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nora-n

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nora-n

  1. nora-n
    The high total IgA could be the reason for the grey zone Ttg IgA. The test is dependent on IgA
  2. nora-n
    Try with some fact pages, like http://www.cureceliacdisease.org/faq/what-are-some-of-the-symptoms-of-celiac-disease/
  3. nora-n
    The EMA test is pretty specific
  4. nora-n
    The EMA is only positive with celiac
  5. nora-n
    You are double DQ6, which is more a gluten sensitivity gene We have had at least two celiacs with DQ6 here your Ttg-IgA was negative DGP was not run I think, nor EMA
  6. nora-n
    Yes, I agree, go gluten free. Especially because the rash went away
  7. nora-n
    did you have both the 0201 and the 0302 beta chain and the halv DQ2 (05*) alpha that belogns to the 0201 beta positive? Otherwise the results give no meaning, as one has only two beta chains and two alpha chains. "there were three HLA things -Dq2, DQ5, & Dq8 and a fourth whole celiac item" The DQ5 would have been 0101in alpha and 0501in beta But of...
  8. nora-n
    By the way, the tissue trasnglutaminase-3 is the antibody involved with DH. (celiac in the skin) (and the ttg-6 is for antibodies in the CNS) Those cross react sometimes a bit with the ordinary celiac test Ttg-2, sometimes not. Interesting tests. By they way, do you have DH? The diagnosis is via skin biopsy of healthy skin while you still eat...
  9. nora-n
    According to finnish research, many old people get diagnosed with celiac, and people get celiac even though they are not young children all the time. They found 3% of the tested old people to be positive with the Ttg test when testing a lot of old people. Not just young children get celiac disease.
  10. nora-n
    Half a DQ2,2 detected (the alpha part, 0201) here the increased IEL explained Open Original Shared Link
  11. nora-n
    And it adds up when drinking or consuming a lot. (that was the original question here, how much is 20ppm in a given amount of food/drink)
  12. nora-n
    there is a DH folder here
  13. nora-n
    smri, yes, you have DQ2,5 from each of your parents. Not sure one of them has the normal DQ2,5 in cis since they did not find 0501 , but testing is not totally perfect but still it is DQ2,5
  14. nora-n
    was by chance the DGP test ordered?
  15. nora-n
    hayley the 05 belongs to 0201 and is 2,5 the 03 belongs do 0301 and is 7.3 smri there are two 05 0201 which are two DQ2,5 Beckyhux, they tested for 02* in beta, and found it, looked for DQ8, negative, and looked for 05* in alpha, not found So it is either 0202 DQ2,2 which is a celiac gene with less risk, or 0201, half a DQ2,5
  16. nora-n
    testing if it is possible to post DQ DQ DQ Freq Serotype cis-isoform Subtype A1 B1 %Open Original Shared Linkrank Open Original Shared Link α5-β2 2.5 05:01♣02:01 13. 16 2nd α2-β2 2.2 02:01 02:02 11. 08 3rd α3-β2 2.3 03:02♠02:02 0. 08 Open Original Shared Link α3-β4 4.3 03:01 04:02 0. 03 03:02♠04:02 0. 11 α4-β4 4.4 04:0...
  17. nora-n
    Here is the chart to decipher everything: Open Original Shared Link
  18. nora-n
    How high/low is your total IgA? We have seen that some have lowish IgA and it is reported as normal.
  19. nora-n
    they were looking for bleeding with iron that low, and blood transfusion not helping
  20. nora-n
    it just means they tested with a test that does not discriminate between 2.2 and 2.5. Instead they look for the 05* in alpha. Here in this context it means he has either half a DQ2,5 (= the 2.1 beta ) or has 2.2, which is a celiac gene too, but with less risk for celiac.
  21. nora-n
    IgG type antibodies take a long time to go away, and can take a year or so to go down to below the range after going gluten free
  22. nora-n
    Also, it looks like the blood test for tissue transglutaminase IgA was negative. Now you might be IgA deficient, or your body cannot make much IgA because the immune system does not work well. This is also typical with small children.
  23. nora-n
    Beckyhux, the question on 0201 or 0202 just means they tested with a method that does not discriminate between them. Instead they test if 05* is present in the alpha chain.
  24. nora-n
    only 92% have DQ2.5 and DQ8, which are the official celiac genes. Th rest have other genes, or half. Call the lab to get the full results. Several people here have gotten the full results. --- Here is a paper on why DQ9 is a celiac gene, and DQ2,2 and DQ7, and DQ2,3 The labs will report those are not celiac genes..... Open Original Shared...
  25. nora-n
    here is some more info on these T cells: Open Original Shared Link a pdf on the bottomof the page
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