Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing!

Guest NitaB

By Guest NitaB
in Coping with Celiac Disease

Recommended Posts

Guest NitaB
Guest NitaB
Posted

Okay, I shouldn't be so amazed, but I was! I had some baked beans at my granddaughter's school, for barbecue day. I knew I shouldn't trust them, and just have the bunless burger and lettuce with my own dressing. But, no, it didn't seem like enough food, so took a small serving. Dumb me! Anyway, I don't seem to have much for symptoms, but this time had some stomach distress, and was sluggish and tired for a few days. I've been probably mostly gluten-free for 4+ months, and had felt better for the most part, while I made some mistakes. But, now that I've gotten the hang of this diet, I made that mistake, and learned something from it. I'd been wondering how I would feel if I had gluten food. Now I know! I am so sorry it wasn't over a chocolate cupcake, real pizza, a whole hamburger, or one of my other favorite foods, rather than baked beans! :lol:

Anyone else with a similar stupid story???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BamBam Community Regular
BamBam
Posted

Oh, I think we have all made a stupid mistake at some point, especially in the beginning. My stupid thing was with oats. I didn't understand the cross-contamination" issue and I ate a huge bowl of Chocolate Oaties cereal. The box said wheat free so I just figured they are all right. The products I eat should say "wheat free/gluten free." Anyway the cereal tasted delicious but the four days of burning stomach/abdominal pain just wasn't worth it. So now I bought Chocolate Krispies (made out of rice that are wheat free/gluten free) and they taste even better and I feel great when I eat them.

Bernadette

BRCoats Enthusiast
BRCoats
Posted

Here's a stupid one for you.....

My son drinks rice milk (Rice Dream - yes, I know it's not gluten-free....neither is he). I drink soy milk. Since I am the only one who drinks the soy milk, I just drink it right out of the jug. Well, Rice Dream and my soy milk look quite a bit a like, and I went to take a swig of soy, and got the wrong jug!! I don't really taste it until I've already swallowed it, so it was too late. Felt yuck for two days over one little swig. And the "funny" thing is.....I've done it twice since going gluten-free!!! What a nerd I am!!! :unsure:

LOL...see....we're all dingy sometimes. :blink:

Brenda

jmklingler Newbie
jmklingler
Posted

this might sound kind of dumb but it is easy to do and I didn't think so little would hurt me...

I am Gluten free since Feb-04...I can't handle many of the breads but I have always liked corn pancakes so the gluten-free pancakes are a staple in my house. My wife and son have no problems with gluten and I don't punish them and make them go gluten-free with me although they actually do like the pancakes. Well, while buttering my cakes one day, I must have taken some toast crumbs on the end of the stick with my pancakes...big mistake! I was running every 30 min. for a day and a half and felt sicker than dog!

Lesson learned...have 2 sticks of butter (peanut butter and jelly too)...a gluten-free stick for myself and let the rest of the family have their own.

Take care.

Guest NitaB
Guest NitaB
Posted

Thanks for your replies! I was sure everyone has done some dumb things, too!

My problem is I may be asympomatic, or very nearly! I would not notice cross-contamination, or crumbs! Or maybe I'm so used to a bit of rumbly tummy, that I don't think anything of it??? It makes it so hard to know if I'm getting cross-contamination!

I'm going on my first cruise in 3 1/2 weeks, since going gluten-free. I hope I do okay! Princess line has said they can help me. I'll have to be careful, on my own, as wouldn't want to get sick on vacation! I'm hoping their ham is gluten-free, as then I can have a fresh made omelet for breakfast, which are always good. Those bunless burgers are becoming my usual, or a salad with my own dressing packets, for lunch out. Dinner should be easier.

Anyone else cruised with celiac disease?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    4. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    5. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748
    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.