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nora-n

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Latest Celiac Disease News & Research:

Everything posted by nora-n

  1. nora-n
    yes, many celiacs have had mouth ulcers etc. Low b-12 is also common with celiac. In b-12 deficiency the red blood cells typically are large.
  2. nora-n
    If the doctor or the nurse said that you need both genes postive, this is utter nonsense! THere is even one constellation where only one gene is possible, that is having the HLA DQ2,5 gene in trans! (made up of 05* in the alpha chain on one gene and the 02* in the beta chain on the other gene, like with DQ7,5 and DQ2,2)
  3. nora-n
    the ttg test can be elevated with some other forms of cell damage, the ttg is a marker of cell damage.
  4. nora-n
    Here it is the ttg test that counts, and it is very positive. Please do not get confused by the old-fashioned gliadin Ab test having a low number, as it is the ttg test that matters here. Your biopsy will 99% sure be positive.
  5. nora-n
    If you were positive on the deamidated gliadin test, you need no more tests, as this is the latest and best test for celiac!!! The nurse did the right thing in ordering that one!
  6. nora-n
    I was off gluten for seven months and then one morning I woke up and was not so terribly fatigued anymore.
  7. nora-n
    I had this rash too. The diet is not very hard, but one ends up cooking and baking more than before. The worst part is eating out. One really has to talk to the waiters or cooks or the people who made food, if you visit relatives or friends, and get them to tell you what they used. Best if they understand how strict the diet must be (no cc either...
  8. nora-n
    Maybe ask her to show you "celiac cells" in a medical textbook??? There should be numerous images of them in textbooks! if they existed. I wish there was something as simple as "celiac cells"! If they would have bothered to order the IgG versions of the ttg or whatever tests they ordered, they might still have been positive. IgG type antibodies tend...
  9. nora-n
    the article citing a study where they resarched the performance of the ttg test, about different labs not finding celiac in biopsy-proven celiacs´blood tests, was actually here on celiac.com. (they cited the article referenced by one of the others here earlier, Open Original Shared Link note that some of these tests only pick up 11% of celiacs (those ...
  10. nora-n
    Sounds like someone in that office said those are not his children, but then they should prove those are not his children, just an idea? But that would be just an ordinary paternity test needed. by the way, nice paintings.
  11. nora-n
    okay, good to know. Here the range is something like 3 and I had 1,4 or so I think.
  12. nora-n
    I know about someone who went to Dr. Greene and he took a biopsy sample and put it in a test tube with gluten to see if it made antibodies, and this would be a sure way for diagnosis while on a gluten free diet, but I have not heard of others getting tested like that elsewhere. Another thought, I have read some news flashes here on celiac.com or somewhere...
  13. nora-n
    We have had some cases here where the tests really were positive, and one case where the hospital used the wrong reference range, so you need to get ahold of the written test results. In the case of the wrong reference range, they figured out here that the hospital had been telling patients for a while that the tests were negative, whereas they really...
  14. nora-n
    Alison, you are on the right track. But there are many celiacs who only had the antigliadin test positive, and a negative ttg test. In the old days, they did not have the ttg test yet, they only had the antigliadin test and the EMA test. Then when they invented the ttg test, the people promoting it said the old antigliadin test is unreliable and...
  15. nora-n
    What were the original test? Was it antigliadin IgA, or tissue transglutaminase IgA, or endomysium antibldoy test? If you are on a gluten free diet, the blood tests will be negative, no mater if they are old or new. What new test are you talking about, is it the new deaminated gliadin test; and I cannot imagine any celiac test costing 900 dollars...
  16. nora-n
    Yes, this is an example of low numbers on the blood tests after going gluten free before testing. Note that the numbers were not 0. One should get tested before going gluten free. Some people who recently went off gluten choose to pay for the Enterolab tests, which are designed to pick up gluten sensitivity (not celiac, for they are more sensitive...
  17. nora-n
    Amongst those diagnosed with celiac, only 5% are underweight, while 39% are obese, so the typical celiac is overweight. Now all your symptoms sound celiac. Also, there have been some discussions on boils, more precisely Hidradenitis suppurativa, being caused by gluten, and it goes away on a gluten-free diet but doctors do not know that.
  18. nora-n
    Be sure to get the celiac IgA gliadin Ab done, and the IgG gliadin Ab, and the tissue translgutaminase or the new and better deaminated gliadin test done. All of those are more specific for celiac than the IgG gliadin test. If you google ford gluten you can read that he considers that one very suspicious for gluten intolerance at least. (I mean the antigliadin...
  19. nora-n
    He does not have the main celiac genes, but there have been several people here with symptoms and DQ2,2. (the main celiac gene is DQ2,5, 0201) I think he and his mother are very gluten intolerant, but tests may not show ordinary celiac. The antibodies to eggs, milk and soy are also typical for gluten intolerance. Note that the tests by Enterolab really...
  20. nora-n
    Was it IgE or IgG or IgM antibodies? ordinary allergy is mostly IgE. The immune reaction with celiac is different, as it is not an allergy. I think that with wheat and gliadin etc. allergy, you must be even more strict with the diet than celiacs, as one also reacts to airborne gluten containing grain dust.
  21. nora-n
    I think there is more on gluten sensitivity here: Open Original Shared Link and there are books about gluten sensitivity too. And, non-celiac gluten sensitivity is described.
  22. nora-n
    I think it was just around that time some started to test the alpha chains as well, so they might not have tested for them. Another comment: Some here actually phoned the lab, and they did have the full report but only reported the short answer to the doctor. So maybe they can tell you if they just used the rapid test kit that only tests for the...
  23. nora-n
    Yes, non celiac gluten intolerance acts like celiac but there is another yet unknown mechanism. IgE allergies would not cause malabsorption, though.
  24. nora-n
    I have no idea about the oats. Yes, you have DQ2,5 and DQ2,2.
  25. nora-n
    we have had several people here with half a celiac gene, and they only started testing for the alpha chains recently because there are some percent with half genes, like 6% I think I remember. Another 2% do not have any of the DQ2 or 8 alleles . also, we have had some few here who were mistyped, one had a diagnosis and wanterd to check which genes she...
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