Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Articles In Baltimore Examiner


happygirl

Recommended Posts

happygirl Collaborator

Interview with Dr. Alessio Fasano: Open Original Shared Link

(My note: This is why the Celiac community is so lucky to have him: "Philosophy: Discovery is to see what everyone else has seen and to think what no one else has thought.")

"Doctor unraveling mystery of celiac disease

By Sara Michael

Examiner Staff Writer 1/16/09

Open Original Shared Link

"Celiac sufferers adjust to gluten-free lifestyle, wait for a cure

By Sara Michael

Examiner Staff Writer 1/16/09


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Not really a fan of this paragraph:

Absolutely. But the hazard is ... once you go on a gluten-free diet, the tools we use for the diagnosis are not available anymore. The tests will test negative once you go on a gluten-free diet. You lose the ability to make a diagnosis. It's like you say, "I am peeing a little too much, and I am light-headed, so let me take 20 units of insulin and see if I have diabetes." For celiac disease, a gluten-free diet is like insulin for diabetics.

Choosing your diet isn't really the same as shooting yourself up with insulin.

happygirl Collaborator

It actually makes perfect sense to me in the context its used -testing- and I have seen the overall example used on the forum and other places - you can't test for Celiac once you are on the diet (because, the damage has healed, and we look "normal") and you can't really test for diabetes when your blood sugar is under control (with use of insulin, at that point, looks normal, and now it looks like you "don't" have diabetes because you "fixed" it when the testing was done.)

MaryJones2 Enthusiast

Thanks for sharing Laura. I thought this part was excellent:

If you go on a 99.9 percent gluten-free diet, that 0.1 percent is perceived by the immune system as something dangerous there. It can't distinguish between a crumb and an entire bread loaf.

rubyred Apprentice

Thanks for the articles! I actually just made an appointment to see Dr. Fasano - on Feb 24th. I am going to get records of my previous endoscopy for him to look over. I'm very excited!! It's nice to read that he believes in the gluten spectrum, so even if he says I dont have Celiac, he will take my symptoms and diet response seriously!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,360
    • Most Online (within 30 mins)
      7,748

    KristaK2
    Newest Member
    KristaK2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I thought I'd share this article about recent findings that not enough gluten is transmitted during kissing to be concerned about: https://www.eurekalert.org/news-releases/1082120  What do you think?
    • aperlo34
      @OlafAndvarafors hi! I’m feeling a lot better. Twitching has gotten better…I never really found an explanation for the twitching other than anxiety and/or some sort of deficiency (b12/iron/magnesium/D). These are just guesses, though. My levels were always “low-normal” and I recently got 2 more iron infusions because my ferritin dropped despite the gluten-free diet.    as for the other symptoms, I definitely am inclined to blame the gluten “detox” period and honestly anxiety around the entire ordeal. It’s a huge thing to deal with mentally, and I didn’t have symptoms that I knew of prior to being diagnosed so it really threw me into a spiral.    I supplement daily, multivitamin, 6000 D, B12 sublingual, B complex, C, omega 3, magnesium.    Be patient and kind with yourself. A lot of these forums, while helpful, point you to every possible horrible diagnosis. 
    • OlafAndvarafors
      Hello. How are you feeling? Did you find out the cause? I have the same symptoms, but I'm still going through the diagnostic process for celiac disease.
    • lizzie42
      I'm confused about these results. We are not seeing the GI doc. He's totally out of our price range. We can just do gluten free like we do for my daughter who was off the charts on all of these. Any thoughts? Maybe we caught it early? He's only 5.  His EMA was negative. That got cut out of the photo. 
    • Scott Adams
×
×
  • Create New...