Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Good - Still Having Problems


VAGuy

Recommended Posts

VAGuy Apprentice

Hello everybody, thought I'd run this past you folks.

gluten-free since November

EnteroLab advised me to go gluten-free, and avoid dairy, eggs, and yeast in April

and that I did not have colitis

Had been dairy free for a while before that

Have found that only minimal amounts of corn products can be tolerated

Can tolerate only minimal fiber

Why does sugar trash my digestive system? If between meals I have a little Jello, Tang, 100% fruit juice, etc. I'm running for the bathroom a few hours later. A little Smucker's Blueberry Syrup (corn syrup/sugar) kills me.

I can have 2/3 banana @ dinner with say 3 med. strwberries, and 1/2 tablespoon All Fruit (9g sugar per tablespoon) on a 3g of sugar waffle (waffle is desert) and do OK, and maybe a couple sips of apricot nectar later, but otherwise I've found it best if I just avoid sugar/sweet items.

Any thoughts would be appreciated. I have a appt. 7/7/04 with a GI to finally talk about this and am really trying to get things mapped out/organized before I see him. If I can get a line on sugar woes, the only thing left on my list is to determine whether it is spaghetti sauce that bothers, or the soy flour in the pasta I'm using.

Thanks, Phil

P.S. Depending on where you live you'll understand when I say am I glad the Brood X cicadas are beginning to die off, enough is enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Phil, I am sorry you are still having a tough time, :( I am too, to a point. ;) I hope we BOTH feel better soon! I do not have a problem with sugar or fruit, but I don't eat a lot of fruit just in case, but I can eat Jello without a problem.

I looked around the web and found this article about IBS and Sugar, I know you don't have IBS but thought I would pass it on anyway:

Open Original Shared Link

I hope this is helpful to you and if not maybe someone else will be along shortly to help you out...... good luck and feel better!!! :D

travelthomas Apprentice

Hi Phil,

I did notice when I first went gluten-free that I was running to the bathroom to urinate all the time. By asking questions on this board I found out it was certain fruits that caused the problem. Processed fruits will exaggerate the problem. Try eliminating all fruit from your diet, and then slowly add it back in one at a time. The culprit will stand out like a sore thumb.

VAGuy Apprentice

Thanks for your replies - one more piece of the puzzle I guess, a little more info to take to the Doc - maybe I can sneak a couple strawberries with dinner rather than on an empty stomach, homegrown taste so good. I have been tryign to avoid corn syrup for a while and it helps, can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

Thanks again

Phil

RojSpencer Newbie
can tolerate a little bit of ketchup or BBQ sauce with it but am being real careful.

I haven't found a BBQ sauce that doesn't have viniger in it yet? Are you sure it is safe? Only Heinze ketchup also (has distilled viniger), not Hunts.

If you're still gettting a steady stream of gluten, even if in traces, it will prevent your recovery.

tarnalberry Community Regular

Most bbq sauces have cider vinegar, like the only gluten-free one I've found (I haven't looked hard, I'm sure there are plenty of others) - Bone Suckin' Sauce.

But, even if it had grain vinegar, unless something is added after the distillation process (which would make it something other than plain vinegar), there is no gluten in distilled grain vinegar. The molecular weight of gluten is far too heavy to allow it to pass through the process of distillation. There's been a lot of research on this, and the recent stuff has made a nearly completely closed case on ths issue. (Heh... about as much as you can do to prove something is positive. ;-) )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,463
    • Most Online (within 30 mins)
      7,748

    The Yellow Rose
    Newest Member
    The Yellow Rose
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.