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Gemini

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Everything posted by Gemini

  1. Gemini
    Does this mean you stand in a river and wait for the salmon to pop? Actually, bears will eat mashed potatoes, beer and cake if they find it in someone's cooler when camping......
  2. Gemini
    This is excellent advice and 100% correct! I guess it would also depend on the age of the child but Celiacs and even those with DH do NOT have to use gluten-free skin care products. The exception would be those who react to other allergens topically. The shampoo would have to be getting into the GI tract to cause a problem and I don't know many people who...
  3. Gemini
    Yup.....you will acquire more autoimmune disease the longer you go without a diagnosis! I have 3 myself, besides the celiac disease but am doing just fine on the diet. Couldn't believe how many symptoms I had for years that went away after being gluten-free for awhile. I am a bit confused, though......Celiac Disease cannot be diagnosed with a colonoscopy...
  4. Gemini
    I am allergic to molds, mites and tree stuff....mainly hay fever type misery. I started allergy shots about 10 years ago and still get them monthly. I am afraid to stop them because they work so well for me! I used to get sick 2 times per year, spring and fall, with a horrible sinus infection which eventually made it's way south into my lungs. Out of work...
  5. Gemini
    Take a moment and relax! I know how crappy you feel as I've been there myself but it will get better.....as you have seen already with your dietary response. A few things to consider..... I would say that you have celiac disease, without a doubt. Negative blood work and biopsy results are not uncommon, especially as you are so young. At 23, you may...
  6. Gemini
    Shaunnie....do not be surprised if those other numbers do not go back to normal.....it does not mean she has those diseases, either. Although, being just 4 years old, she's a lucky girl and I would guess her damage is no where in the range of older, diagnosed Celiacs. Sounds like you have a wonderful doctor who truly "gets it" and I am pleased he did not...
  7. Gemini
  8. Gemini
    You know, Richard, you have posted many things that are 100% true and prove to me you are another one who has taken the time to really learn this disease and all the urban legends out there which exist about what is gluten-free and what is not. Many of the Celiac publications talk about all the things mentioned here by people and it amazes me what people...
  9. Gemini
    Mucho Thank-you!!!!!
  10. Gemini
    It would only matter if you were being given medications by mouth....which wouldn't be happening if you were unconscious. IV meds will not pass through your gut so there would be no reaction. Nutritional meds like TPN, also do not pass through your gut so not a cause for worry. The only one that might be a problem would be a feeding tube and by the time most...
  11. Gemini
    That's very insightful of you to question the lupus diagnosis after discovering your celiac disease. So many docotrs get this wrong and it's partly due to the fact that Celiac overlaps so many other symptoms for other diseases. My 22 year old niece tested neagative via blood work for celiac disease, even though her aunt (me) has celiac disease and she...
  12. Gemini
    Thanks for the clarification, dolly! Yes, there are many who do not test positive on the blood work and then have positive biopsies so if you were originally diagnosed through a positive biopsy, you have Celiac Disease. If can take a very long time to become positive for either test, even though damage is being done on a daily basis. Your gene test is also...
  13. Gemini
    You cannot see damage to the villi just from doing an endoscopy....the villi are microscopic and that's why the sample needs to be sent to a lab for study. You also cannot diagnose Celiac Disease via a colonoscopy....not even close to where the damage will be! If Chrohn's or Colitis were suspected, then the colonoscopy would be needed for diagnosis of those...
  14. Gemini
    jayhawkmom....I remember you from another forum that had some not so nice members and we have e-mailed privately. I remember when your son was born and I am so very sorry you are going through this. It's one thing to have these problems in an adult but to try and diagnose in a small child must be sheer torture! What on earth does this kid eat , with so many...
  15. Gemini
    Shaunnie.....the ANA test is just a general test for inflammation in the body....it does not diagnose any one disease. From personal experience, doctors rely too heavily on this and do not look at other factors, including NOT having any symptoms of those particular two. My RH factor and ANA are very high but I have full blown Celiac and was at end stage at...
  16. Gemini
    That's why a FULL Celiac panel should be done and not just a tTg. I wouldn't exactly call it a false positive.....Hashimoto's thyroid will elevate tTG also. I have both that and Celiac. The other test to couple with the tTg is the EMA. It is 100% specific to Celiac Disease so if both tTg and EMA are positive, then the odds used by the medical community to...
  17. Gemini
    LOL!!! I don't blame you one bit. If I planned a getaway for a 4 day week-end, especially Thanksgiving, the convention would not win. I would guess they are not going to have the turn-out they expected because the economy is bad and people just do not have extra money to spend. Especially when you can buy a good cookbook or just convert your own recipes...
  18. Gemini
    If you do go, please let us know what you thought. I had intentions of going early on but when I really thought about it, I decided to bail. I thought the whole week-end was rather expensive and I am not the type of person that normally gives that much thought. I live about 45 minutes from the site where it's being held so I thought maybe I would drive down...
  19. Gemini
    I would say you are doing a great job of keeping your daughter healthy so I wouldn't sweat it. In the 3 1/2 years I have been gluten-free, I have only been glutened twice and that was in the beginning of my learning curve. I eat out about once a month and never get glutened in restaurants. There are a few that I go to and they have been great with getting...
  20. Gemini
    This is an excellent idea! I have been going through hell with my husband's doctor over this very issue. The circumstances are a little different but it's the same basic problem......how to get them to test for Celiac properly when there are many other symptoms that the AMA doesn't recognize or connect to celiac disease? My husband doesn't have excessive...
  21. Gemini
    As someone else who has 3 other autoimmune problems besides Celiac, this is very common and has little to do with the doctor's idea of being a "full body Celiac". Maybe that's his/her way of describing those who acquire other autoimmune diseases related to Celiac but it's usually because of a long diagnosis time and the resultant internal damage. Sometimes...
  22. Gemini
    Excellent, Richard!!!! You mean there is another person on this forum who has taken the time to learn how real reactions occur? Not trying to make light of your reaction, Walt, but your wife had some very good advice for you. You absolutely cannot have a reaction in your gut just by touching flour to your skin. Celiacs also will have other gut reactions...
  23. Gemini

    ARCHIVED Uti's

    Gemini replied to glutenfreegirl's topic in Related Issues & Disorders

    Rivka....my husband has had episodes of kidney stones off and on. I am the Celiac, he is not. However, I strongly believe he may have celiac disease also because of the stones and the fact he consumes about 5,000 calories a day and has trouble maintaining his 135 lb. frame. He is 5' 7" tall. He is also slightly anemic. As usual, his doctor does not think...
  24. Gemini
    Walt.....I have always found it extremely easy to find a safe meal in the Northeast, in any big city. Lots of educated people here and most are not afraid to speak up and make their needs known. My one and only complaint is always the price of a good gluten-free meal but, living close to Boston myself, you kind of get used to the higher prices. I know NY...
  25. Gemini
    I initially used Armour but it did not work well for me at all. However, I was diagnosed with Hashi's 15 years before I was diagnosed with celiac disease so it may not have been the Armour's fault as I was absorbing next to nothing by diagnosis time. Next, I was put on Levoxyl plus a compounded T3 formula. The dosage was pretty high for the Levoxyl but as...
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