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nora-n

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Everything posted by nora-n

  1. nora-n
    the ttg test which you had, is the main test for celiac. The old antigliadin test is not a variation of the ttg test, nor a different part of gluten. The ttg test is only positive when there has been significant tissue damage, and it is a marker for tissue damage. it is not an antibody-to-gluten-test.
  2. nora-n
    Just google hadjivassiliou, and check the articles and links here: Open Original Shared Link wikipedia is very very conservative as usual, they are about the same as cochrane.
  3. nora-n
    yes, the wikipedia page is really good. About Enterolab, they say it is cheaper to only test the beta chains. In my opinion, they then only miss a few with half chains, mostly some DQ7 who can have 05* in their alpha chains, but not all. (it is enough to have the 05* in alpha to have an increased celiac risk, but in combination with DQ2,2 it actually...
  4. nora-n
    I have read postings by people who had 5 biopsies before getting a positive one, and postings by people who finally got the pill cam afrer several negative biopsies, and the celiac was in the wrong end of the small intestine....it is so easy to miss. Nowadays it is typically patchy. Also, I have DQ1 and those have a different mechanism of gluten intolerance...
  5. nora-n
    Kinda looks like DQ5 and DQ2,5, but I do not understand that MV thing. For the alpha and beta chains (often they list the beta chains first, and then the alpha chains) (and one has two DQ genes, so sometimes they call one of them 1 and the other 2) you can go to the HLA DQ page on en.wikipedia.org and they have a good chart. There have been postings...
  6. nora-n
    In Germany, they send suspected thyrodi patients to ultrasound, and if the gland is darkish, one gets the hashimotos diagnosis anyway. The TPO antibodies attack the gland and the gland is changed into inactive connective tissue which shows up dark on ultrasound. Another way to diagnose is fine needle aspiration, and in Sweden patietns get sent to FNA and...
  7. nora-n
    Now this makes it unclear again, as 05* in the alpha chain means DQ2,5. The first posting here said 02* in alpha and 0202 in beta, which is DQ2,2
  8. nora-n
    Yes, I understand the report now, it is DQ2,2 since they looked for any 05* in the alpha chain and there was none. (05* in the alpha chain would be DQ7 in this context) Several people have psoted about 2,2 so we do know that some celiacs have 2,2, also wikipedia says that some celiacs have 2,2. Still, it would be interesting what the other gene is...
  9. nora-n
    makes sense, so the second was the result they reported. In that case i would contact the lab and ask for the complete results, as several people here have reported the lab did have all the beta and alpha chains but only reported what was thought to be relevant regarding celiac. if one goes to wikipedia, they have several articles on DQ2 etc. and some...
  10. nora-n
    No, wheat IgE has little to do with celiac, but some have both.
  11. nora-n
    Sounds like you only found doctors that look ONLY at the blood tests staring at them, without considering you already have a diagnosis. This usually happens if the doctor is from the MD school. (endos are also part of that school) But there is a totally different medical direction, yes, and they have DO as their title, doctor of osteopathy. They ahve...
  12. nora-n
    I know a bit about those gene tests; the problem is the many ways labs report them. Now those two different reports do not match at all, except for that they agree on that there is a DQ2, the first one says it is the celiac DQ2,5 but the second report says it is the less celiac prone 2,2. Now what exactly does the lab report say? Some people here...
  13. nora-n
    You mean your antigliadin IgA test (which you did not list here but mention in the heading) could have caused your IgE tests to come back in the grey zone? I do not think IgE has anything to do with IgA.
  14. nora-n
    Can you get Elaine Moore
  15. nora-n
    Yes, yes, if you already have a diagnosis of graves disease, you should always be treated as a thyroid patient, and not be judged by an ordinary TSH screening test. TSH triggers antibodies very much, and you could get another episode of graves for that reason. Check here: Open Original Shared Link by the way, how were you treated last time, what...
  16. nora-n
    On another forum, there was this man who was very ill from celiac, had positive endoscopy, and went strictly gluten free. Because of celiac-related health problems, he was back in hospital (he had edema from lack of nutrients) and then they did another endo (different hospital) and it was normal , and this was just four or six weeks after, I do not remember...
  17. nora-n
    the 5 extra cytomel will lower your TSH so that you can have problems getting an increase of the Armour dose....t3 lowers TSH quite a lot.
  18. nora-n
    can you get the blood tests while you still have antibodies? They disappear very quickly. The damage in the small intestines is typical patchy. So they might have mised the spots.
  19. nora-n
    two months back on gluten might not even be enough, can you get the biopsy done after three months? I was five weeks back on gluten, and was negative. I read on forums, that often the biopsies are oriented wrong on the slides, so a negative biopsy does not mean much either. I had lots of problems with my esophagus too, and I had to eliminate milk...
  20. nora-n
    Only 5% of newly diagnosed are under-weight, and 30% are obese. https://www.celiac.com/articles/1077/1/39-of-Celiac-Disease-Patients-are-Overweight-at-Diagnosis8212A-Full-30-are-Obese/Page1.html nora
  21. nora-n
    Of course the tests will be negative after several months off gluten. Even two-three weeks off gluten can cause negative biopsies.
  22. nora-n
    None of these are celiac tests.
  23. nora-n
    Yes, that is because of the "freshly activated T cells" One needs to be gluten free for them to appear, and they even are doing research on them to devise a new celiac test, as only celiacs get them. The idea is that a suspected celiac has to eat gluten free for at least a week, then back on gluten, and afterwards they just need to take some blood and look...
  24. nora-n
    Roda, here in Scandinavia it is known that at least 15% of celiacs do not tolerate the gluten-free oats. And, on the forums there are some people from time to time who report not tolerating some other starches, like corn or whatever. There are even webpages about that. The mainstream celiacs do not agree, but there are enough reports to make one think...
  25. nora-n
    The best list about other diseases and conditions I find is on the wikipedia page for HLA DR.
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