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nora-n

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Everything posted by nora-n

  1. nora-n
    intersting.
  2. nora-n
    hi, I think the HLA testing is closely related to the HLA DQ testing for celiac, but not identical. Anyone with access to lists of lab tests??? Skylark? Here is what we get tested for, DQ2 and 8 Open Original Shared Link but the charts on HLA DR also explain the alpha and beta chains. Here more on HLA and they have an example of DQ2 from Ireland...
  3. nora-n
    my tests were negative too, but I had been gluten light for a long time, and did not get another blood test after 5 weeks off gluten, just a biopsy of the gut and that was negative, and I got no description of the gut biopsy, nor the number of IEL, nothing, just negative after five weeks. (theya re gonna change that around here since that is not according...
  4. nora-n
    About horses, at least here they only eat oats, which are usually quite gluten free. The hey and straw here is probably oats. At least I have not reacted to the horses and the stable. I am at the stables occasionally and would notice a difference, since I react do wheat dust and barley dust too.
  5. nora-n
    note that some labs only test for DQ2 and 8. Some choose to test privately through Enterolab, and they get the results of both beta chains.
  6. nora-n
    "slight elevations in Ttg" What were the numbers? And what was the total IgA? The EMA is a IgA type test only, by the way The Ttg is not often positive with patchy celiac, the most common form of celiac nowadays. It may be positive only in about 30-40% of cases of patchy celiac. For patchy celiac, and early celiac, they have developed the deamidated...
  7. nora-n
    I just want to comment that the ttg test is specifically developed to look for total villous atrophy, or lots of tissue damage, so a weak positive does mean there is a lot of tissue damage. Biopsies can miss the celia lesions. Celiac nowadays is typically the patchy kind, so a negative biopsy does not say much. They just missed the spots. There was a...
  8. nora-n
    Some people get the private Enterolab tests when the ordinary celiac tests are inconclusive, the stool test is for ttg and maybe antigliadin in the intestine, where it appears first. About DH, if you get a diagnosis for DH, this is automatically a celiac diagnosis.
  9. nora-n
    now here they have started to diagnose children without biopsy if they have had two very high blood tests for celiac. The reason they often demand a positive biopsy, is that here in northern Europe the government health insurance pays more than 300 dollars a month if one is biopsy proven celiac, so the gastros in the whole world have to follow the same...
  10. nora-n
    you need to be back on gluten fro at least six weeks, not two weeks for a positive gut biopsy. And two slices of bread is for a child, as the recommended amount of gluten per day is at least 0,3 grams per kg. The latest recommendations I have seen is 0,5 grams per kg. It works out more like half a bread to do enough damage for the biopsy to be positive...
  11. nora-n
    I recommend getting the new and better deamidated gliadin tests, both the IgG and IgA versions.
  12. nora-n
    We had some discussions here on what causes falsely negative testing, and taking any kinds of steroids will cause the villi to re-grow (and cause negative ttg as it is only supposed to be positive with serious villi damage) Also, b-12 probably causes villi re-growth and may cause negative ttg tests. Maybe other things too. Now the new deamidated gliadin...
  13. nora-n
    this is a new and very specific test. Now were you off gluten off and on beforehand? That could explain the low numbers.
  14. nora-n
    wow that must be a lot of gluten, since the pills are so tiny and wheat starch now is around 20ppm or less. (the gluten-free goods manufacturers got the suppliers to understand that ALL gluten-free flour now needs to be purer, so they changed the process and started to make purer wheat starch) (they use wheat starch based gluten-free foods here that test...
  15. nora-n
    Agree, with the EMA being positive in this mix, this looks positive. The ttg alone could be positive with some other issues like liver disease.
  16. nora-n
    I have heard some got sick from caugh syrup, but rarely ordinary pills.
  17. nora-n
    the free t4 is awfully low!! Just missing the bottom of the range by one decimal. You might be hypothyroid, but one can have tests like that when having a flu or a cold (and it normalizes afterwards) (free t4 is usually in the middle of the range or higher)
  18. nora-n
    hotincleveland, the EMA test is totally specific for celiac, so I do not understand the need for biopsy. Also, many places they have stopped doing biopsies for celiac, they just need two positive ttg-2 tests. I read on the swedish celiac patients facebook page that they stopped doing biopsies for celiac now, and some places in Norway, just two positive...
  19. nora-n
    some have neurological symptoms from gluten google hadjivassiliou and he explains the antibodies and mechanism
  20. nora-n
    the high calcium does not fit with celiac, but with possible hyperparathyroid and the low vitamin D is also typical for hyperparathyroid. But, hyperparathyroid may also be related to celiac (celiacs are a little bit prone to develop parathyroid adenomas)
  21. nora-n
    here is where to get french gluten free pastries Open Original Shared Link
  22. nora-n
    I had such IgG tests. mine were of course negative for gluten and milk since I did not eat them. But positive for kiwis and molluscs although i did not eat them.
  23. nora-n
    in the old days suspected celiacs with negative biopsies arranged to get their biopsy slides sent to Dr. Fasano, for a second opinion, and they got their diagnosis. But your slide is already positive for celiac. Maybe get an appointment with Fasano or someone that knows about celiac? He and the rest of the department sees lots of celiac patients. Second...
  24. nora-n
    In Spain, they know about gluten and celiac, and there are lots of gluten-free items in larger stores, including the cheap store mercadona. Mac Donalds has gluten free hamburgers in Spain, in all mac donalds restaurants. Print out some cards. It is quite possible to eat gluten free in France too. About Enterolab, their tests are IgA but if you do not...
  25. nora-n
    when I did the maths, it was 6 slices a day to reach 0,3 grams of gluten per kg The damage is often also proportional with the amount of gluten, and reverse proportional with time. Meaning it will take longer time before one gets a positive biopsy on smaller amounts of gluten.
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