Lotte18
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Hi N00dnutt, Thanks for posting the Prevalence of Celiac Disease link. My takeaway is that the data is so chaotic I can't believe this 1% is even close to the real number. I also have a sibling who refuses to get tested. Just eats gluten free and doesn't see the value in bothering with doctors. And of course this just perpetuates a cycle in...
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We know that many of those studies are outdated. The prevalence of new testing capabilities is continually changing the landscape. And as you say it's an approximation, not gospel. The real number is unknown and may never be known. Are we all so complacent that we are just going to keep echoing the 1% figure? Why aren't we elevating Lionetti's study...
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How about we turn the tables and start using the 1.6% until that is challenged with these so called "needed" studies? I for one feel trust Elena Lionetti's study. It was a mass screening and no one is contesting it so why not go with that? If there are doubters out there they can cough up the research dollars to prove otherwise. We should not be voluntarily...
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I find it rather annoying to see the "1% of the global population," endlessly repeated when the latest study out of Italy puts it at 1.6%. Why are we downplaying our own importance here? "An Italian study found that 1 in every 60 children has celiac disease, a rate higher than expected. The study, led by Elena Lionetti, conducted a mass screening of...
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Scott Adams reacted to a post in a topic:
Corn reaction and ataxia
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Hi all, I have to have gum surgery tomorrow and was wondering if I should ask for this new drug, Journavx, instead of Vicodin. I tried looking it up online and got, Not gluten free. There is no gluten in the ingredients for this drug. ???? Has anyone else had experience with Journavx? Advice? Many thanks, Charlotte
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Hi Faye, Sorry I didn't see your post sooner. I suffered from ataxia as well. None of my drs. thought it was dairy. They were wrong. Turns out lactose intolerance was the cause. Pancreas just isn't making the enzymes like it used to. I now drink lactose free milk for the calcium and eat lactose free yogurt by Green Valley, when I can find it. My ataxia...
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Scott Adams reacted to a post in a topic:
Can food allergies like milk and soy flatten villi?
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knitty kitty reacted to a post in a topic:
Can food allergies like milk and soy flatten villi?
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I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
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Hi Knitty Kitty, Thanks for sending all of these articles. Some of them are too complex for me to parse. That said, I had extensive blood tests done when the ataxia started. I was a little low on Vit. D. My doc thought I might be low on Vit. K. But no. K levels were completely normal as were all of my B Vits. levels. I take a D supplement but even...
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Scott Adams reacted to a post in a topic:
Can food allergies like milk and soy flatten villi?
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Hi Scott, I thought I'd be like "most people" and could go back to having dairy once my villi had healed. But after dealing with neurological problems that cropped up long after my gut had healed it turned out that this just wasn't true. I have no idea if celiac influences pancreatic enzyme production or if it's the other way around--for some of us-- but...
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Hi Matt, So sorry you're having to suffer all this. I'm just chiming in on your dairy question because the answers are often far from what we or our doctors assume. For example, I thought I could go back to having dairy once my intestinal villi healed. I was fine for about 8 months. And then I wasn't. Started having weird issues with maintaining my...
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Scott Adams reacted to a comment:
Understanding Dermatitis Herpetiformis: The Skin Manifestation of Celiac Disease
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Of course no one is studying whether there is a connection or not. The lack of solid information is exasperating. Living with this much uncertainty is so stressful. I get blood tests every year and they never show a vitamin deficiency. I've never had a diet high in carbs, etc. etc. But I am aging. And that seems to create a lot of bio chemical drama...
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- blisters
- celiac disease
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Scott Adams reacted to a comment:
Understanding Dermatitis Herpetiformis: The Skin Manifestation of Celiac Disease
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I guess my fungal issue was also blood related. Had to do some heavy antibiotics. Awful. I will try the Dapsone gel and cross my fingers. Thanks for posting...
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Hi All, Thanks for all the input on dermatitis herpetiformis. Once again these discussions highlight how little understanding there is by our drs. about celiac disease. About 8 years ago I was also diagnosed with a "rare" fungal infection. Hope it's not related to what's on my leg now. I'm putting Clobetasol .05% on it now. Seems like strong stuff....
- 17 comments
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- 1
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- blisters
- celiac disease
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Hi all, I've suddenly got a skin rash on my leg that might be dermatitis herpetiformis...can figs trigger this? Has anyone else had a similar reaction to eating figs? And if so, what did you do to treat it? Or did it go away on its own after a few days? At the moment I'm just icing it and hoping it dissipates. Many thanks, Charlotte
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So sorry that you're going through this during your college years. The first year or two of this is the hardest. The Drs. don't seem to know that there's a recovery phase that requires more than going gluten free. Coffee and lactose should be avoided. You need to calm the system down. Start your day with ginger tea. Basic Culture grain free bread instead...