• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Going To Start A Low/no Fodmap Diet

4 posts in this topic

Hi all. I'm about to start a low/no FODMAP diet tomorrow. (I wanted to eat up the Brussels sprouts and zucchini I had just bought first.) I am thinking of doing ZERO high fodmaps for a couple weeks, then adding each family in one at a time. Is that reasonable? I don't have the books and my library does not have them either, but I do have a list of foods that should be limited and those that are allowed.

I already don't do gluten (obviously), soy, sugar, garlic (bloats me), dried fruit (stinks me right up), dairy...and I eat very little grains. Rice makes my teeth hurt (demineralization?). Corn actually works okay for me as a grain, so I might go with that if potatoes start to make me crazy.

Symptoms are not severe, just bloating and gas. Those were always my main problems, along with C, and the bloat has only ever gone away on the body ecology diet (which is very hard to maintain) ... so I think the low sugars might be key.

Anyway, any advice would be welcomed.


Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

I started FODMAP 2 months ago and love it. I was tested to be lactose intolerant and fructose intolerant. I was having a severe onion reaction when I saw the Dr so fructans was also dxed. I know I react to sorbitols.

Please check Sue's info re to dairy. Lactose free is re to FODMAP and this means that you can eat hard cheese, butter and cream and also may be able to tolerate small amounts of milk. A lot of people get this wrong and being able to eat cheese etc is an important thing. Dairy free may not be necessary unless you have a casein intolerance ( which is not FODMAP)

And take note of how small amounts of the intolerance may be suitable. Sue actually advises NOT to totally eliminate all intolerances but to simply learn better ways to manage them. Fructose for eg ( an apple) may be OK if combined with glucose as then the glucose molecule helps break down the fructose molecule in the gut. So apple pie may be OK ( with cream ! ) but an apple on its own may not be.

Everyone has different mileage. And in time there is some healing so the goal posts may move.

This is Sue Shepherd's page. http://shepherdworks.com.au/disease-information/low-fodmap-diet


Share this post

Link to post
Share on other sites

Thanks so much. I don't do dairy now as even the smallest bit of it makes me have constipation for days. Also, I'm mostly vegan so it fits well with my other dietary philosophy. And lastly, I don't even miss cheese that much. Thanks for letting me know that though - I know lots of folks struggle with the dairy thing and wish like crazy they could eat it. Once I stabilize, I'll take note of which dairy I can eat on low FODMAP and try it out if the situation seems right.

I'll check out that website. Thanks.



Share this post

Link to post
Share on other sites

Well, started out nicely. Quit all the high fodmap foods and the bloating and passing of gas did diminish greatly. Then one day I decided that salsa didn't have anything I couldn't eat (I'm having a bad case of anemia right now and its affecting my brain capacity) so I ate some. About 20 chips into it I'm like, "wait, that's onion". Next day, bloat city. Anyway, I'm still going to try to add back onion separately in a couple weeks.

On the anemia note, ate some steak today - first time in two years. At first it felt like a rock in my stomach, but I feel okay now. I need to find my digestive enzymes ... they're around here somewhere.


I'll post if anything interesting happens.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now


  • Topics

  • Posts

    • What would be helpful, Victoria, is to have a full thyroid panel done because you cannot diagnose anyone with Hashi's without a full panel.  It is more important to see what the actual hormone levels are than the TSH. Those would be Free T3 and T4.  You can have low hormone levels and normal TSH.  Your TSH is not too bad but if it starts to climb any higher, that would be cause for concern for Hashi's.  At least your lab seems to use the newer ranges for testing.  Many labs use outdated ranges that go to 5.00 for a cutoff. When my TSH was a 7, I could barely drag myself out of bed in the morning. I have Hashi's and your symptoms are a laundry list for it and Hashi's is very common with Celiac Disease.  You can start having Hashi's symptoms long before the blood work goes off.......like Celiac.
    • With the 3 positives that you have, Jenna, you have Celiac Disease. Positive tTg and EMA is a slam dunk. At this point, if you do the biopsy, you don't need it for diagnosis.  It will be to check for extent of damage.  Considering your health issues, it's pretty apparent you have a gluten problem anyway. Congratulations on figuring out your problem.  Now you can sit back and watch how amazing it will be when many of your problems resolve or improve dramatically. I had the same positives you did and declined the biopsy. 3 years after I was diagnosed, all my symptoms were gone but I do have other AI issues which are not, but they are much, much better just from going gluten free.  Be optimistic this will happen for you also!
    • I'm not sure what you mean by score, but her testing at the Mayo Clinic looks like what they describe in the Mayo Clinic link I included.  The posted results are in reverse order of the actual testing. Testing started with total IgA (for some strange reason labeled "Celiac disease, cascade" and does not include units).  It was within the normal range listed in the Mayo link under "Reference Testing" so testing continued with TTG IgA.  Jenna3, the total IgA is to ensure that the results of the rest of the IgA  tests are valid.  It is looking at total IgA antibody, not celiac antibodies. TTG IgA was a weak positive so testing continued with EMA IgA and Gliadin IgA which per the Mayo website is the deamidated gliadin peptides.  It looks like there should be an EMA titer reported. Hope this helps.
    • I second the request for a falafel recipe!
    • So I was googling my symptoms I still have after being gluten-free for 9 years and came up with Hashi's.   symptoms chronic c, even with extra magnesium citrate feeling tired all the time, despite using cpap for sleep apnea very succesfully  muscle weakness and joint stiffness, my lower back hurts so bad every day Hair loss memory lapses (getting worse) Dry skin im freaking cold all the time. Ac is killing me this summer.  High cholesterol, the bad one (been bad my whole life) Depression and low motivation to do lots of simple life tasks tendency towards anemia (my annual physical didn't check so I don't know current value) my TSH is 2.590 uIU/mL    0.600-3.300 uIU/mL   Is there anything I can do at home to help these things? Should I share this with my doctor? I have a new one who doesn't know me well at all. What do I say? thanks for any advice and feel free to ask questions!        
  • Upcoming Events