i am going to take that as i am doing pretty good with healing after 3 years lolz - but - i thought it might go away sooner(it's 14 days for me)  but i am still dragging and staying pretty close to the bathroom :( and bed :( 

 

hard to believe i used to feel like this (or worse!) all the time...  wait it out, be gentle on your insides as far as foods, drink water, for me,. hot showers maybe, i guess mostly time.  feel better soon!  :)

IrishHeart Veteran

When I have been hit, I double the probiotics for a week  (dose in morning, dose at bedtime) and it knocks down the inflammation

and I drink a lot of water. Take it slow, rest. It's all we can do.

 

Time heals.

 

I eat mostly carby stuff (I know, fattening) but toast with jam  just makes me feel better and then, just ride it out.

 

Sorry, hunny ((HUGS))

luvrdeo Apprentice

Thanks for all the good advice, and support!  I know we all try hard to be super careful...but sometimes it happens!  I really need to get back on a good probiotic...I used to take it religously, but have slacked lately.  Hadn't heard of the slippery elm...I'll look into that too!  I am just sick of having to run to the bathroom 100 times a day...gets old!! :angry:

nvsmom Community Regular

I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much.  :(

 

L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores.

 

I hope you turn a corner this weekend.  (hugs)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,189
    • Most Online (within 30 mins)
      7,748

    Bradley H
    Newest Member
    Bradley H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...