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nora-n

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Latest Celiac Disease News & Research:

Everything posted by nora-n

  1. nora-n
    Hi I do not know anything about that, and my posts show up right away. About the total IgA, here in Europe they automatically do that if they order the IgA celiac tests in most places.
  2. nora-n
    Actually, they found that as people get older, more are celiac! In Finland, they found that about 3% of old people were celiac by screening, and just around 1% of young people. Open Original Shared Link
  3. nora-n
    You might be celiac, or gluten sensitive. The other gene is DQ6, which is DQ1, and there are even a couple of forums for people like that out there. Many of them are DQ1. Being DQ1 and gluten sensitive is not just gluten sensitivity light, it might be more severe than celiac. They can react to smaller amounts of gluten than the DQ2 celiacs. If you...
  4. nora-n
    Here in europe, we usually put children back on gluten for a gluten challenge to get an official diagnosis. That works normally with DQ2 and DQ8. But many can have neuro issues from gluten, and antigliadin attacks the brain, etc and does not neccessarily cause the typical gut issues alone. There are more ways gluten can do harm that just in the gut...
  5. nora-n
    I know about one person who was very ill with celiac, and had a positive biopsy. Then he ended up in a different hospital after going gluten free. After some weeks gluten free they happened to do another biopsy which was clear. They denied he could have had celiac in teh first place and refused to read the diagnosis or any paperwork from the first biopsy...
  6. nora-n
    That is DQ7 and DQ6. But DQ7 differs from DQ8 by just a tiny tiny bit, and most DQ7 but not all have the 05* alpha chain. So ou could have half the DQ2,5 gene, the 05* alpha chain. If you try some other gene testing, they might confirm it. Those that test for alpha chains, mainly the 05* alpha chain. It is officially a celiac gene but lesser...
  7. nora-n
    I looked at your gene test again, and some labs do not do the full test to differentiate between DQ2,5 and DQ2,2, but they do it the other way around. They reason that if the 05* alpha chain is missing, but the 02* beta chain is present, you have the 2,2 gene (which is celiac prone, but to a lesser degree) There have been several symptomatic peole here...
  8. nora-n
    I ate at Taco Bell a couple of times (fast food mexican style food) and did not get glutened. I am very sensitive.
  9. nora-n
    I have searched through pubmed.com, and have not found any reference about gluten challenge that involved a shorter time to a positive biopsy than six weeks. ( some new methods, one involves a three day gluten challenge and then looking for freshly activated T cells, only done in research, and another thing done in research, this one: Open Original Shared...
  10. nora-n
    Also, some have hemochromatosis and celiac at the same time, especially people with celtic ancestors. These genes follow each other. I think anemia is often jsut the end stage of celiac, or close to it. My ferritin was 70 before my gluten issues, then 35 during, and is now at 100. But gluten triggered my hashimotos antibodies, DH antibodies, and...
  11. nora-n
    there are a few DQ6 who are officially diagnosed celiac, but not many. A couple have been here.
  12. nora-n
    You have HLA- DQA1* 01 HLA- DQA1* 05 HLA- DQB1* 0301 HLA- DQB1* 0502 which hang together as: HLA- DQB1* 0502 and HLA- DQA1* 01 which is DQ5 HLA- DQB1* 0301 and HLA- DQA1* 05 which is DQ7 Congratualtions, you officilly have half a celiac gene, half DQ2, the alpha chain of DQ7. The second one here with a confirmed half gene that I know about. ...
  13. nora-n
    There are some articles out there that point out that the 05* alpha chain in DQ7 is half a DQ2,5 and there is a risk for celiac, officially. I hate that Enterolab does not mention this. It even says that it looks like the 05* alpha chain contributes more to celiac than the 0201 beta chain, I seem to remember that clearly. But I think those bookmarks...
  14. nora-n
    check out this website: Open Original Shared Link
  15. nora-n
    About the gene test, DQ6 and DQ7, I ahve a reference that says that in sicily or somewhere, they found several DQ7 celiacs. Hre we have had some people with symptoms and DQ7. If you check the DQ charts at the wikipedia page for HLA DQ, you see that DQ7 actually ofteh have half the DQ2 gene, they have the 05* alpha chain. But they will be less celiac...
  16. nora-n
    The most common constellation with celiac is one HLA DQ2 gene (must find reference but noone here needed that) Open Original Shared Link explains more, with charts go on there to DQ2 "The vast majority of coeliac patients have one of two types of HLA-DQ.[22] This gene is part of the MHC class II antigen-presenting receptor (also called the human leukocyte...
  17. nora-n
    just a matter of days I think. I found I had forgotte all about it but I had notes.
  18. nora-n
    my knees hurt a lot on gluten and it went away off gluten and came back with the gluten challenge.
  19. nora-n
    Asthma meds often involve steroids (keep in mind you must take asthma meds like you are supposed to, or you get sicker and can get seriously ill) and if patients take any kinds of steroids, the celaic tests might be negative, especially the gut biopsies. False negatives. Maybe you just have to try to go gluten free without tests.
  20. nora-n
    most diagnosed celiacs everywhere have only one DQ2 gene, but I do not have any sttistics but it is so obvious that one certainly should find about 10 references quickly. Some few doctors say one needs two celiac genes but that is not tru with celiac. Other conditions need two genes, like hemochromatosis but 5% of hh patients do not have them. Other conditions...
  21. nora-n
    One must eat a lot of gluten daily in order for the ttg test to be positive. I did not know that when I was tested. With a lot, I mean at least 0,3 grams pure gluten per kg body weight a day, better 0,5 grams. And that for a long time, like at least 6 weeks, better at leawt 3 months before testing. Also, theydid not test your total IgA which MUST...
  22. nora-n
    I see. The argument about the risk of getting more autoimmune illnessess is quite weighty.
  23. nora-n
    Yes what happens is that you got something called freshly activated T cells. Several places are even doing trials on it, to develop a new kind of means to test for celiac. Only celiacs get this reaction. (freshly activated T cells)
  24. nora-n
    yes, the total IgA is not a celiac test. I have seen abstracts on www.pubmed.com where they put diagnosed celiac children back on gluten (something they used to do before....) and it took from 6 weeks to several years for all to relapse, but relapse they did. Another one said that most relapsed after six months. So it might take some while. I did a...
  25. nora-n
    Yes, flattened villi is often found on video capsule endoscodpies but missed in ordinary endoscopies. We have had several postings about that on various celiac forums. That means celiac. Your gene test I guess was positive since most people only have one gene positive and one does NOT need both genes positive simultaniously. We have seen postings...
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