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Test result insight
Scott Adams reacted to disneyfamilyfive for a topic
Thank you! This will be so helpful. It’s overwhelming for sure!1 point -
Test result insight
Scott Adams reacted to disneyfamilyfive for a topic
Good morning, I thought I’d quickly update this post. A week or so after my test results were posted, my doctor’s nurse called to say 2 of 3 blood tests showed elevated numbers and referred to GI for further evaluation. It took about 3 -4 weeks to get into a GI, it was over the holidays too, so I’m sure that pushed things out a bit. Met with the GI wh...1 point -
DH and swollen lymph nodes
Scott Adams reacted to Morgan Tiernan for a topic
A little late to the party in terms of seeing this and responding to it, so apologies! But I wanted to responds as this sounds exactly like my experience. I had covid, followed by shingles, followed by strep… that unlucky bout of infections is what lead me here with dermatitis herpetiformis. I was also self diagnosed in the beginning and turns out I was a...1 point -
Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...1 point
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Weak positive blood test and marsh type 1
knitty kitty reacted to Philly224 for a topic
Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅1 point -
Weak positive blood test and marsh type 1
knitty kitty reacted to trents for a topic
As Scott said, if you go on a gluten free diet ahead of testing you can expect the test results to be negative. If you remove gluten from your diet, the inflammation in the lining of the small bowel will subside, antibody levels (what the blood tests are checking for) will drop and the mucosal lining will experience healing such that a biopsy will be normal...1 point -
Weak positive blood test and marsh type 1
cristiana reacted to Scott Adams for a topic
From the article regarding the tTG-IgA test: So the most likely explanation of your positive tTG-IgA test would be celiac disease.1 point -
Thank you so much for the detailed reply! I was just eating my normal diet so wasn't going out of my way to eat gluten. The week before my blood test I actually had a stomach virus so I wasn't eating much of anything so I do wonder if that contributed at all. Before the biopsy I was just eating my normal amount of gluten, I would say two slices of bread per...1 point
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Weak positive blood test and marsh type 1
cristiana reacted to Scott Adams for a topic
There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were...1 point -
How to navigate living with dermatitis herpetiformis
Morgan Tiernan reacted to Scott Adams for a topic
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:1 point -
How to navigate living with dermatitis herpetiformis
Morgan Tiernan reacted to trents for a topic
Welcome to the forum, @Morgan Tiernan! I find it outrageous that your physicians refused to test you for celiac disease despite what were obviously outbreaks of dermatitis herpetiformis. Every physician should know that dermatitis herpetiformis is a classic symptom of celiac disease! In fact, celiac disease is the only known cause for dermatitis herpetiformis...1 point
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Is there a minimum time since diagnosis of refractory celiac disease? I really hope I’m not eligible for your study, but looking for it is one reason my gastroenterologist suggested an endoscopy. I’m having it later this month, due to still having GI symptoms on a strict gluten free diet. -
By xxnonamexx · Posted
There's a company called thistle subscription based food completely gluten free plant based. They offer juices, juice shots. I was wondering has anyone made their own juices shots for anti inflammatory gut healthy juices etc? -
By xxnonamexx · Posted
If you prepare gluten free and eat gluten free but feel stomach pains hours later what makes it gluten contamination vs. something else you may have ate etc? anything to differentiate in symptoms? Thanks -
By MelissaClinPsyD · Posted
Anyone diagnosed with Refractory Coeliac Disease can participate (they do not need to be in the UK but would need to be able to speak and understand English as the intervention is facilitated in English language) -
By Scott Adams · Posted
Is this only for those in the UK, or can anyone diagnosed with celiac disease participate?
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