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Juliet

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Latest Celiac Disease News & Research:

Everything posted by Juliet

  1. Juliet
    We were told by our ped G.I. and another ped G.I. Dr. Michele Pietzak (she's one of the pediatric Celiac experts on the west coast [possibly THE expert on the west coast Open Original Shared Link]) that being gluten free even for a little while can mess up the blood tests, but the intestine will show damage for six months to a year even with a completely...
  2. Juliet
    It was relatively easy for us since it was really only the adults in the family who had to go gluten free, at least while we're here. As for bread, after trying every bread mix available to us (Authentic Foods, Bob's Red Mill, Gluten Free Pantry, Pamela's Products, Sylvan Border Farms), we like "Favorite Sandwich Bread Mix" by Gluten Free Pantry best....
  3. Juliet
    There are generally two different types of the gene (HLA-DQ2 and HLA-DQ8), and you can get it from one or both of your parents. Here's a quick PDF link that briefly explains it from the University of Chicago: Open Original Shared Link. And if you have the gene, it does not mean you will for sure get the disease. Also, if you don't have either type of gene...
  4. Juliet
    The latest studies suggested that you're supposed to introduce gluten to celiac gene positive children (not necessarily celiacs - they just have the gene) between 4-6 months and breastfeed the whole time - not before and not after. (quick link to one of the many articles particularly on gluten introduction: Open Original Shared Link - quick link to breastfeeding...
  5. Juliet
    Our son was seemingly gluten free for about 3 months, but I still noticed that he was occasionally still acting like he was getting gluten somewhere. I finally narrowed it down to the toothpaste he was using - it was Oral B toddler toothpaste which they say they cannot guarantee is gluten free. I switched to Colgate toddler toothpaste and all of his problems...
  6. Juliet
    Just to let you know, if your 5 year old son is on a gluten free diet for more than a couple of days, the blood test may come up negative. According to Dr. Michelle Pietzak, you need to have the equivalent of two pieces of wheat bread every day for about 2-3 months in order to get a fairly conclusive blood test. With you having Celiac disease, the easiest...
  7. Juliet
    He is a cutie, and I understand completely your concern, as well as his parents. When we first found out our son had Celiac disease a year ago, it was devastating for me thinking of all the things he would miss out. But after the initial sadness, I was glad to see my son finally be healthy and playful again. And I read Dana Korn's book whose intro was...
  8. Juliet
    My daughter is just over a year old (not quite 13 months) and my son 3 (he's the celiac). Because of his condition and age, I'm keeping her on a gluten free diet, too. Some of the things she can eat that are convenient snacks: Wagon Wheels (you can get these at the grocery store in the baby aisle) Puffed rice cereal (I use the Whole Foods brand, it...
  9. Juliet
    There's also a hot quinoa cereal that's pretty good, and an instant chocolate hot quinoa cereal.
  10. Juliet
    My son (who was two years old and awake for only 3 hours total every day before going gluten free and looked like one of the starving kids with the distended bellies) got his energy back in 9 days - and we were making mistakes that whole time (Rice Krispies, O's cereal made from oat flour, other things w/ malt). He didn't nap at all (he still normally takes...
  11. Juliet
    From what I understand Fruit By The Foot is OK. I don't know about other brands, though. I normally get the fruit leathers from Trader Joe's (I don't know if you have one where you live). As for oatmeal, you can get some uncontaminated sources of Oats like from glutenfreeoats.com, but it's expensive! Some people have stated that McCann's steel cut oats...
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