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Tim-n-VA

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Everything posted by Tim-n-VA

  1. Tim-n-VA
    The Zojirushi brand seems to get the best reviews on this site. It is a little pricy, around $200. I didn't buy one because of the price and the fact that even for a supposedly premium item it had some bad reviews on Amazon. I bought a much cheaper Sunbeam that works great for making the Pamela's wheat free bread mix. I can't give a review for using...
  2. Tim-n-VA
    ** Note: minor spoiler in this thread ** I've occasionaly seen a mention on TV of a character not being able to have gluten. Yesterday I picked up Killer View, a mystery by Ridley Pearson. In the book, while searching a victim's home, detectives note that he has lots of gluten-free items in his house and one loaf of bread. That made them curious and...
  3. Tim-n-VA
    Chipotle is primarily a burrito place that custom makes your burrito from a variety of ingredients available. All of the ingredients are gluten free except the tortilla itself. You can get the bowl which has everything except the tortilla. The issue is cross-contamination as the flour tortillas move down the assembly line. One recommended step is...
  4. Tim-n-VA
    On the other hand, false positives in the blood tests are associated with other auto-immune issues and diabetes is an auto-immune disease. Open Original Shared Link
  5. Tim-n-VA
    The one caveat that I would add is that you need to know what level of clinical certainty from mainstream medicine that you want and don't start self-treatment until you have that. Most of the testing for gluten issues are actually tests for the bodies reaction and require the patient to have been consuming gluten.
  6. Tim-n-VA
    The warn 0% means you haven't done anything wrong. I have wondered about the dough also. I think it might be something about the design of the mixer. I've heard people say the Kitchenaide doesn't have this problem. I bought a Sunbeam because it was cheaper (by a lot) and had a more powerful motor. That makes me doubt the power/speed explanation but...
  7. Tim-n-VA
    For me it was erractic liver function test which were part of the routine blood tests that my doctors ordered. From there we went ultrasound of the liver which showed irregular densities. That lead to just screening tests for other things that could cause liver damage since I ddin't drink much. While I had none of the typical symtoms I clearly was...
  8. Tim-n-VA
    Just taking the pre-made breads, if I were to order them based on any of the factors you listed the various gluten free items would be intermixed with the gluten ones. I don't see a factor that seems to be gluten dependent. To illustrate, I didn't like rye bread prior to diagnosis so I'd rate any gluten free bread above any rye bread. When I make blueberry...
  9. Tim-n-VA
    I'd say it tastes like regular food. Some I like, some I don't. Some of the things I like, others don't. Some of the things I don't like other do. Sorry but this is too open ended and personal preference related to get a single answer.
  10. Tim-n-VA
    That is significantly different than the 1 in 133 figure commonly cited on this site. Do yo have a link to that study?
  11. Tim-n-VA
    Only the grain part of the barley is a problem for celiacs so theoretically it could still be safe. This comes up occasionally as a topic and most people worry about the cross-contamination if they don't worry about the barley grass (stalk??).
  12. Tim-n-VA
    Like most answers relating to this, it depends on how sensitive you are to the wheat. Most celiacs would not try that approach of eating toppings off of a gluten pizza. Even if you don't have obvious symtoms there is always the chance of internal damage.
  13. Tim-n-VA
    The Wegman's grocery chain started in Rochester and they have lots of stores in that area. You can search for more info here but their stores typically have a gluten-free section plus all of their store brands have a code system on the front to make it easy to find gluten-free items.
  14. Tim-n-VA
    Since stress affects your health, you are too paranoid when the harm from stress over gluten exceeds the harm from cross contamination.
  15. Tim-n-VA
    With any medical test there can be both false negative and false positives. The following quote is from Open Original Shared Link A very reliable test is still not perfect so some judgement comes into play as to how "certain" you need to be. The biopsy can have false results also. Having lots of different positive tests reduces the chances of a...
  16. Tim-n-VA
    O neg for me. "More prone to" would be a true statement if the percentage of type O with celiac is even slightly higher than the pecentage of any other type blood. Those psuedo-quantitative word cause problems.
  17. Tim-n-VA
    I'm not a doctor but it seems reasonable that any of these tests could have a result that would make a retest desirable. There are exceptions and nuances to each individuals situation. All I'm saying is that think about what you want from conventional medicine before you stop following the advice. My perspecitive is as much geared towards the potential...
  18. Tim-n-VA
    It is your choice what you feed your children. There is plenty on this site anti-doctor. You need to decide what level of conventional medical diagnosis you need for your own satisfaction. Most of the tests measure reaction to gluten which is why they don't want you to stop until you get that definitive diagnosis. The one thing you don't want to...
  19. Tim-n-VA
    I asked a similar question about a year ago and got a lot of suggestions. If the link doesn't work, seach for Niagara Falls in the travel section. Open Original Shared Link
  20. Tim-n-VA
    Is it as simples as they are both auto-immune diseases and diseases tend to occur in clusters in body systems? That is if you have one or the other you have an immune system issue and are likely to get the other - and other immune disorders such a thyroid disease - without a cause and effect relationship. Alternatively, if the genetic part of celiac can...
  21. Tim-n-VA
    The caveat first: we are all different and celiac varies greatly from individual to individual. I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two...
  22. Tim-n-VA
    Not having the official diagnosis is not a barrier to future care. However, the celiac related symptoms overlap a lot of other diseases/conditions. Diseases also tend to occur in clusters. Having an autoimmune disease like celiac makes is more likely that you'll have other autoimmune diseases like diabetes or thryroid problems. Bottom line is the more...
  23. Tim-n-VA
    Except that few people decide to try a fad diet. They think they are making a lifestyle change. The fad part is usually only evident in retrospect, at least to the participants.
  24. Tim-n-VA
    I have a sister-in-law who read one of those diet books that tell you what to eat based on your blood type. For her blood type, she was told to avoid wheat so she looks for gluten-free foods. Not saying that was a good decision but that was a lifestyle choice to go gluten-free. Well, that was over a year ago so she probably has moved on to another...
  25. Tim-n-VA
    The possible link is that Celiac is an autoimmune disease. There are varients of thyroid disease and diabetes that are also autoimmune conditions. Therefore, a celiac should be monitored for thyroid and blood sugar but that doesn't mean an automatic referral to an endocrinologist. It does sound as if ShayFL had a bad experience with an endocrinologist...
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