Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Please Cancel My Optimism


heathenly

Recommended Posts

heathenly Apprentice

I started out optimistic and positive about eating gluten-free, based on the immediate and significant benefits I received once I stopped eating it. Even though I didn't test positive for Celiac (which made all of my gluten-eating friends happy, because they thought I could cheat once in a while with no long-term repercussion), I have never caved to temptation to eat even a little gluten. I thought being so conscientious and well-behaved would translate into feeling better. That hasn't happened like I thought it would. Now, I just feel hopeless and frustrated.

Whole foods: Kinda expensive, huh? I'm doing my best, but the cost of food is killing me and I'm running out of both food and food money before payday.

Accidental glutening: no good dietary deed goes unpunished, it seems. No matter how conscious I am with food choices, I seem to have a small but miserable reaction almost on a weekly basis, and I can't pinpoint what I ate that secretly contained gluten (or something else I'm sensitive to?). Frustrating.

More food sensitivities: I can't help but notice that dairy and possibly corn seems to be a problem. I want to stay in denial so that I have more foods to choose from, but... yeah. The thought of having to limit my diet further makes me want to go lie down in a busy street.

Food paranoia: it's exhausting. I don't feel I can trust anything I eat anymore. Even/especially items labeled "gluten-free."

Sigh. What I would give for those carefree days when I could eat anything prepared anywhere...

/whining

One cute thing: When I prepare a sandwich for my eight year old, she reminds me to wash the gluten off my hands.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Whole foods are cheaper than processed most of the time. Buy in season, go for sales, etc. For example i'll take a lrge roaust for about $10 and cut it in thirds. I can get two to threemeals out of oeach portion. Then i'll take a head of cabbage and again take a third of it for a meal. I'll add carrots and some onions or whatever else i have in the frig. Then i make this into a soup and serve rice on the side.

A good idea would be to get yourself a crock pot to make your own meals out of if cc is an issue.

I spend about $30 or so dollars per week on food for myself, that is with my chex and cleaning supplies. You can do it it just takes timme to learn

Trudyjerry Rookie

Honestly, food is expensive these days no matter what you eat. That being said, try to buy in season, look for sales, and use coupons. We spend roughly $40 a person a week at our house. We all eat gluten and dairy free at home.

When I first started out we did spend a lot more, only because we were cooking two meals for dinner. One for me and one for everybody else. It's easier and cheaper for all of us to eat gluten and dairy free. Another thing that I've learned is what you can make yourself, you should make yourself. I used to spend money on gluten free cookies. Now I just make them myself. I want muffins, I bake muffins. We also make our own almond milk and soy milk. We don't save much on the almond milk but we can make a half gallon of soy milk for a fraction of the cost of the store bought stuff and we know exactly what goes into it. I don't care for the store bought gluten free bread but when I bake a loaf at home, it all gets eaten the same day. The first time I made gluten free pumpernickel bread, we ate two loaves of it. So much for saving one for another day.

I'm sorry that you are having a hard time right now but trust me, it does get easier. I'm sure most, if not all, of us were feeling those things at one point or another. I know I have been there. For me, it really hit on my birthday. No birthday cake or ice cream? I was ready to scream. That's when I started making everything myself. I do still have the occasional melt down in stores. I was highly upset loosing things like twizzlers. I love those but I can't have them anymore. I have burst into tears on more than one occasion in the candy aisle. My husband can attest to the fits I've thrown in the dairy section because I wanted yogurt or some new coffee creamer that just came out.

Six months in I figured out that I was reacting to peas. That set off another downward spiral for me. I realized that it wasn't just peas. I was also reacting to corn, soy, radishes, on top of my other food allergies being magnified. I was starting to feel like there was nothing left that I could eat. I came on here to vent and eventually incorporated it into my diet. Luckily, I can now handle soy and corn based things that are made at home. I still can't handle soy based store bought items. Maybe the problem wasn't the soy but rather something else that was put into the product or the way the soy was handled.

Just try to remember that it does get easier and you can always come here to vent because we do understand. Sending you great big HUGS.

joolsjewels Newbie

What kinda of reaction did you have to peas? Bloating, extreme gas? I had those problems a few summers ago with peas, but also with carrots and tomatoes. It turned out to be sugar and more specifically yeast overgrowth. The sugars, even natural sugars in fruit and veg, caused a painful explosion in my digestive tract. Even soy milk and rice milk have sugar. I had to take a digestive supplement and go on a sugar free diet for 2 months. That meant small bland meals and often so my blood sugar would not drop too low.

Trudyjerry Rookie

What kinda of reaction did you have to peas? Bloating, extreme gas? I had those problems a few summers ago with peas, but also with carrots and tomatoes. It turned out to be sugar and more specifically yeast overgrowth. The sugars, even natural sugars in fruit and veg, caused a painful explosion in my digestive tract. Even soy milk and rice milk have sugar. I had to take a digestive supplement and go on a sugar free diet for 2 months. That meant small bland meals and often so my blood sugar would not drop too low.

I definately had the extreme bloating but instead of gas, I ended up with the dread "D". I was actually tested for Yeast overgrowth a few months back and I came back negative. I know that's not it, aside from me not having problems with anything else that's high in sugars. I do take probiotics on a daily basis but I haven't really noticed a difference.

Honestly the first time it happened, I thought that I had accidentally contaminated my slip pea soup with something else but then it happened again with just canned peas. So we just make lentil soup instead.

I do however have gastritis and I don't know if that can play a role in reacting with certain foods.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to cristiana's topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    2. - Aretaeus Cappadocia replied to cristiana's topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    3. - cristiana posted a topic in Related Issues & Disorders
      2

      Low iron/high normal haemoglobin

    4. - Scott Adams replied to JForman's topic in Coping with Celiac Disease
      11

      7yo struggling!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,170
    • Most Online (within 30 mins)
      10,442

    yvonne jacobs
    Newest Member
    yvonne jacobs
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • RMJ
      Yes it matters.  Hemoglobin isn’t the only molecule in your body that needs iron.  Here are several articles on non-anemic iron deficiency: Non-anaemic iron deficiency https://www.thebloodproject.com/non-anemic-iron-deficiency-naid/ Can you be iron deficient without anemia
    • Aretaeus Cappadocia
      Not sure what you mean by "poor iron levels" if 30 is normal (upper end of normal range) and you are 29. (at least, that's how I read your post. Seems to me that your iron (ferritin) is normal, whereas before it was too high (40). At any rate, your post made me curious, so I copy pasted "Does it actually matters if my iron levels are poor, if my hemoglobin is normal" into the google search bar. According to Dr google, it does matter and they had a lot to say about it.
    • cristiana
      Hello All I think I started a thread on this subject some time ago, but now can't find it.  Or possibly it was someone else's thread that I hijacked - and that's why I can't find it! Anyway, I have a rather complicated issue with iron and I'm wondering what to do about it.  Or even if it matters. Pre-menopause, when I was first diagnosed with coeliac,  my ferritin levels were dreadful and I had to supplement.  It soon became apparent that I had to stop, as once my iron anemia cleared up, my hemoglobin levels reached high normal, verging on a condition known as polycythemia.   High normal in my lab is 15.5 for women, and my level has hovered between 15 and 15.5 The highest my ferritin levels have ever been is 40 (30 being normal) since I started my gluten-free journey - I reached that level about three years ago., about a year post menopause.  18 months later my ferritin had gone down to 29, which I think I can explain because I've been avoiding red meat.  This was a conscious decision as I have  discovered that I can keep my hemoglobin levels at safe levels so long as I don't consume too much iron.  My gastroenterologist also told me not to supplement it.     I have recently had a colonoscopy and have done a FIT test to detect bleeding, both came back normal.  So I feel that the reduced iron consumption is probably the reason for this new deficiency.  But I have two questions: A. Does it actually matters if my iron levels are poor, if my hemoglobin is normal?  (I do feel a bit tired, but surely if my hemoglobin levels are normal I shouldn't?) B. Would my last TTG blood result of 10 (cut off point for normal levels at my lab)  be affecting my absorption of iron? Thanks! Cristinaa  
    • Scott Adams
      This would definitely be an interesting study. We did an article on this a while back:  
    • Scott Adams
×
×
  • Create New...