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nora-n

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Everything posted by nora-n

  1. nora-n
    some order the gene test from enterolab, and the stool test for antibodies can maybe pick up antibodies to gliadin several months after going gluten-free. Enterolab cannot diagnose celiac, just gluten sensitivity.
  2. nora-n
    I have two DQ5, and there have been several others here with the wrong genes, and several with half genes. There is no stool test for celiac, but enterolab.com has a stool test for gluten sensitivity and you can order that yourself, together with the HLA DQ test.
  3. nora-n
    Can the allergist order the deaminated gliadin tests, both IgA and IgG versions? Those are the newest and most specific tests for celiac. Those would only make sense as long as you still eat gluten, so after a couple of weeks or so they might turn negative. You can also order the gene test yourself from enterolab.com and that could shed some light on...
  4. nora-n
    It is known that cortisone and the like are famous for making the blood tests AND biopsies negative for celiac. They use steroids for those with a severe form of celiac and that often helps. So maybe the immune suppressants can make the signs of celiac more obscure? I do not know. this would be a good question for experts. Those interpreting the...
  5. nora-n
    get both twins tested for celiac even though blood tests are not high
  6. nora-n
    there is no IgE test for gluten, only wheat I think But there is a test for gliadin, gliadin Ab IgG that they often do. Was it that one that was positive?
  7. nora-n
    yes it says gastric, and that usually means stomach, so it looks like they biopsied the stomach. The pill cam is known to show celiac clearly, flattened villi, atrophic villi, everything.
  8. nora-n
    there is a DH folder here, and you can read other stories there too. DH IS celiac, and a diagnosis of DH means a celiac diagnosis. The antibody responsible is tag-3, so ordinary celiac tests might not pick this up. I am so sorry the dermatologists did not pick this up.
  9. nora-n
    Here is a newspaper article about hidden hydrolyzed wheat in green tea soap in Japan causing allergic reactions: from today Open Original Shared Link "Wednesday, Nov. 16, 2011 Cha no Shizuku bars recalled Soap linked to 471 cases of wheat allergy By MINORU MATSUTANI Staff writer A mail-order soap has caused at least 471 people to suffer wheat...
  10. nora-n
    they ran the deamidatd gliadin IgG test, and it probably would have been elevated in case of celiac and IgA deficiency. My guess is that your gluten intake was below the threshold for the tests to show positive. The celiac tests are designed to only be positive in case of a lot of villi damage. maybe a gene test next?
  11. nora-n
    Yes, right now there are heated discussions on facebook , swedish celiacs about glucoses etc. We have had them on norwegian forums too, but not so much about glucose. The majority does seem to tolerate wheat starch and glucose, but the minority, we do not know how many, do not tolerate wheat starch or things that are originated from it. Maltodextrin...
  12. nora-n
    I must admit I never tried large doses of amitriptyline! But the side effects are noticeable after startup and when one starts up again. I read on an pain forum too, and several people there have good help from amitriptyline. And some fibromyalgia patients. Both of these groups are typically on larger doses.
  13. nora-n
    Yes, several people have posted they had to get the full results themselves! I was just thinking, we have these huge discussions in Northern Europe on the celiac boards and celiac facebook pages about difference in sensitivity (wheat starch vs food not originally made from wheat, typically glucose and other sugars also bother the sensitive glunten intolerant...
  14. nora-n
    It is interesting to follow gene test results over time. Some years ago they usually only did the beta chains, then Dr. Lewey contacted labs to get them to test alpha chains since he had two patients who were positive on biopsies and symptoms, but negative beta chains. He suspected they had half a gene (which is usually 05* in alpha) Now we see that...
  15. nora-n
    Amitriptyline--you have to keep taking it, then the sleepiness should go away after a while. If you start and stop and start again all the time you get sleepy.
  16. nora-n
    I have never seen any requirement for the antigliadin IgG for celiac Just wait til the proper celiac tests come in, the ttg and DGP
  17. nora-n
    no, it just looks like you also have ttg-6 antibodies (because of neurological symptoms) too and allergy to corn and maybe other food intolerances. Or Lyme disease, or something else. What do the alternative practitioners say? They can be spot on. There are also some gluten sensitivity forums where those who are very sensitive and have neuro issues from...
  18. nora-n
    I am in Europe, and we very sensitive celiacs and DH sufferers definitely get sick from wheat starch! Especially those with DH.
  19. nora-n

    ARCHIVED Need Help

    nora-n replied to TTNOGluten's topic in Coping with Celiac Disease

    too much starch I think. When your villi are damaged, the enzymes to digest sugars and starches cannot be made since they are made at the tips of the villi. Check out the emergency suggesteions at scd diet (cooking a pot of chicken broth) for example (scd was the old form of celiac diet before the celiac diet was rediscovered by doctors, and it worked...
  20. nora-n
    You lack celiac tests, and the newest one is the daminated gliadin test, make sure you get at least that one
  21. nora-n
    normal atopic eczema typically is inside the elbows etc, whereas DH typically is on the outsides.
  22. nora-n
    Could be celiac or gluten sensitivity. what "auto-immunity"-tests did your ob/gyn run? The food intolerance test, was it IgG antibodies? The normal tests for celiac are: tissue transglutaminase IgA Endomysium Ab deaminated gliadin IgA total IgA to check if IgA type tests are valid Also, b-12 and vitamin D and ferritin tend to be lowish...
  23. nora-n
    here is a huge discussion on hidradenitis suppurativa: Open Original Shared Link
  24. nora-n
    here is one of the discussions about HS
  25. nora-n
    I would suggest maybe the new and more sensitive deaminated gliadin IgG test. Celiac tests are known to be not so sensitive in early celiac.
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