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nora-n

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Everything posted by nora-n

  1. nora-n
    yes, the more the better. Now many labs have the new deamidated gliadin test, which is supposed to be better than the gliadin antibody test
  2. nora-n
    yes, if you have DH that is diagnostic for celiac. Lots of people are not aware of that. And on DH forums some people do not think one needs to go gluten free with DH. They are wrong.
  3. nora-n
    Your ttg test had a number , it was not 0. This could be a clue. You need much damage to your intestines for the ttg to bepositive, and many labs have a very high cutoff for the ttg test. There was an article here on celiac.com where researchers sent blood from diagnosed celiacs to many different labs, and several labs could only find half of them, and some...
  4. nora-n
    Could be one of the other bowel diseases like ulcerative colitis, or morbus crohns. But I hope it is only celiac, as one gets cured with just the gluten free diet. Now the tests to ask for are: total IgA tissue trasnglutaminase IgA Read this link, and watch the video: Open Original Shared Link
  5. nora-n
    Yes and the point is that one needs much damage for the tests to be positive, and for a challenge many people need a lot of gluten for the tests to be positive. And, time matters too. The longer one is on the gluten challenge, the more patients turn positive. Herer we can buy a home test at the pharmacy, so it might be possible to go on the gluten challenge...
  6. nora-n
    4 slices may be way too little. You have to do the math. The latest recommendations are 0,5 grams gluten per kg per day. I did the math, bought a bread to weigh it and do the math. I weigh 54 kg and 0,5g/ kg works out to very very close to half a loaf a day.....8 slices.
  7. nora-n
    Yes, they definitely should have done the ttg IgA, since it is known that the ttg IgG alone picks up only a few of the celiacs. And now more and more labs do the deamidated gliadin test, ask for all tests, ttgIgA deamidated gliadin IgA antigliadin IgA EMA
  8. nora-n
    A TSH of 2,3 is very very typical in PCOS. But, normal TSH is very very close to 1. On the thyroid forums, lots and lots of patients post they went very hypo as their TSH went above 2. In Germany, the upper end of normal in many labs has been for years 2,5, and some labs have 2,12. Now you could get synthroid or better Natural Thyroid if you go...
  9. nora-n
    Son must be DQ7,5 and DQ2,5, and you are DQ7,5 but they did not tell you that. They did not report the other 05* alpha chain, they just reported positive for 05 and often labs report it this way. We know he must be double 05* in the alpha alleles since you have the DQ7,5. See the other answer on this forum here, the other lab did report the DQ7,5 as...
  10. nora-n
    I read somewhere that all PCOS patients are hypothyroid, it comes with the PCOS. But the degree varies.
  11. nora-n
    OK, I am one of those that has read a bit on HLA DQ here. I can spell it all out for you. You have both alleles, that means you have one HLA DQ2 gene, and the alleles are alpha 0501 beta 0201. Now they did not test very specific, just 05* and 02* but if you have both 05* and 02* then you are by deduction DQ2,5, the most common gene found in celiacs. I...
  12. nora-n
    A huge glitch. Some have both the IgA and the IgG type tests positive, others only have the IgA versions positive. Maybe they did not understand the way these tests should be done, that is, if the total IgA is well within the normal range, then run the IgA type celiac tests. Maybe they thought that one then does the IgG type tests. Stupid.
  13. nora-n
    What exactly are your numbers? I have been on the thyroid forums for ten years, and normal TSH is very very close to 1. And labs have huge ranges, and many patients are quite symptomatic when their TSH is above 2 already, and teh ranges ofte go up to 5, which is way too high anyway, 2,5 is a better range. Some labs have already started to use 2,5.
  14. nora-n
    Hi tarni, some people with negative biopsies have gotten a video capsule endoscopy and it did show celiac after all. With the pill cam they can see all of the intestinal tract. Celiac is typically patchy, and that knowledge is only a decade or two old.....before they demanded that ALL of the villi were aboslutely gone , to give someone a celiac diagnosis...
  15. nora-n
    just go to enterolab.com and poke around there, and you find some interesting research about microscopic colitis and gluten. Microscopic colitis is often definitely caused by gluten and you need to go gluten free. They should have told you that when you were diagnosed with mc. At one hospital I know of, all mc and colitis patients are put on a gluten...
  16. nora-n
    Hypothyrodism is very very common in celiacs, as the thyroid antibodies are triggered by gluten. Hypothyroidism alone causes heavy periods, and anemia. There was even this mystery disease article in the bmj (british medical journal) about such a case, she had a hysterectomy because of heavy periods, and her heart stopped during the surgery and so on...
  17. nora-n
    There was someone on the norwegian forum with the same question. They contacted the manufacturer, and they said it definitely was positive. The celiac expert Matti M
  18. nora-n
    Yes, WHAT IgG tests were done? Celiac tests are : Ttg IgA and IgG deamidated gliadin IgA and IgG antigliadin IgA and IgG EMA, they look for IgA with an electron microscope and there is no IgG version of that one, but if they list it, it is most likely the ttg test
  19. nora-n
    Hi, I just wanted to mention that often those with DH are of the very sensitive to gluten celiacs.
  20. nora-n
    Now bird feed is known to even raise antibodies of people who feed them outside in the open, so I guess bird feed with gluten inside the house is not okay for someone super-sensitive.
  21. nora-n
    For DH, they have to look for DH in a special way. I doubt they look for DH unless prompted. They have to look at the sample in an electronic microcope I think, and look for fluorescent IgA deposits somehow, if they took the sample somewhere where there has been a lesion, the IgA is used up and they cannot diagnose DH.
  22. nora-n
    You are quite hypothyroid, and in Germany the uper end og the TSH range is 2,5 in some places, and 2,12 in other places. Please go over to any thyroid forum. The lisinopril is for high blood pressure, and your blood pressure is high becaue you are hypothyroid. When properly treated for hypo, the blood pressure goes back to normal by itself. I...
  23. nora-n
    There was someone here who had a negative antibody test and a positive biopsy, and it turned out it was bacterial overgrowth instead. Gluten free did not help. About the gene test, a lot of people have the DQ2 and 8 genes, maybe a third of the population, so a positive gene test does not diagnose anyone with celiac,obviously. The DQ2 gene test is quite...
  24. nora-n
    Hi, genew tests are about the risk for celiac, and HLA DQ is only about 40% of the risk, the most risk is being a close family menber of a celiac. And, maybe 10-20% of the population or more have DQ8 or DQ2, but only a few of these are celiac. Also, one can be mistyped, are you wondering about mistyping? Open Original Shared Link
  25. nora-n
    No need for immunologist, as it is not uncommon for celiacs to be IgA deficient. And, being IgA deficient is actually one of the hints about celiac. Now the IgA type tests, any IgA based tests, are not valid if the IgA is low, even inside the range, just low within the range, since the results are dependent on the actual level of IgA. Here in Europe...
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