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nora-n

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Latest Celiac Disease News & Research:

Everything posted by nora-n

  1. nora-n
    There recently was a study trying to find out why one area in the U.S. had half as many positive biopsies compared to the other half of the country, and the difference was how many samples were taken. Now the area where they took 4 or more samples while doing endoscopy, had twice as many diagnosed with celiac compared to where they only took about 2 samples...
  2. nora-n
    This is the most common celiac gene, also nicknamed HLA DQ2. (HLA DQ2,5) You have only one copy of the DQ2,5 gene. If you call the lab, they might have the result of the other gene (but it would not change things, since you already have the typical celiac gene) Those genes are just about the risk, they do not mean you are celiac. Lots of people have...
  3. nora-n
    I am in no way a HS expert, but it can even be in the throat! I do not remember if gluten is connected to WPW syndrome, though. Heart involvement is possible, though.
  4. nora-n
    Dr. Hadjivassiliou in England researches gluten ataxia, and if you google hadjivassiliou you find several of his papers. In the papers he always notes that about 20% of his gluten ataxia patients have DQ1.... Also there are at least three forums out there with very gluten sensitive people, and various neuro issues from gluten, and they often are DQ...
  5. nora-n
    the ttg test was lowish, so they did not test the EMA
  6. nora-n
    There would not be an original DGP result, since this is a new test. About the DGP IgG test: This one is known to be a very good test to check on someone following a gluten free diet, since it will be high before the IgA version gets high. We have had at lest one test result like this with the same circumstances here, someone who had been eating...
  7. nora-n
    the lactase enzyme is made on the tips of the villi, and in celiac the tips of the villi are damaged.....that is the connection with milk. But some people also develop a casein intolerance, which is not lactase related of course.
  8. nora-n
    Could also be hidradenitis suppurativa, just use the search on the forum. It is definitely gluten related.
  9. nora-n
    cystic acne, you mean HS, this is gluten related, and there are several threads about it on this forum. (hidradenitis suppurativa) Yes, several here have had huge gallbladder problems, even autoimmune liver disease is caused by gluten.
  10. nora-n
    the reflex with EMA most likely means that they first run the ttg as a screening test, and if it is positive, then they run the more specific and expensive EMA test. But they could have just done the new and very specific and highly sensitive DGP test, which has the added advantage that it is also designed to pick up patchy celiac. The ttg test only...
  11. nora-n
    Nowadays the most common form of celiac is the patchy type, but the ttg test is only for picking up total villous atrophy, and even then it only picks up 80% or less. The right test nowadays is the DGP test which is able to pick up patchy celiac. Lots of people report they got both the IgA and IgG versions done on the tests, and several people get all...
  12. nora-n
    I have two DQ1 and I am very gluten sensitive. Constipation is typical for celiac. She may get a diagnosis for non-celiac gluten sensitivity at least, which is something different but the doctors might buy it. Those with other genes rarely have totally flattended villi, but there have been several on this forum with other genes, and also half genes...
  13. nora-n
    sounds like they did the ttg IgA only, and planned to run the EMA in case the ttg IgA was positive. That is because the EMA is an expensive manual test involving electron microscope and monkey esophagus or umbilical cord and an operator.
  14. nora-n
    maybe it only shows on the number of IEL´s on each villi tip: Open Original Shared Link here it says that more than 4 IEL´s on a villi tip is abnormal. The fins have researched positive ttg and negative biopsies, and the conclusion is that this is celiac too.
  15. nora-n
    So they did not count the IEL
  16. nora-n
    In Denmark, doctors are very ignorant about celiac disease. You need to consume gluten on a regular basis before the biopsy of the small intestine. Yes, constipation is also a common celiac symptom. But, you may have this problem with opiates from gluten (and opiates are constipating) and that is a different reaction than celiac google gliadin...
  17. nora-n
    I am overseas, and the ferritin is the same measure, and the ranges look about the same, depending on the lab. On the hemochromatosis forums, they all have some form of gluten intolerance..... normal ferritin is closer to 20-30-50 or so. What is the total iron, and the transferrin saturation? And, the other celiac tests Vitamin D There is...
  18. nora-n
    there are even at least two-three forums with such people, and many are DQ1 over there. gluten sensitivity on braintalk, and on neurotalk, and glutenfreeandbeyond forums
  19. nora-n
    yes, this s a perfect TSH for most people
  20. nora-n
    Yes, that would mess with diagnosis.
  21. nora-n
    Here is what the report is talking about, note it said more than 40 IEL per 100 Open Original Shared Link "Lymphocytes are a type of white blood cell important in immune function. The typically appear as purplish circles on standard H&E type stain of intestinal tissue obtained from biopsy. · Specialized lymphocytes are present in the intestine ...
  22. nora-n
    I do not know for how long, but steroid effects usually last three weeks, and then the gluten damage has to start building up after that, in order to start getting positive on tests... I did take some low dose steroids too back then when I got ill from gluten, and I guess I tested negative for that reason too. They use steroids to treat those with refractory...
  23. nora-n
    about the sisters with all the health problems, if they take any steroids for the other issues, the celiac tests will show negative despite them being gluten sensitive.
  24. nora-n
    the drop in antibodies after going gluten free just confirms the diagnosis. you know there are some rare instances when the ttg is falsely elevated, so this proved it was gluten, and celiac.
  25. nora-n
    it is the DQ1 that makes this more severe.
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