Jump to content

Gemini

Advanced Members
  • Posts

    3,980
  • Joined

  • Last visited

  • Days Won

    112

Everything posted by Gemini

  1. Finally! Someone else who takes responsibility for what they eat and figuring it out for themselves, not expecting the government to babysit us and tell us how to think. Food companies are giving people in this country what they want....cheap food. Americans eat what is sold because it's cheap and tastes good to them. Having wheat so heavily subsidized...
  2. Awareness is good but unnecessary fear is something else. At least from what I have learned from visiting vineyards in the US for wine tastings, it's not an issue in the States. This sounds like a pretty old technique and it still may be used in other parts of the world, like France maybe, but for US wines and those from S. America, I have not heard of this...
  3. You have the ability to come here and relate your experiences and no one has ever said you couldn't. No one is blowing anyone off or implying that their reactions are imaginary. However, it is prudent to remind people that wine has never been listed, on any reputable Celiac website that I have looked at over the past 7 1/2 years, as a forbidden drink or...
  4. Peter's response was correct and that's what we aim for here on this forum.....not continuing inaccurate information which states there is gluten in wine from flour paste used to seal barrels. I have yet to run into any reputable vineyard that does this and I drink enough red wine to kill a Celiac if there were any gluten in red wine. Alcohol is harsh...
  5. I think if a person bases their diet on whole foods, with some goodies and bread thrown in (preferably from dedicated, certified facilities) without overdoing it, then they should feel confident that they are as gluten free as it gets. You can never say with absolute absurdness that you are 100% gluten free....no one can prove that. Just like no one can...
  6. In no way are you out of line, bart! It is incredibly frustrating to see this happen to a man who founded and ran a very successful business and retired with wealth many people will never see. He should be traveling the world now and enjoying life to it's fullest yet staggers around the house, malnourished and confused. Yes, he has gluten ataxia, which...
  7. Unfortunately, my father's dementia is so advanced, he does not understand what eating gluten free means. He does not participate in conversation that much anymore, either. He sleeps a lot in his chair from all the gluten he eats. His favorite meal is lobster mac n' cheese and he eats it frequently. If you try to get him to eat something without gluten...
  8. I understand what you are going through as my father has dementia and I KNOW it is caused by Celiac that everyone else is in denial he has. He is presenting like I did and looks like he is dying from malnutrition. However, having said that, I don't agree that doctors should be scaring the hell out of people. That's too controlling. I don't like the fact...
  9. This is very good advice......
  10. Please do not worry about this as low white cell counts are common with autoimmune disease. My white cell counts are always in the 2.5-3.5 range and as long as you aren't constantly sick, it probably will not be a problem. I have had low counts for 30 years and rarely get sick. This could be another clue for you that you do have Celiac. Celiac causes a...
  11. Once a person follows a gluten-free diet, after 5 years, their risk of developing lymphoma goes back to that of the general population. So don't become paralyzed with fear over this. Many people go many years without a diagnosis of Celiac, as did I, and do not develop cancers from it. I would be more concerned about developing other AI diseases but not worry...
  12. Dextrose is listed as a safe ingredient in most, if not all of the gluten free "safe" food listings. It is another one of those ingredients that Celiacs need not worry about but continues to worry some people. If it were derived from wheat, then I believe it would have to be labeled as such in the US. Dextrose (wheat). Easy enough to figure out once...
  13. Good for you! The process does take time but it is worth it. I have now had 2 completed, the teeth look great and I don't have to worry about them decaying. I have one more to go but have been putting it off because I HATE the tooth extraction part.....the worst part of the whole process. After that, it isn't bad at all. Hope everything goes well for...
  14. Roxie......don't sweat this! I had the same experience. I had booked a trip to England 6 months before I hit the wall with Celiac. I was a 97 pound weakling at time of diagnosis and was freaking out about losing all my money for this trip I had booked. I was so sick it looked like that was going to happen. However, in 3 weeks of being gluten free, I felt...
  15. I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.
  16. The foods that are subsidized with the NHS are not very good. They really are for the poorest of the population who have trouble making ends meet. I have heard the gluten-free food purchased through this system is not very appetizing. I think you would do better finding good gluten-free pizza on your own. Like any bureaucratic system, you end up paying...
  17. No need to be terrified! If you ended up in the ER, then most meds are not given by mouth but through an IV...which would not pose a problem as it bypasses the gut. That would get you started until you found a gluten-free version of an antibiotic. I have had to take antibiotics and anti-virals since going gluten-free and I have not had a problem finding...
  18. Jinxy.....I have 4 autoimmune diseases myself and know a lot about them. My brother also has Sarcoids so I am familiar with that. Let me say this....all of your AI problems are related to Celiac Disease and that could be the reason why you have so many problems. If you have been eating gluten all your life and don't know you shouldn't be eating it, it can...
  19. And I am literally sick of people who come onto this forum and proclaim that the whole food industry is trying to poison them with imaginary gluten. That they cannot figure out what is safe to eat and what is not, after years of being gluten free. This is not rocket science. Good God, people, it's a wonder you leave your house everyday! No one is stating...
  20. While I don't completely disagree with what you say, if the vast majority of Celiacs can use products from these companies with no problems, then we can safely assume there isn't gluten in the food. This has been overblown. Many people have additional problems that will cause a reaction that has nothing to do with Celiac and we don't need people erroneously...
  21. Gemini

    ARCHIVED Newbie

    Hi Dawn! Actually, if you do have Celiac Disease, taking pred will help calm your immune system down and will help with the inflammation in your knees. I never advocate taking it BUT short term use is sometimes necessary. Rheumatoid arthritis is one of the diseases that has a strong connection to Celiac, as both are autoimmune. Inflammation loves...
  22. Tom...you need to see an ophthalmologist for your eyes. I would suggest being screened for Sjogren's Syndrome too. It's a blood test but it isn't always accurate, like Celiac testing. Your symptoms sound like Sjogren's.....I have it and have many of the same symptoms myself. When the mold counts rise outside, my eyes turn brick red. I look like a hell hound...
  23. Canker sores are a recognized symptom of Celiac Disease, listed in many publications that I have seen. I had canker sores for YEARS before I was diagnosed, to the point where I had to see a specialist because my dentist thought I had oral cancer...the damn thing would not heal. Talk about one of life's scary moments! Once I went gluten free, they...
  24. I completely understand what you mean about being slammed. I went into full blown menopause at 45 and 1 year later, exactly, hit the wall with Celiac and came very close to not making it. It was awful and I was a mess. It took another 3 years to feel significantly better, after going gluten free but things are much better now. I am exercising and feeling...
  25. Gemini

    ARCHIVED How To Trust Doctors Again?

    I can really relate to this, Kitty. I stopped going to doctors completely at the age of 38, and I wasn't exactly a regular visitor before then either. I stopped after the last GI I saw for my excruciating stomach pain told me to seek psychiatric help because there was nothing wrong with me. He was gentle with his delivery but I was BS none the less. I...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.