Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing!

Guest NitaB

By Guest NitaB
in Coping with Celiac Disease

Recommended Posts

Guest NitaB
Guest NitaB
Posted

Okay, I shouldn't be so amazed, but I was! I had some baked beans at my granddaughter's school, for barbecue day. I knew I shouldn't trust them, and just have the bunless burger and lettuce with my own dressing. But, no, it didn't seem like enough food, so took a small serving. Dumb me! Anyway, I don't seem to have much for symptoms, but this time had some stomach distress, and was sluggish and tired for a few days. I've been probably mostly gluten-free for 4+ months, and had felt better for the most part, while I made some mistakes. But, now that I've gotten the hang of this diet, I made that mistake, and learned something from it. I'd been wondering how I would feel if I had gluten food. Now I know! I am so sorry it wasn't over a chocolate cupcake, real pizza, a whole hamburger, or one of my other favorite foods, rather than baked beans! :lol:

Anyone else with a similar stupid story???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BamBam Community Regular
BamBam
Posted

Oh, I think we have all made a stupid mistake at some point, especially in the beginning. My stupid thing was with oats. I didn't understand the cross-contamination" issue and I ate a huge bowl of Chocolate Oaties cereal. The box said wheat free so I just figured they are all right. The products I eat should say "wheat free/gluten free." Anyway the cereal tasted delicious but the four days of burning stomach/abdominal pain just wasn't worth it. So now I bought Chocolate Krispies (made out of rice that are wheat free/gluten free) and they taste even better and I feel great when I eat them.

Bernadette

BRCoats Enthusiast
BRCoats
Posted

Here's a stupid one for you.....

My son drinks rice milk (Rice Dream - yes, I know it's not gluten-free....neither is he). I drink soy milk. Since I am the only one who drinks the soy milk, I just drink it right out of the jug. Well, Rice Dream and my soy milk look quite a bit a like, and I went to take a swig of soy, and got the wrong jug!! I don't really taste it until I've already swallowed it, so it was too late. Felt yuck for two days over one little swig. And the "funny" thing is.....I've done it twice since going gluten-free!!! What a nerd I am!!! :unsure:

LOL...see....we're all dingy sometimes. :blink:

Brenda

jmklingler Newbie
jmklingler
Posted

this might sound kind of dumb but it is easy to do and I didn't think so little would hurt me...

I am Gluten free since Feb-04...I can't handle many of the breads but I have always liked corn pancakes so the gluten-free pancakes are a staple in my house. My wife and son have no problems with gluten and I don't punish them and make them go gluten-free with me although they actually do like the pancakes. Well, while buttering my cakes one day, I must have taken some toast crumbs on the end of the stick with my pancakes...big mistake! I was running every 30 min. for a day and a half and felt sicker than dog!

Lesson learned...have 2 sticks of butter (peanut butter and jelly too)...a gluten-free stick for myself and let the rest of the family have their own.

Take care.

Guest NitaB
Guest NitaB
Posted

Thanks for your replies! I was sure everyone has done some dumb things, too!

My problem is I may be asympomatic, or very nearly! I would not notice cross-contamination, or crumbs! Or maybe I'm so used to a bit of rumbly tummy, that I don't think anything of it??? It makes it so hard to know if I'm getting cross-contamination!

I'm going on my first cruise in 3 1/2 weeks, since going gluten-free. I hope I do okay! Princess line has said they can help me. I'll have to be careful, on my own, as wouldn't want to get sick on vacation! I'm hoping their ham is gluten-free, as then I can have a fresh made omelet for breakfast, which are always good. Those bunless burgers are becoming my usual, or a salad with my own dressing packets, for lunch out. Dinner should be easier.

Anyone else cruised with celiac disease?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy. Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter...
    2. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered...
    4. mamaof7
      - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful...
    5. Dizzyma
      - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me. My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free i...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748
    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Help understand results

      By trents · Posted

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      Help understand results

      By mamaof7 · Posted

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.