
Katie618
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Katie618
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ARCHIVED How Old? Celiac For How Long?
Katie618 replied to swittenauer's topic in Introduce Yourself / Share Stuff
i'm 21 and was diagnosed in may 06, been gluten free for 6 months -- never really felt sick before that, was diagnosed becasue my iron levels were really low (they've been low since high school) but in retrospect, definately displayed symptoms -
can any one help explain to me what a casein intolerance is...symptoms, what needs to be avoided, etc? thanks!!!
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Cold River Vodka is gluten-free!! and marketed as gluten-free (only sold in maine right now) as for cosmos-- if it is a cosmo mix, have to be careful with red 40 to someone else's comment about new celiacs have a worse reaction-- maybe cause our guts are still healing/hurting? when i was frist dx i couldnt tolerate ingredients that may or may not contain...
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ARCHIVED Worsening Of Dh When Starting gluten-free Diet?
Katie618 replied to emerisle's topic in Dermatitis Herpetiformis
Eggs??!?!? i didnt know that would effect DH!!!!!!! my sister told me about milk (thank God!! it has made a diff) i had no idea about eggs!!! i stay away from iodized salt, seaweed (however, i do like sushi) and only have seafood when i have a sushi (besides outback, sushi it the only other place i can go on a "normal" date with my boyfriend... -
ARCHIVED Starbucks Frappuccino
Katie618 replied to adam2008's topic in Gluten-Free Foods, Products, Shopping & Medications
i called and the ppl were very friendly. they asked what i liked to drink and told me if is was or was not gluten-free. i was advised to stay away from ALL fraps (as they do not clean the blenders after every drink) so if i want a cold drink i ask for it over ice. carmel machiattos are my fave!!! -
ARCHIVED Here We Go Again.....
Katie618 replied to Mal's topic in Gluten-Free Foods, Products, Shopping & Medications
According to Rory Jones (who is very well known, and knows alot about celiac disease and DH), you can only be glutened by ingesting it... makeup, hair products, lotions shouldn't bother you... however, all my stuff is gluten-free just to be safe -
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ARCHIVED Lipton Onion Soup Mix?
Katie618 replied to nikki8's topic in Gluten-Free Foods, Products, Shopping & Medications
the only thing i was worried about with that mix is that is says "spices" i have a book that said wheat may be a binder for the spices to prevent it from clumping/caking. i've had it and felt sick good luck! -
ARCHIVED What Was Your Favorite Christmas Gift?
Katie618 replied to Lisa's topic in Introduce Yourself / Share Stuff
i made out real good this year... ugg boots, new digital camera, coach wallet and wristlet, palm pilot, swatch watch!!! ((maybe my fam members felt bad for me being so sick and miserable throughout the summer and early fall from just being dxed)) they out did themselves, but i greatly appreciate everything!!! as for everyone going away... i want... -
ARCHIVED Snack Size Candy
Katie618 replied to annacsmom's topic in Gluten-Free Foods, Products, Shopping & Medications
i have such a sweet tooth and has done lots of research to find gluten-free candy... laffy taffy, nerds, nips, butterfingers (and Bbs), M&Ms (not the crunch), baby ruths, skittles, starbursts, blow pops, tootsie pops, sweet tarts, ghiradelli choc, 3 musketeers, hershey kisses, andes, double bubble, bazooka, charleston chews, dots, nestles treasures,... -
has your daughter been test for iron deficiency? i know before i was diagnosed all i wanted to do was sleep... after being dx and going on an iron supplement i started to regain some energy (but still do feel tired often) it takes a while to start feeling better.. i started to in the summer (i was sx in may 06) and started to relapse, celiacs sometimes...
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ARCHIVED To Be Gluten Free Or Not?
Katie618 replied to Sal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good luck with it all, i'm so jelous that you'll be eating real pizza... but the gluten free pizza is pretty good too!!! maybe sweat is aggrevating everything, do you wear underarmor when you go to the gym?? or a sweatshirt? maybe its not letting your body "breathe" and it's keeping the sweat in? i had bad skin when i was teen (hopefully have grown... -
ARCHIVED Traditions Beer
Katie618 replied to linz7997's topic in Gluten-Free Foods, Products, Shopping & Medications
never heard of that one... i like New Grist or Bard's Tail (Tale??) Dragon Gold!! i'll look for traditions-- i miss having beer at college parties(haha) -
does anyone know if the ghiradelli chocolate dark chocolate squares with white mint filling gluten free!?!? i know ghiradelli choc squares are gluten-free... just didnt know about this flavor
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ARCHIVED Do I Tell Family Or Not?
Katie618 replied to Electra's topic in Parents, Friends and Loved Ones of Celiacs
i think you need to let your family know what is going on. it's not too fair for your daughter to be subject to getting gluten because you dont want to deal with it during this stressful time. email your fam members in advance with a quick over view of celiac and what she can/can not eat, and ask them nicely please dont feed her anything... you will be... -
I was reading someone's post about not feeling better (DH and celiac disease) after sticking to the diet.... I was diagnosed in May with celiac disease and DH in Aug. I was still feeling really awful and still looked really awful- the DH wouldnt stop breaking out and i still felt bloated... i was given a cortisone shot to help with the itching. My sister...
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thanks for your support and advice, i greatly appreciate it. i was also told to drink lots of milk-- i'll be doing everything to prevent any side effects and hopefully feel better!!
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i've been going to yale dermatology for the past month to try and figure if i have DH- i've been on dapsone for about 2.5 weeks... went in last week with another outbreak and got a cortisone shot, the dr also did a strep and staph culutre, and i got my results. i have a staph infection!!! staph infections can cause skin rash's, blisters... alsmost similar...
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last week was a bad week- got contaminated some how and had an outbreak of DH(ish) on my face, chest, stomach, and back - was miserable for three/four days straight on sunday went into NYC with my family for a final fam day before i went back to college-- went into greenwich village to go to Risotteria and Puff&Pao. Risotteria was AMAZING!!!! ...
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ARCHIVED Eating Copious Amounts Of Sugar And Your Skin
Katie618 replied to sdsdsm1971's topic in Dermatitis Herpetiformis
i have eczema and dh... eczema loves sugar for some reason... too much and i get itchy too... if you have dh too some candy's ingredients can cause a rash. -
ARCHIVED What About The Eucharist?
Katie618 replied to Lymetoo's topic in Coping with Celiac Disease
i'm catholic, and i dont take communion or the wine because my priests but a piece of the hose into the chalice, and i rather not deal with cc issues. i dont know about anyone else... but i dont feel apart of the mass anymore because i do not take eucharist and my priests make a big deal about how the eucharist is the main part of mass and taking eucharist... -
ARCHIVED Is Beer A Trigger For Celiac's?
Katie618 replied to capecodda's topic in Gluten-Free Foods, Products, Shopping & Medications
i think beer was a big trigger for me... at college that was what i mostly drank at parties and i would wake up with a huge rash (Turns out it was the DH) i was just diagnosed in may so now this year i will stay away from beer!! new grist is pretty decent...it tastes like an ale, but this beer is better than none -
ARCHIVED Desperate For A Safe Candy
Katie618 replied to tsomo's topic in Gluten-Free Foods, Products, Shopping & Medications
i both dh and celiac too., and i get reactions to candiues that sy gluten-free as well. i was told that you are a relatively new celiac you have a much higher sensitivity to ingredients that may or may not contain gluten (like artifical colors and flavors, maltodextrin, etc) i have a hard time not eating starburst and skittles cause i know they are gluten... -
ARCHIVED gluten-free Dining In Nj, Pa And Connecticut
Katie618 replied to tammy's topic in Gluten-Free Restaurants
this is an awesome site for gluten free restaurants in the US Open Original Shared Link i've been to Frascati's in stamford, ct... it's really good, but they dont give out good portions... sambuca in NY is awesome (they even have gluten-free rolls! ) it's family style italian.. next week i'm trying risotteria in greenwhich village good luck... -
ARCHIVED Why Don't People 'get It'?
Katie618 replied to floridanative's topic in Coping with Celiac Disease
i totally agree with it all.. i was diagnosed in may when i came home from school, so for the past 3 months at my summer job has made me not enjoy eating lunch with co-workers... daily i hear "oh just fantasize it's a big juicy whatever" or "you'll always be skinny and ppl wish they got diagnosed with sickness like celiac" one guy made a joke about me...