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sunshinen

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Latest Celiac Disease News & Research:

Everything posted by sunshinen

  1. sunshinen
    Does anyone else have a reaction to the Endangered Species chocolate bars? I ordered the Dark chocolate with almond and cranberry in bulk, and they seem to consistently make me ill. As far as I know I don't have any other food sensitivities.
  2. sunshinen
  3. sunshinen
    Starbucks communications with me have not mentioned a chance for a mere "inadvertent, undetected cross-contamination", but that "No drinks are gluten free" (Period. All he wrote, literally.) And in a second communication that due to cross contamination issues they will not say which drinks do not have gluten as an ingredient because they do not consider any...
  4. sunshinen
    I keep banging my head against this wall... I really miss Starbucks, but they are definitely taking the CYA! approach on allergens and gluten. ... In a really irresponsible way, I think. They don't publicly announce that all of their drinks are probably contaminated, so the poor souls who naturally assume coffee beans and milk should be safe are putting themselves...
  5. sunshinen
    Anyone who says the diet is always easy is either 1) gluten-light not gluten-free (perhaps without realizing the difference), 2) in a utopian routine they never alter that involves the most perfect, well-informed restaurants, family, and friends ever; 3) not absurdly, severely sensitive and doesn't feel every mistake by others preparing their food; 4) someone...
  6. sunshinen
    I could tell a difference within three days (but that's not always the case, as many have noted), but it was almost a year before I felt the full benefits of the diet. There were so many benefits that I didn't know enough to hope for. I just thought I was getting older (even though I was plenty young). It was just a slow gradual improvement, until...
  7. sunshinen
    Mistakes don't always mean that they don't take you seriously. Even with the best of intentions, people are human and make mistakes, especially when they really don't know what they're doing in the first place. If you are going to let someone else do the cooking, it's always good to ask questions about every ingredient of every dish. You can make this...
  8. sunshinen
    Yeah, I've been getting sick a lot lately and it always seems to be after Starbucks. That's why I hate not having a published list to check. Are the mocha's really safe? What about the latte's? What about the soymilk they use? How do we know if anything changes? Does anyone else have issues after a trip to starbucks?
  9. sunshinen
    Here is the idea I posted. You can do a search for gluten free and find several suggestions for gluten free food. Open Original Shared Link
  10. sunshinen
    Personally, I find it appalling that Starbucks refuses to publish a gluten free list. But now they are taking ideas and letting people vote for them. So go vote for a gluten free list and snacks! Open Original Shared Link Edited to add: There are several suggestions for gluten-free foods, but since the reason they have said they don't publish...
  11. sunshinen
    After a glutening, do you ever have abdominal pain that lasts 7 days? It's on the right side of my navel, which seems like it might be the large intestine. I thought I had food poisoning last Tuesday, but with food poisoning the symptoms usually let up after a day or so. I'm still feeling nauseous and uncomfortable.
  12. sunshinen
    Does anyone who does not have a major celiac gene have confirmed DH? I have a friend who is gluten "sensitive" but does not have the classic celiac gene. He recently cheated and three days later woke up with bumps that look like little bug bites with a water blister at the head. (The genetic test looked only for the classic "celiac" genes and not any for...
  13. sunshinen
    Yeah, canker sores were a constant in my life before going gluten-free. Now they seem to flare up when I've had multiple glutenings in a row. I'll just reiterate the absolute wonders of Lysine. I take tons of it when I start to get symptoms and the sores heal in a couple days rather than a couple weeks. No exaggeration. It makes a huge difference, but...
  14. sunshinen
    you might also want to cut lactose out and see if that helps. for the first 6 months lactose caused a lot of stomach pain and bloating for me. still does if i have had a few accidental glutenings in a row.
  15. sunshinen
    Yeah, beer gets me. Lol. I've discovered since I switched from drinking mostly beer (the non-gluten-free kind) to drinking wine and liquor, "hangovers" aren't nearly as miserable as I once thought they were.
  16. sunshinen
    For me, it's about focusing on the positive. I feel GREAT when don't have any gluten. I am protecting myself from cancer, diabetes, and other autoimmune conditions that can be caused by ingesting gluten. I definitely went through some mourning stages. It is a life change, and a hard one. But one that is entirely for the best. You will live healthier, happier...
  17. sunshinen
    I didn't believe I had to watch my shampoo. Until I switched brands (from one that turned out to be gluten free anyway). I started getting sick again and could not figure out what it was. Finally I realized the timing was consistent with when I had switched shampoos. I went back to the old brand and got better. Being stubborn, I tried the new shampoo again...
  18. sunshinen
    Biopsy is considered the "Gold standard" for diagnosis, but it is not the only way to get a diagnosis. Dietary response can be enough if you have a good doctor. You can also do a gene test to see if you carry the gene for celiac. The combination is considered a good tool for diagnosis for people who cannot tolerate the gluten challenge. From the reading...
  19. sunshinen
    Sounds very familiar to me, too.
  20. sunshinen
    Symptoms can definitely be intermittent and change in response time for both gluten and lactose. Sometimes lactose gives me severe stomach pain, sometimes nothing. I have never vomited from it, but I wouldn't be surprised if some people do. I'd suggest getting him tested for gluten and lactose or doing an elimination diet. Testing might be the way to...
  21. sunshinen
    Here's a list of links of gluten-free and/or ingredient info. (It's a wiki, so feel free to add to it!) Open Original Shared Link
  22. sunshinen
    Anyone have suggestions for eating in NYC?
  23. sunshinen
    I always lose weight when I go off the pill. Fortunately, I lose it more quickly than I gain it when I go on the pill.
  24. sunshinen
    I second that. A bike that's too big can cause all sorts of weird issues. A good fit and a good seat can work wonders!
  25. sunshinen
    You might be lactose intolerant as well. Food issues often cause heart palpitations. Having them checked out is not a bad idea, just to be safe. You might want to try something for heartburn and see if that helps.
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