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Juliet

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Latest Celiac Disease News & Research:

Everything posted by Juliet

  1. Juliet
    So far my son hasn't had any problems with cross contamination from that particular brand of rice crackers. Depending on the facility, the separation within the factory (as long as they're not sharing machines) is often (but not always as we have seen by the reactions some of the people on this board have experienced) pretty good so that the products made...
  2. Juliet
    You can make a lot with the Pamela's baking mix. Just check out their website www.pamelasproducts.com for lots of recipes. Almost all are good. And if you found waffles she can eat, you can make things like peanut butter sandwiches with them, too. Also, you can make roll ups with cheese and sandwich meat - my son loves them. There's also a couple of...
  3. Juliet
    It differs sooo much from person to person, and then there's also the "cumulative" effect - small amounts that as individual doses which may not register add up after a time and cause a "visible" reaction. Who knows. You know for a certainty they had some gluten with the toppings on the pizza, but other than that your guess is as good as mine. My son reacts...
  4. Juliet
    I just found a recipe for gluten free play dough (or as it's called on the can "Kids Play Clay", too, on the outside of my Clabber Girl cornstarch can: 1 cup salt 1/3 cup water 1/2 cup Clabber Girl Cornstarch (or I'm sure, any cornstarch) 1/4 cup cold water food coloring (optional) In a medium saucepan, mix salt and 1/3 cup water over medium heat...
  5. Juliet
    Last time I checked, both Dove & Peeps are OK. Also, all of See's Candies, except for their malt truffles, are gluten free. None of the Godiva chocolates are.
  6. Juliet
    I've been using a flour mix of equal parts sorghum flour, white rice flour, and tapioca starch, along with baking powder (and sometimes baking soda) with salt in order for things to rise, that has worked really well with quick breads, pancakes, muffins, and ebelskiver. You just have to make sure you have enough other proteins, like eggs, butter, yogurt,...
  7. Juliet
    Also, which Enviro Kids cereal are you feeding her? It's my understanding only four are gluten free: Gorilla Munch, Panda Puffs, Koala Crisp, and Amazon Flakes.
  8. Juliet
    Congratulations! I know how it feels to have seen your child so sick and to later know that you now both are on the right track.
  9. Juliet
    Our pediatric g.i. talked about dairy issues at the beginning and had us crush up Lactaid and include it in his meal every time he had dairy for the first month. He suggested it could take longer than that, but our son was having no problems with dairy after a month of being gluten free.
  10. Juliet
    We got an official diagnosis with our doctor for our son and not Enterolab, but that doesn't mean I wouldn't have used it. I honestly didn't know about it then, but it seems that a lot of people trust the place. As for gluten free food, I know of two gluten-free mac & cheese mixes (Annie's, which is traditional orange color, and DeBoles White Cheddar...
  11. Juliet
    In the US, Colgate supposedly is gluten free, and so is the Tom's of Maine toothpastes.
  12. Juliet
    And make sure your 3 year old will actually EAT the pizza, or else all this consternation amounts to nothing. My 3 1/2 year old doesn't like pizza 95% of the time - not because it's gluten free but because it just has too many things piled up on it that he refuses to even take a bite (he's become a very picky eater since the day he turned 3). So last time...
  13. Juliet
    The gene test only indicates a predisposition to Celiac Disease. At least 1-2% of the people who have Celiac Disease do not have the HLA-DQ2 and HLA-DQ8 genes.
  14. Juliet
    From what I've read, the recovery time takes longer the older you are before getting diagnosed, particularly if you've had the disease for awhile before receiving the diagnosis. For children they say it takes about 6 months completely gluten free before the intestines are fully healed; for adults it can take up to 2 years. (It sounds like your daughter...
  15. Juliet
    There's a full spectrum blood test that's supposed to be done to rule out Celiac Disease which includes more than just Iga. In fact, I thought I read on another post that the Iga levels were the least accurate for testing. Plus, at 5 years of age, the tests aren't very accurate as well. You can do the Enterolab tests, including the gene test, but some...
  16. Juliet
    The problem with the blood test, particularly when the child is under 5, is that it can often give false negatives. This is even the case with the biopsy since if they don't get an area which is damaged, it will look like there isn't a problem when there is. You will probably want to continue to test for other possible problems like colitis or Crohn's,...
  17. Juliet
    (Double post)
  18. Juliet
    Gabriella, there is definitely a mourning process that occurs when your child is first diagnosed with Celiac Disease, and every once in awhile this will pop up again even when you think you've fully accepted it and moved on. But I promise, it gets better. I had the moment of crying in the grocery store, too, but at least cooking at home now is actually...
  19. Juliet
    Behavioral issues were not a problem when my son was first getting sick from Celiac Disease. Now that he's been gluten free for so long, if he does get a little gluten from cross contamination (as I witnessed first hand last weekend) his behavior is ATROCIOUS, then he gets diarrhea.
  20. Juliet
    That's exactly how my son's poop looked when he was being exposed a lot. He also had the discolored teeth, reflux, and abdominal pain.
  21. Juliet
    When my son was super sick with the disease and hospitallized, his CBC was normal; he was not anemic and had no noticeable mineral defficiencies. From an x-ray they did see that he was blocked in his intestines, but that was it. Only the TTG levels and some test done on the liver was there any indication that something was wrong and that it was probably...
  22. Juliet
    Just remember for the Celiac Disease blood tests, your child will need to continue to eat gluten (for an adult I was told about 2 pieces of bread a day, so maybe 1 piece for your child????) everyday until the tests are done. Otherwise you are at an increased risk of getting a false negative. And several people made the comments that you need to get a full...
  23. Juliet
    I don't know of any websites for children, but Dana Korn's "Kids with Celiac Disease" is a great book to start on how to adjust your life and also explain it to your child. There is also a support group possibly near where you live: ROCK (Raising Our Celiac Kids). You can find the website and see if there's a group near you: https://www.celiac.com/st...
  24. Juliet
    After our whole ordeal with our son, we switched from our older, more experienced pediatrician who continually ignored our concerns to a younger pediatrician, too. He actually doesn't know as much about Celiac Disease as even I do, but he works with me, explains exactly what he's doing and why, and if he doesn't know for sure he admits it. He works with...
  25. Juliet
    And you mentioned about problems with lactose - our pediatric g.i. said often when people have active celiac disease they can't digest lactose since it's the first enzyme to go. Our son could not digest milk well at all when he was first diagnosed, but after a week and a half of being gluten free, he was drinking milk without any problems.
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