Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

S.a.d Lights And Vitamin D


Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular

Hi

I have thought for years that I probably have seasonal affective disorder during the winter, as my moods tend to drop badly from about January to March.

When I had my blood testing done in May my vitamin D was a little low, in the range that my doctor should have told me and given me advice on sunlight etc.

I spend a minimum of 2 hours outside walking most days, and often several hour more, especially after the winter so was surprised to find it under.

My doctor and GI are totally unconcerned. My current official diagnosis is non celiac gluten intolerance cannot rule out celiac, as I could not do a gluten challenge.

So some questions.

Are SAD lights any good? How long do you need to use them for? What features are worth having? Are more expensive ones better?

Do they help with the vitamin D thing? Are SAD and vitamin D related?

Any other thoughts or advice appreciated

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HauntedEyes Rookie

SAD lights won't affect your vitamin D levels ... they emit the wrong type of the UV light spectrum to generate vitamin D. However, I have tried both. Vitamin D3 supplements definitely helps me reduce inflammation. And the SAD lights do perk me up. I don't get depression related to SAD. But I do suffer from fatigue and idiopathic hypersomnia, which the SAD lights do help. The lights perk me up and I don't get tired until much later in the day.

Jestgar Rising Star

I'm way too cheap to spring for a SAD light, but I have a small halogen light from IKEA over my bed. I turn it on when I wake up and hang out in bed for a couple hours having coffee and listening to the radio. It makes a difference. I also try to keep more lights on in whatever room I'm hanging out in.

ETA - my bro lives in Norway and he and his wife sit in front of their light while having coffee every morning. Said they can't function without it.

Celiac Mindwarp Community Regular

Thanks!

I always have loads of lights on, maybe that is why :)

Maybe Santa might consider one for me...

Is best to have it on in the morning? I get dreadful fatigueabout 2 in the afternoon, and then have insomnia at night.

I'll look into the D3, been thinking about that one.

I'd be useless in Norway. I went to Finland at midsummer when the sun doesn't set. It was amazing, up half the night but full of energy :)

Jestgar Rising Star

I think morning is usually the best time. Start while it's still dark out so you're extending your day. I forget where you are, but a walk about 2 in the afternoon, if it's sunny, is probably a good idea. Even cloudy will give you a dose of light. On miserable dark days use extra light for as many hours as you can. Light boxes provide a ton more light, but longer periods of lower light still help.

burdee Enthusiast

I was dx'd w/ SAD 12 years ago. We got full spectrum lights in our house and 2 'sun-ray' full spectrum lamps. I stood in front of the larger one soon after I got up for 15-20 minutes. Later I sat beside the smaller 'sun-ray junior' while I ate breakfast (and lunch on really dark days). Since we live in Seattle, where dark, dreary days are the norm from late fall to late spring, I really felt more awake and energetic after sitting in front of 'sun ray' full spectrum lights. Ten years later I was diagnosed with Hashimoto's hypothyroidism. Although I spent 2 years working up to an effective dose, thyroid supplements made me more energetic (no matter the weather or sunlight) than full spectrum lights.

Because I had hypothyroid symptoms most of my life, I suspect my SAD was really hypothyroid. Hashimoto's is highly correlated with gluten intolerance. So if you feel tired all the time, feel colder than most people even in warm weather, have low blood pressure, low pulse, constipation, dry skin or any other unexplainable symptoms, consider getting a panel of thyroid hormone tests, including TSH, free T3, free T4 and TPOab (thyroid peroxidase antibodies).

tarnalberry Community Regular

FYI, if you're far enough north (above california, I think, but I forget exactly where), there is not enough UV light getting through the atmosphere (due to how low in the sky the sun is) to generate vit D in your skin regardless of how long you are outside.

I made my own SAD light in a spare room we used to have. That, full spectrum bulbs, and being outside as much as I can even in the darker/drearier weather has all been important. And getting exercise every day! (Here's a set of pictures about creating my own light: Open Original Shared Link. One of the interesting things I learned is that the amount of light required to actually affect SAD is quite large. Our eyes adjust to lower levels of light easily, so it's very hard to measure by eye - if not impossible - but you can use other things, like camera meters and calculations. It's not the sort of thing you're going to get out of commercially available light bulbs in the numbers normally present in a single room. My setup here required 16 40w bulbs, with me sitting withing three feet of the lights, in order to approximate mid-day diffuse light (shade of a tree) in August.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

Wow thanks everyone.

I have wondering about Hashimotos. I think once I get my genetic testing results I will have a chat with my doctor. How exciting, another condition to research.

Tarnalberry that is really useful info. I am in the UK, towards the bottom so I will check it out. I think Santa will have his work cut out sourcing something for me :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,582
    • Most Online (within 30 mins)
      7,748

    Kim RS
    Newest Member
    Kim RS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.