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Being Good - Still Having Problems


VAGuy

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VAGuy Apprentice

Hello everybody, thought I'd run this past you folks.

gluten-free since November

EnteroLab advised me to go gluten-free, and avoid dairy, eggs, and yeast in April

and that I did not have colitis

Had been dairy free for a while before that

Have found that only minimal amounts of corn products can be tolerated

Can tolerate only minimal fiber

Why does sugar trash my digestive system? If between meals I have a little Jello, Tang, 100% fruit juice, etc. I'm running for the bathroom a few hours later. A little Smucker's Blueberry Syrup (corn syrup/sugar) kills me.

I can have 2/3 banana @ dinner with say 3 med. strwberries, and 1/2 tablespoon All Fruit (9g sugar per tablespoon) on a 3g of sugar waffle (waffle is desert) and do OK, and maybe a couple sips of apricot nectar later, but otherwise I've found it best if I just avoid sugar/sweet items.

Any thoughts would be appreciated. I have a appt. 7/7/04 with a GI to finally talk about this and am really trying to get things mapped out/organized before I see him. If I can get a line on sugar woes, the only thing left on my list is to determine whether it is spaghetti sauce that bothers, or the soy flour in the pasta I'm using.

Thanks, Phil

P.S. Depending on where you live you'll understand when I say am I glad the Brood X cicadas are beginning to die off, enough is enough.


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Guest jhmom

Hi Phil, I am sorry you are still having a tough time, :( I am too, to a point. ;) I hope we BOTH feel better soon! I do not have a problem with sugar or fruit, but I don't eat a lot of fruit just in case, but I can eat Jello without a problem.

I looked around the web and found this article about IBS and Sugar, I know you don't have IBS but thought I would pass it on anyway:

Open Original Shared Link

I hope this is helpful to you and if not maybe someone else will be along shortly to help you out...... good luck and feel better!!! :D

travelthomas Apprentice

Hi Phil,

I did notice when I first went gluten-free that I was running to the bathroom to urinate all the time. By asking questions on this board I found out it was certain fruits that caused the problem. Processed fruits will exaggerate the problem. Try eliminating all fruit from your diet, and then slowly add it back in one at a time. The culprit will stand out like a sore thumb.

VAGuy Apprentice

Thanks for your replies - one more piece of the puzzle I guess, a little more info to take to the Doc - maybe I can sneak a couple strawberries with dinner rather than on an empty stomach, homegrown taste so good. I have been tryign to avoid corn syrup for a while and it helps, can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

Thanks again

Phil

RojSpencer Newbie
can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

I haven't found a BBQ sauce that doesn't have viniger in it yet? Are you sure it is safe? Only Heinze ketchup also (has distilled viniger), not Hunts.

If you're still gettting a steady stream of gluten, even if in traces, it will prevent your recovery.

tarnalberry Community Regular

Most bbq sauces have cider vinegar, like the only gluten-free one I've found (I haven't looked hard, I'm sure there are plenty of others) - Bone Suckin' Sauce.

But, even if it had grain vinegar, unless something is added after the distillation process (which would make it something other than plain vinegar), there is no gluten in distilled grain vinegar. The molecular weight of gluten is far too heavy to allow it to pass through the process of distillation. There's been a lot of research on this, and the recent stuff has made a nearly completely closed case on ths issue. (Heh... about as much as you can do to prove something is positive. ;-) )

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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