Aerin328

Grey, I have to reiterate this. It can take a long, long time to recover from this frustrating illness. It took me about 6 months before I started to feel "more" normal, and about 10 months I'd say until I at least had days where I had energy for a day (or even a few) at a time. 1 Year being gluten-free has found me better than ever before - the days I feel...

Brian, Yes, I took them together and decided "I don't know what it is but I'm not comfortable." lol Today I began digestive enzymes and I have ordered a probiotic. I appreciate everyone's comments. This darn disease is so frustrating at times - always second guessing where the gluten could be, always second guessing potential negative affects of other...

I am a recovering celiac, 7 months gluten-free and still healing. I have great days (finally, yeah!) but I definitely still have a good number of crappy days. GI symptoms are gone, but I still struggle with fatigue and brain fog. In my quest for total healing I've heard several times "All Celiacs should be on digestive enzymes and probiotic supplements."...

Could also be the caffeine - I know a couple celiacs who can't take caffeine in any form b/c it irritates their stomach. This probably isn't true for most but just a thought.

Just getting a burger pattie at McDonalds is very dangerous b/c the grill itself can be cross-contaminated. There is just too much gluten flying around in that place! Also, as posted by others, it may be fried with glutenous foods, and thus cross-contaminate it. And ketchup is also glutenous. Unfortunately I try to avoid McD altogether :/

Joni, welcome! Just a response on the "how long does it take to regulate" question. As our Celiac veteran Lisa stated, it can take any varied amount of time. I have found, and read about others who have similarly experienced, that gastrointestinal issues should subside within a few weeks. However, the anti-gliadin antibodies which can trigger certain system...

Allyson, Again, welcome! In your initial post you commented that you are still fatigued. I have found, and have read posts and replies from other people who have found, that fatigue and brain fog seem to be the *last* symptoms to retreat. In fact the immune reaction can continue as long as 1-2 years after going gluten-free b/c the antibodies remain in the...

Aye, it's torture. But I guess self-control is good for the soul. (Not that that's a huge comfort when you're drooling over delicious pizza, but you know what I mean). Hang in there!

I am moved by the bravery so many people have demonstrating in surviving such terrible ordeals with positive attitudes. Celiac disease is a terrible thing, but for those of us who survive and conquer, our perspectives benefit beyond that which other people may understand. My own brief story: I experienced a childhood of lasting fatigue, allergies...

Many who visit this site are in the maelstrom of celiac suffering. Those of us who have gone through it know there is nothing worse - it seems to attack not only your body, but your mind, making you feel like you'll never escape. But there is hope, the body DOES heal. When the fog lifts and health returns, it's absolutely amazing the difference. To...

Celiac disease is a long-term illness that requires long-term healing. If you just went off gluten 2 months ago your body is probably still in quite a tizzy, and even more sensitive to gluten than before. I've read in a couple places it takes 1-2 years for the antibodies to leave the blood and for the immune system to break its self-traumatizing cycle.....

It's really hard to face, and difficult to do. But as the previous poster commented, you don't want to wait until it is too late. I was healthy for years, and then *bam*- I was bed-ridden for months. Auto-immune illness is terrible to escape from once you're in its cycle, so try to avoid getting sucked into the cycle! Go gluten-free! All here will be available...

Hold out Daisy. Gluten causes your immune system to do crazy things to your body chemistry and brain - emotional distress is definitely a symptom. Just have patience and strength knowing it WILL pass (even though it doesn't feel like it ever will). Good luck!

I also find that going gluten-free has helped me get sick a lot less ; and when a real cold does take hold it seems to be defeated much faster. Celiac's can manifest itself in MANY ways, so I wouldn't be surprised if it was glutenous reaction. However maybe you caught it a few days/ a week ago and b/c of the glutening your system was unable to defend. Either...