sunshinen
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Latest Celiac Disease News & Research:
Everything posted by sunshinen
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ARCHIVED How Do You Resist The Temptation?
sunshinen replied to jamrock's topic in Coping with Celiac Disease
I'll spare you my symptoms and get down to strategy. I was in the exact same situation. I picked up the cake and walked it across the hall to someone who is more familiar with my illness. He wasn't in his office at the time, but when he came back and saw it sitting on his desk he burst out laughing and said thanks. Worked out better for both of us... -
In Reston, you can eat at Uno's, Outback, and Carraba's. (The server can make a difference, especially at the Outback. ) If you head to Tysons, there is also a Maggianos in the mall that even has gluten free pasta! There are some local restaurants that have just developed gluten-free menus for their restaurants, Open Original Shared...
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ARCHIVED To Be Gluten Free Or Not?
sunshinen replied to Sal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmmm... that's largely up to you and your determination of whether the diet is worth it for you, both long and short-term. It does seem to prove a sensitivity. Many people will go off of gluten and then go back on it with no reactions or side effects whatsoever -
ARCHIVED To Be Gluten Free Or Not?
sunshinen replied to Sal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, sadly on an elimination diet, it is usually the coming back onto the problematic food that you realize what your body doesn't like. It's like having an allergy to a cat and living with one. You may have all sorts of the long-term affects of allergies (sinus infections, fatigue, general inflammation, asthma, etc.) but you don't get the huge red... -
ARCHIVED To Be Gluten Free Or Not?
sunshinen replied to Sal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You might want to look into candida being the culprit. This would make your body respond negatively to gluten in terms of the type of testing you had, but would require some steps in addition to watching your gluten intake to get rid of. -
ARCHIVED The Emotional Side Of This
sunshinen replied to Anonymousgurl's topic in Coping with Celiac Disease
it is completely normal to feel afraid of living again. i think the root is 1.) the unfamiliarity of it, how foreign it can seem, and 2.) fear that as soon as you really start to live, your health will disappear again. when you have been sick for a while the good days start to seem like hoaxes, like sick is normal and well is just a cruel joke that won't... -
ARCHIVED Gluten-free Beer By Bud
sunshinen replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I've called Trader Joe's, Whole Foods, and Wegman's... none have it. So I wrote headquarters to request it, but so far the responses have been pat answers that don't promise anything. Edited to add: Just got a response from Wegman's: Hurray! But don't these people realise they'd do better getting it out before the holidays? -
ARCHIVED My Enterolab Results Are In....
sunshinen replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jerry, I highly recommend going to your HMO and getting more tests done. In essence you have paid for one opinion, and that should be enough to get them to pay for the gold standard testing. By the time I had learned about celiac I had been gluten free for too long to do the biopsi and I regret that I didn't have one. A negative won't necessarily tell you... -
things to look into: tinkyada and glutino pastas are the best I have found kinnikinnick breads and etc. are the best I have found (Open Original Shared Link) start with simple, plain foods without add ons and then build on your menu as you start to learn the ingredients that hide gluten. it's a big change and it's hard to learn. you will learn about...
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ARCHIVED Gluten-free Beer By Bud
sunshinen replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Grrrr.... I can't find anyone carrying this, and even my requests for it don't seem to be that important on their own. So everyone contact your local stores and ask them to carry this. Especially if you happen to be in the Northern Virginia area. Or if anyone in this area knows somewhere that is carrying this let me know!! -
I'm getting the feeling that most people don't know what the neti pot that Sara said she uses is (because people keep suggesting irrigation stuff). So for everyone else, if you have any reason to irrigate your nose, I HIGHLY recommend trying a neti pot. It makes getting more liquid through your nose fairly easy and it makes the process much, much, much...
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ARCHIVED I'm Struggling.........
sunshinen replied to Mountaineer Josh's topic in Coping with Celiac Disease
Really??!!! I'll have to look into this. Everthing I had seen said New Grist was the best, but after trying it I pretty much decided my beer days had come to an end. I'll still carry one around the deck sometimes, just to feel normal again, but I can't bring myself to finish them. If anyone has some good recipes/places to get ingredients for brewing your... -
sinus infections were the bane of my pre-gluten-free days. since going gluten free i have yet to have one that required antibiotics. but yours may be firmly seated, and it may require the extreme measures of antibiotics. but here are some things to try first. i take lots of olive leaf extract, vitamin C, and probiotics when i feel one coming on. if that...
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I don't know if it is connected. But my sodium levels were always low before I went gluten free. I have not had any tests since to see if they are normal now.
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ARCHIVED My Stomach Is Making The Worst Noises!
sunshinen replied to skinnyminny's topic in Related Issues & Disorders
More than likely it's just your food working it's less than smooth way through the digestive track. I go through phases where this happens, and my period definitely affects my GI system. You might want to try some digestive enzymes when you eat and eat smaller meals more frequently. -
ARCHIVED New - Is It Worth It?
sunshinen replied to DownWithGluten's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's a big IF and one that can be very difficult to determine. If something else is going on in your body, it can become hard to digest just about everything, and it seems likely gluten would be one of the first things someone whose system is breaking down would have trouble with. Some people will do better on a gluten free diet, even if they are not celiac... -
ARCHIVED New - Is It Worth It?
sunshinen replied to DownWithGluten's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i would suggest either doing an all out food allergy test or an elimination diet, because it very well may be some other food that is the problem. if it is gluten, it is definitely worth it. but you never know, not everyone who is sensitive to gluten has to avoid every speck. there are many people who are sensitive to gluten, but can still have limited... -
yep, yep, yep.
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ARCHIVED Is Skin Prick Test Accurate-
sunshinen replied to diapason05's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, go get tested! Could be the best thing you ever do for yourself! -
ARCHIVED Enterolab Test--should I Do It?
sunshinen replied to Ksmith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, so great to see someone who wants you to be tested to know more about it rather than to be tested because they don't believe you need to be on the diet. It is recommended that celiacs have follow up tests to make sure that you are successfully healing. In this sense it might be smart to either go to a GI specialist or Enterolab. Since Enterolab seems... -
ARCHIVED How Would You Feel?
sunshinen replied to blueeyedmanda's topic in Coping with Celiac Disease
She sounds quite rude. And I would have been pissed, but we have to remember that even after multiple conversations, people forget. They don't have to live with it, and I find even the most well-meaning don't always remember. The best thing you can do is not take it personally, but not let it slide either. Go talk to her about it, remind her of your... -
ARCHIVED Vegetarian Nutrition
sunshinen replied to ravenselene's topic in Coping with Celiac Disease
mmm... coconut milk lentils black bean tacos (corn tortillas, and vegies as desired) Amy's brand has vegetarian and gluten free options including a great chili (make sure it is labeled "gluten free" as there are different versions and some cans are processed on equipment that processes wheat) Trader Joes has some vegetarian and gluten free Indian pre... -
ARCHIVED Heavy Periods
sunshinen replied to Looking for answers's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used to take BCP to control cramping and bleeding. I could never stand to go off them for more than three months (3mos. seeming to be the time it took my body to adjust back to "normal"). But I quit taking them about the same time that I went gluten free and have had no problems. I have some mild cramping, but nothing near what it used to be. It's great... -
ARCHIVED Validity Of The Saliva Test
sunshinen replied to fontgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Actually, you should definitely consider a positive diagnosis a win. It will be hard at first, but as you say, it can explain and FIX so many health problems, including some of the other food intolerances and some of the hypoglycemia. Since you have given up most carbs to begin with, you won't even have that much to sacrifice. And there are gluten free, multi... -
Fried rice would be bad because soy sauce is usually made from wheat. There are gluten-free soy sauces, and PF Changs is one of the best restaurants with a gluten free menu (IMHO). Oat flour is probably contaminated because many places that process oats process wheat and often is grown on fields that have grown wheat, leaving some wheat growing alongside...