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nora-n

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nora-n

  1. nora-n
    could also be hyperparathyroid, or Sjogrens like the other person said
  2. nora-n
    I would say it is important to get tested, otherwise it is not definite and you might let gluten sneak into your life sometimes in the future.... what kind of country is that, is it europe, mediterranean, asia?
  3. nora-n
    Due to lots of celtic blood, they have a lot of celiac in Austria. They often know more about celiac than over in Germany.
  4. nora-n
    I am in Europe. Over here in northern Europe, last year they changed the testing. Now children under 18 do not need to be scoped provided the blood test (Ttg-IgA) is 10x the upper limit on two occasions.
  5. nora-n
    I would recommend DGP IgG, that one is very specific for celiac. Over here in Europe they often use Ttg-IgA and DGP-IgG and total IgA, those three.
  6. nora-n
    that was a strange description of the gene test....can you get the actual result, or phone the lab and ask for the result? Here is and explanation of HLA DQ: Open Original Shared Link As you see, DQ2,5 and DQ8 are pretty common so it does not mean much. We usually have two DQ (there is a constellation where the DQ2,5 is from one half each, though...
  7. nora-n
    I would ask for the DGP IGG test as well, they are standard now together with the Ttg-IgA over here in northern europe
  8. nora-n
    I have heard about the wine thing, that some can avoid the worst of symptoms by drinking some wine! About labeling, I have seen swedish labels where the wheat starch was not listed on top of the list. Here the ingredients must be listed in falling order by weight, but not so over there I guess. (I do not tolerate wheat starch either, nor milk) Also...
  9. nora-n
    Here is an entire paper on negative Ttg and positive DGP, (but on children) Open Original Shared Link
  10. nora-n
    I see they did not count the IELs, nor did they do any immune cell studies on the biopsies. Often they only do that at university hospitals. Open Original Shared Link
  11. nora-n
    Yes I was thinking about you and especially your daughter. The experts who wrote this, were the same that participated in the pioneer studies about genes and celiac.
  12. nora-n
    We think they missed celiac in your biopsies. How many were taken, and how many did they look at? Did theycount the number of IELs? Did they do the new tests, immunohistochemistry? The sample has to be frozen for that.
  13. nora-n
    Open Original Shared Link Sometimes a question about DQ9 crops up
  14. nora-n
    Since the test back then only showed DQ2, then it means the other parent has DQ8. It looks like mother has DQ2&DQ2 (but not sure two are present) and father must have DQ8 AND DQ2 There is a very very slight chance the test back then missed DQ8 in the mother since that test for DQ8 is not so sensitive, at least back then.
  15. nora-n
    The gene tests are only about the risk for celiac. You do not really need to switch the kids to gluten-free since they have no symptoms or problems. But do keep testing them for celiac every three years if they continue eating gluten.
  16. nora-n
    your lab results are DQ 9 and DQ 5, since 03* or 02* 03* means DQ9 and 01* 05* means DQ5. The labs are looking for the pairs: 05*02* and 03*0302 Open Original Shared Link There is at least one DQ9 celiac here on this forum, as DQ9 is very close to DQ8, but the risk for celiac with DQ9 is less than with DQ8 or DQ2
  17. nora-n
    Hi, there are good charts at wikipedia! Open Original Shared Link Basics: people have two beta chains and two alpha chains. Even having half a DQ2,5 gene, 05* increases the risk for celiac just as an example. You have DQ2,5 and DQ6 (which was called DQ1 before, because DQ5 and DQ6 have 01* in the alpha chain and they could not discriminate...
  18. nora-n
    Bone aches can also be hyperparathyroid, the tests are PTH and calcium. And, yes, the blood tests are way too wide (like with thyroid)
  19. nora-n
    I think this is such a constellation: Open Original Shared Link Sorry for bumping a old thread
  20. nora-n
    IgA IgG IgM ate classes of antibodies, just general tests. Now the celiac tests are like deaminated gliadin IgG or tissue transglutaminase IgA or endomysium Ab Also vitamin D is often lowish with celiac, and iron/hemoglobin or ferritin too.
  21. nora-n
    the total IgA is about half or a quarter of normal, so you can double or quadruple the ttg number I think, and then he falls into the positive range. Yes, the low total IgG means the IgG type tests are not valid either. Same issue. Yes, low antibodies is actually a sign that the child has celiac and cannot make enough antibodies.
  22. nora-n
    About dating, you might actually find someone who also wants to eat gluten free! But many ordinary restaurants can accommodate gluten free if you ask them. Even some pizza places. The smoking thing is not so good.... Some with celiac also have ee, eosinophilic esophagus, inflamed esophagus. They might need to eliminate some other food stuff they...
  23. nora-n
    can you elaborate on "antibodies off the charts" also which celiac tests were run Note there is also something called non-celiac gluten sensitivity, which acts exactly like celiac
  24. nora-n
    As for finding things to eat, think low-carb cookbook! Low-carb is mostly gluten free anyway. The whole family can eat those things. you do not have to buy all those special gluten free (starchy) items. But first you need to get tested properly.
  25. nora-n
    you definitely need the new deamidated gliadin tests. Here they do the ttg IgA and the DPG IgG as screening tests.
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