Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

S.a.d Lights And Vitamin D


Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular

Hi

I have thought for years that I probably have seasonal affective disorder during the winter, as my moods tend to drop badly from about January to March.

When I had my blood testing done in May my vitamin D was a little low, in the range that my doctor should have told me and given me advice on sunlight etc.

I spend a minimum of 2 hours outside walking most days, and often several hour more, especially after the winter so was surprised to find it under.

My doctor and GI are totally unconcerned. My current official diagnosis is non celiac gluten intolerance cannot rule out celiac, as I could not do a gluten challenge.

So some questions.

Are SAD lights any good? How long do you need to use them for? What features are worth having? Are more expensive ones better?

Do they help with the vitamin D thing? Are SAD and vitamin D related?

Any other thoughts or advice appreciated

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HauntedEyes Rookie

SAD lights won't affect your vitamin D levels ... they emit the wrong type of the UV light spectrum to generate vitamin D. However, I have tried both. Vitamin D3 supplements definitely helps me reduce inflammation. And the SAD lights do perk me up. I don't get depression related to SAD. But I do suffer from fatigue and idiopathic hypersomnia, which the SAD lights do help. The lights perk me up and I don't get tired until much later in the day.

Jestgar Rising Star

I'm way too cheap to spring for a SAD light, but I have a small halogen light from IKEA over my bed. I turn it on when I wake up and hang out in bed for a couple hours having coffee and listening to the radio. It makes a difference. I also try to keep more lights on in whatever room I'm hanging out in.

ETA - my bro lives in Norway and he and his wife sit in front of their light while having coffee every morning. Said they can't function without it.

Celiac Mindwarp Community Regular

Thanks!

I always have loads of lights on, maybe that is why :)

Maybe Santa might consider one for me...

Is best to have it on in the morning? I get dreadful fatigueabout 2 in the afternoon, and then have insomnia at night.

I'll look into the D3, been thinking about that one.

I'd be useless in Norway. I went to Finland at midsummer when the sun doesn't set. It was amazing, up half the night but full of energy :)

Jestgar Rising Star

I think morning is usually the best time. Start while it's still dark out so you're extending your day. I forget where you are, but a walk about 2 in the afternoon, if it's sunny, is probably a good idea. Even cloudy will give you a dose of light. On miserable dark days use extra light for as many hours as you can. Light boxes provide a ton more light, but longer periods of lower light still help.

burdee Enthusiast

I was dx'd w/ SAD 12 years ago. We got full spectrum lights in our house and 2 'sun-ray' full spectrum lamps. I stood in front of the larger one soon after I got up for 15-20 minutes. Later I sat beside the smaller 'sun-ray junior' while I ate breakfast (and lunch on really dark days). Since we live in Seattle, where dark, dreary days are the norm from late fall to late spring, I really felt more awake and energetic after sitting in front of 'sun ray' full spectrum lights. Ten years later I was diagnosed with Hashimoto's hypothyroidism. Although I spent 2 years working up to an effective dose, thyroid supplements made me more energetic (no matter the weather or sunlight) than full spectrum lights.

Because I had hypothyroid symptoms most of my life, I suspect my SAD was really hypothyroid. Hashimoto's is highly correlated with gluten intolerance. So if you feel tired all the time, feel colder than most people even in warm weather, have low blood pressure, low pulse, constipation, dry skin or any other unexplainable symptoms, consider getting a panel of thyroid hormone tests, including TSH, free T3, free T4 and TPOab (thyroid peroxidase antibodies).

tarnalberry Community Regular

FYI, if you're far enough north (above california, I think, but I forget exactly where), there is not enough UV light getting through the atmosphere (due to how low in the sky the sun is) to generate vit D in your skin regardless of how long you are outside.

I made my own SAD light in a spare room we used to have. That, full spectrum bulbs, and being outside as much as I can even in the darker/drearier weather has all been important. And getting exercise every day! (Here's a set of pictures about creating my own light: Open Original Shared Link. One of the interesting things I learned is that the amount of light required to actually affect SAD is quite large. Our eyes adjust to lower levels of light easily, so it's very hard to measure by eye - if not impossible - but you can use other things, like camera meters and calculations. It's not the sort of thing you're going to get out of commercially available light bulbs in the numbers normally present in a single room. My setup here required 16 40w bulbs, with me sitting withing three feet of the lights, in order to approximate mid-day diffuse light (shade of a tree) in August.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

Wow thanks everyone.

I have wondering about Hashimotos. I think once I get my genetic testing results I will have a chat with my doctor. How exciting, another condition to research.

Tarnalberry that is really useful info. I am in the UK, towards the bottom so I will check it out. I think Santa will have his work cut out sourcing something for me :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.