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I'm Miserable. :-(


nikelodeon79

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jerseyangel Proficient

Thanks for checking in! I was induced on 11-26. Sarah Grace is healthy, and I'm MUCH better!

Such great news!!! Congratulations and welcome, Sarah Grace :D


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sweetpea Rookie

I got my Zofran directly from Glaxo-smith Kline, and it wasn't gluten free - at least not when I got it in late 2008 and early 2009. I've heard that it depends on where it was manufactured. Too risky for me b/c I was reacting to it.

This time I took the liquid orally, or I took it through my PICC line.

Laennie Rookie

Yay! Congrats Sweetpea!

GFinDC Veteran

Congrats indeed! A happy Thanksgiving baby for 2010 is born. :)

  • 2 weeks later...
gflooser Contributor

congrasts on a healthy baby AND feeling better!!!!!!!!!!!

sweetpea Rookie

Thank you!

  • 10 months later...
SniggitSnob Newbie

I know how you felt with the loyalty thing with work. I am stressed about the same thing, but SOOOO sick all day every day. Today i finally called out...and the guilt is eating me up on top of throwing up everything i've tried to put down today. Stupid ethical conscience.

While perusing the site, I saw the "I'm Miserable" post under pregnancy and I had a feeling it was regarding morning sickness. I have one child, and she's 7, but I still remember the awful pregnancy I had. I now realize that it's very common for undiagnosed celiac's to be very ill throughout the pregnancy. I was hoping for the other women on this board that following a gluten free diet would ease up the symptoms. I pray that you are like most women and in a couple of weeks the symptoms will go away.

The hardest thing for me about my pregnancy is that I was hanging on the promise of feeling better by the second trimester. Truth is I was nauseated the entire time. It took me awhile but I learned to manage it. I ate CONSTANTLY. I started out underweight so the doctor wasn't concerned with my weight gain, until the end. I think I was still underweight at 20 weeks, and then I went on to gain 40 pounds in the last 20 weeks. But eating eased my symptoms. There was a Thai restaurant by my work that made a great ginger soup. I went there every day for lunch. Finally when my belly started popping out that realized why I was eating the soup every day. They didn't even take my order...just brought me my soup.

I don't know if this is still recommended but I took Unisom and B6 in combination and it really helped with the nausea and helped me sleep. (This was okayed by my gyno). Also for the very worst months when I couldn't keep anything down I took Zofran.

Toward the end of the pregnancy I let myself drink a tea every day (with caffeine) For some reason that always settled my symptoms.

I don't know if you're working or if you have other kids, but my plan was to stay home after we had a baby. I don't know why I continued to work so hard fighting the nausea every day, when I wasn't even going back. I just felt too loyal I guess. Anyhow, finally about 2 months before my daughter was born I quit working and I just felt so much better. I think the stress was really adding to the nausea. If you can at all set up a world where all you have to do is grow that little baby, which is a HUGE job, then do it. Don't feel guilty.

If you need to send my a private message you are welcome. I will try and encourage you in any way I can. My best friend had a baby 9 months before I got pregnant and she was sick the whole time too. I called her every day (didn't even think that she must be exhausted with a new baby) but she talked me through so much. Sometimes just having someone say, "I understand...you can do this" makes a huge difference.

Hang in there. IF you already have kids you know it's so worth it. YOU CAN DO IT! Rest, eat, ask for help, give yourself a break!

Good luck!!!


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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