Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

S.a.d Lights And Vitamin D


Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular

Hi

I have thought for years that I probably have seasonal affective disorder during the winter, as my moods tend to drop badly from about January to March.

When I had my blood testing done in May my vitamin D was a little low, in the range that my doctor should have told me and given me advice on sunlight etc.

I spend a minimum of 2 hours outside walking most days, and often several hour more, especially after the winter so was surprised to find it under.

My doctor and GI are totally unconcerned. My current official diagnosis is non celiac gluten intolerance cannot rule out celiac, as I could not do a gluten challenge.

So some questions.

Are SAD lights any good? How long do you need to use them for? What features are worth having? Are more expensive ones better?

Do they help with the vitamin D thing? Are SAD and vitamin D related?

Any other thoughts or advice appreciated

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HauntedEyes Rookie

SAD lights won't affect your vitamin D levels ... they emit the wrong type of the UV light spectrum to generate vitamin D. However, I have tried both. Vitamin D3 supplements definitely helps me reduce inflammation. And the SAD lights do perk me up. I don't get depression related to SAD. But I do suffer from fatigue and idiopathic hypersomnia, which the SAD lights do help. The lights perk me up and I don't get tired until much later in the day.

Jestgar Rising Star

I'm way too cheap to spring for a SAD light, but I have a small halogen light from IKEA over my bed. I turn it on when I wake up and hang out in bed for a couple hours having coffee and listening to the radio. It makes a difference. I also try to keep more lights on in whatever room I'm hanging out in.

ETA - my bro lives in Norway and he and his wife sit in front of their light while having coffee every morning. Said they can't function without it.

Celiac Mindwarp Community Regular

Thanks!

I always have loads of lights on, maybe that is why :)

Maybe Santa might consider one for me...

Is best to have it on in the morning? I get dreadful fatigueabout 2 in the afternoon, and then have insomnia at night.

I'll look into the D3, been thinking about that one.

I'd be useless in Norway. I went to Finland at midsummer when the sun doesn't set. It was amazing, up half the night but full of energy :)

Jestgar Rising Star

I think morning is usually the best time. Start while it's still dark out so you're extending your day. I forget where you are, but a walk about 2 in the afternoon, if it's sunny, is probably a good idea. Even cloudy will give you a dose of light. On miserable dark days use extra light for as many hours as you can. Light boxes provide a ton more light, but longer periods of lower light still help.

burdee Enthusiast

I was dx'd w/ SAD 12 years ago. We got full spectrum lights in our house and 2 'sun-ray' full spectrum lamps. I stood in front of the larger one soon after I got up for 15-20 minutes. Later I sat beside the smaller 'sun-ray junior' while I ate breakfast (and lunch on really dark days). Since we live in Seattle, where dark, dreary days are the norm from late fall to late spring, I really felt more awake and energetic after sitting in front of 'sun ray' full spectrum lights. Ten years later I was diagnosed with Hashimoto's hypothyroidism. Although I spent 2 years working up to an effective dose, thyroid supplements made me more energetic (no matter the weather or sunlight) than full spectrum lights.

Because I had hypothyroid symptoms most of my life, I suspect my SAD was really hypothyroid. Hashimoto's is highly correlated with gluten intolerance. So if you feel tired all the time, feel colder than most people even in warm weather, have low blood pressure, low pulse, constipation, dry skin or any other unexplainable symptoms, consider getting a panel of thyroid hormone tests, including TSH, free T3, free T4 and TPOab (thyroid peroxidase antibodies).

tarnalberry Community Regular

FYI, if you're far enough north (above california, I think, but I forget exactly where), there is not enough UV light getting through the atmosphere (due to how low in the sky the sun is) to generate vit D in your skin regardless of how long you are outside.

I made my own SAD light in a spare room we used to have. That, full spectrum bulbs, and being outside as much as I can even in the darker/drearier weather has all been important. And getting exercise every day! (Here's a set of pictures about creating my own light: Open Original Shared Link. One of the interesting things I learned is that the amount of light required to actually affect SAD is quite large. Our eyes adjust to lower levels of light easily, so it's very hard to measure by eye - if not impossible - but you can use other things, like camera meters and calculations. It's not the sort of thing you're going to get out of commercially available light bulbs in the numbers normally present in a single room. My setup here required 16 40w bulbs, with me sitting withing three feet of the lights, in order to approximate mid-day diffuse light (shade of a tree) in August.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

Wow thanks everyone.

I have wondering about Hashimotos. I think once I get my genetic testing results I will have a chat with my doctor. How exciting, another condition to research.

Tarnalberry that is really useful info. I am in the UK, towards the bottom so I will check it out. I think Santa will have his work cut out sourcing something for me :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.