Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre celiac disease Diagnosis Question?


rmmadden

Recommended Posts

rmmadden Contributor

Before I was diagnosed with celiac disease I used to get (this is hard to explain) these little food globs stuck in the back of my throat. It made me feel like I constantly had to clear my throat. They seemed to come-and-go thru the years and didn't bother me other than as a general nuisance. Every once-and-a-while I would even hack one up and they would be light green (sorry for being graphic) in color and smell absolutely terrible.

After a while I noticed that they would be more prevalent when I ate bread, pretzels, etc. and if I stayed away from these items then I'de be fine. The texture of these globs of food would be soft and I could actually see them sometimes in the folds of skin at the back of my throat.

Since going gluten-free I haven't had any problems and have been wondering if anyone else could relate / similar instances?

Thanks,

Cleveland Bob B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

O M G! I had those "globs" too. I had all but forgotten about it, but when you brought it up, it all came back to me. And, like you said, it was not much more than a nusance, and I had lots of other stuff going on that was much worse. I really never connected it to any particular food. On a related note--before I went gluten-free, when I would eat, I would get the feeling that I was constantly going to choke on my food when I was swallowing it. That has not happened since I began feeling better, post gluten-free.

Mango04 Enthusiast

Weird. That used to happen to me too. I definitley stopped having that problem after eliminating gluten. I never made the connection though.

DonnaD Apprentice

It just so happens that I was reading a magazine at the doctors the other day about this, I'v looked it up for you on google :) They sound like Tonsil Stones.

Open Original Shared Link

The tonsils usually appear like small, dimpled golf balls set on either side of the back of the throat. Children with large tonsils and deep crypts often get food particles trapped in there. Because saliva contains digestive enzymes, trapped food begins to break down. Particularly, the starch or carbohydrate part of the food melts away, leaving firmer, harder remains of food in the tonsils. This does not look like the food that went into the mouth.

There is more to these hard lumps than just food. The tonsils also trap other mouth debris such as bacteria and old cells from the surface of the mouth's lining. Some of these cells contain small amounts of keratin, the same substance found in fingernails and rhinoceros horns. Whatever the nature of the debris, it is then attacked by white blood cells. The aftermath of this battle leaves the crevices of the tonsil strewn with hardened remains.

Most people swallow this material without ever noticing it, while it is still tiny. In those whose tonsils are large, however, the particles can lodge in the deep crypts, where they continue to grow. The enlarging lumps are called calculi of the tonsil, or tonsilloliths (tonsil stones). These stones are most common during adolescence.

Microscopic studies of these tonsilloliths have shown them to contain a combination of food particles, bacteria, oral debris, and white blood cells in a concentrically laminated pattern -- rather like a pearl. Usually they are small gritty particles found in the center of soft, cheesy flecks. Sometimes, however, they become quite large, appearing as rough, yellow or gray, round stones. At times they reach an extraordinary size. Affected people usually have a history of repeated attacks of tonsillitis in earlier years.

Alan Greene MD FAAP

Open Original Shared Link

tiredofdoctors Enthusiast

That is fascinating about the tonsoliths. I have neurologic damage from gluten -- I am celiac negative, but have had (in the past) a "highly" elevated anti-gliadin antibody level. I had a barium swallow, followed by a video swallow with a speech-language pathologist which showed marked slowed transit in the upper cervical segments of my esophagus. I have been told now that this is due to the slowly progressive neurological damage that was happening until I became gluten-free.

jerseyangel Proficient

Donna--Thanks for taking the time to post all of that info. It's a little gross to think about all of that happening in my throat. :o I do still have my tonsils, so that could be it. Anyway, it seems to be gone--hasen't happened since I 've been gluten-free. Thanks again!

DonnaD Apprentice
Donna--Thanks for taking the time to post all of that info. It's a little gross to think about all of that happening in my throat. :o I do still have my tonsils, so that could be it. Anyway, it seems to be gone--hasen't happened since I 've been gluten-free. Thanks again!

No problem! I have learnt so much from everyone here that it is good to be able to repay the favour!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmandaD Community Regular

I had this similar feeling, but it felt a bit liky my esophagus was swollen?

Does that make sense?

No problem! I have learnt so much from everyone here that it is good to be able to repay the favour!
debmidge Rising Star

pre diagnosis my hubby had esophogitis and that was cause of his difficulty in swallowing.

Pois Newbie

Hi, Im new *waves*

I had these too, especially after bread or pasta, i used to get them all the time - Originally i thought it was tonsilitis all the time cos i could see little white things on the back of my throat, but since i had no symptoms of that i asked the doctor and he said it was just food getting stuck - however Ive been on the gluten free thing for a month (really new to this hehe) and I havent had a single one with my new pasta. But I didnt even think about it until i saw this thread!

Kind of another thing that makes me think my "food issues" must be gluten... :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,082
    • Most Online (within 30 mins)
      7,748

    Jane5858
    Newest Member
    Jane5858
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      With all the bloodwork, have they checked your vitamin D?  What is it?  Celiac Disease causes malabsorption, so vitamin deficiencies are common.  Doctors rarely mention this. B1 Gastrointestinal beriberi, a severe thiamine deficiency, is characterized by symptoms including anorexia (loss of appetite), abdominal discomfort and pain, nausea, and vomiting. Other potential symptoms like abdominal fullness, indigestion, and constipation can also occur. These gastrointestinal issues may resist standard treatments, signaling a need to consider thiamine deficiency.  It is commonly believed that thiamine deficiency is not an issue in the western cultures, so rarely address by doctors. Doses of thiamine above 100 mg several times a day will quickly show improvement.  Borderline deficiency will come and go depending on what your eat.  Carbs use it up faster, so for example if you eat a lot of carbs today, tomorrow you may have symptoms.  Thiamine (Benfothiamine is a synthetic fat soluable thiamine) is water soluable, we only store maybe a weeks worth, and there is no upper limit on how much you consume.  Excess is stored or peed away.   For them it isn't a oroblem.  LOL.  They just say some people are like that and see the next patient.  
    • sillyac58
      I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them.  I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
    • trents
      Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
    • sillyac58
      I was diagnosed about 10 yrs ago with Celiac by presenting with dermatitis herpetiformis rash. I had no stomach or intestinal discomfort, but of course showed intestinal damage. The dermatitis herpetiformis eventually went away and I've been religiously gluten free ever since. About 3 years ago I was given a topical drug by a dermatologist for pre cancerous spot on my lip. The drug is called Imiquimod/Aldara, and works by stimulating your immune system. ? The package insert and many releable online sources warn to use caution using this drug if one has an auto immune disease, I hace since found out. One of the side effects is flu like symtoms, which I had at the 10 day mark as warned. But these symptoms have been recurring regularly ever since. Low grade nausea (no vomiting), extreme fatique (sleeping in daytime) and often a migraine headache on day one or two. The bouts last around 5 days or more, usually the nausea being the persistent symptom. My dermatologist, and another I went to for second opinion say this isn't a problem. I have been ill about a third of my life ever since. I have had extensive bloodwork, been to numerous specialists, but cannot figure out what is making me sick. I have become neurotic about gluten at home, using separate cutting boards, pans, sponges, dish towels, etc. I rarely eat out, and usually only because I am traveling. I have begun taking my own food to peoples homes for dinners etc. The only thing I haven't done, until now, is to eliminated oats, which I eat fairly regularly, and are known to sometimes be a trigger. And I have to say, in my defense, that it took me a very long time to suspect gluten because my only original symtom was rash/dermatitis herpetiformis. So I didn't associate the nausea/headache/fatique with gluten for a long time. Nor did any one of the many doctors I saw suspect it. I finally had a couple of dermatitis herpetiformis spots (and severe migraine) when traveling and probably eating cross contaminated food. I've never been on one of these sights but I am desperate. I'm praying it's as simple as eliminating oats. But I am angry that I was given this drug that I truly believe set this off to begin with. Anyone?
    • Wheatwacked
      Just switching to gluten free diet will answer your question without involving anyone else.  Your sister was diagnosed, that puts you at 40% risk of having it also as a first degree relative.  If you improve on a trial gluten free diet, you either have Celiac Disease (autoimmune) or Non Celiac Gluten Sensitivity (not autoimmune).  In any case it is important to address nutritional deficiencies like vitamin D.  Gluten free processed foods are not required to fortify.  The reason gluten foods are fortified is our western diet is deficient in them to the point where the government had to step in and require fortification.   Once you start GFD you'll realize it was the gluten you were afraid of all along, but nobody told you.
×
×
  • Create New...