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Going Into My First Gi Doctor. What Should I Know Before Seeing Him?


KnightRobby

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KnightRobby Enthusiast

Hello again everyone.

I am going into my first GI Doctor. I was diagnosed with Celiac by my Allergist. Well, I am wanting to go in prepared and to really make sure all tests are done quickly - the reason being I am seeing a Pain Management Doctor, a Cardivascular Doctor, a Neuromuscular Dentist, and of course the GI Doctor. These appointments eat up a lot of time. I know there is no way to rush doctors (wish there was - haha) into running tests, but I'd like to make sure he doesn't accidentally skip a test (it's happened to me before). These doctors are very busy, of course.

Does anyone know all of the tests I should have taken for Celiac? I've heard about bone tests (density I believe?) but I've heard about many other possible tests. I did find out I am low on my Vitamin D.

If someone could list out the tests I need to get proper treatment, I'd greatly appreciate it. :)

Thanks again,

Robby


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gatita Enthusiast

Sorry I don't have an answer but I am hoping to see a GI doc soon too... so I'm looking forward to seeing the answers here.

nvsmom Community Regular

I'm not great with remembering all the tests but I do remember these:

  • calcium
  • B12 (many B's can be affected)
  • K
  • ferritin (iron)
  • D (you did this one right?)
  • Thyroid testing - Most doctors just run a TSH but with Hashimoto's the TSH can be in the normal range (mine was and they missed it for about 15years). Request a TPO Ab, Free T4, and Free T3, along with the TSH.

I don't know how the bone testing is done. I'm sure others will chime in here and add better advice. :)

Good luck.

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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