Jump to content

nora-n

Advanced Members
 View Profile  See their activity

  • Posts

    1,490

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nora-n

  1. nora-n
    yes you should continue eating gluten till they take an actual celiac blood test, not allergy tests. I guess they looked at the stomach and found inflammation, and did not take a biopsy of the bulb of the duodenum, or, better, at least 4 biopsies. They better go online and check out celiac disease.
  2. nora-n
    Do you have low vitamin D or other issues like low iron etc? High liver numbers? A rash from gluten or Dermatitis herpetiformis, or neuro issues from gluten? I notice your AGA was positive.
  3. nora-n
    You have DQ5 (the 0101-0501 part) and DQ2,2 (the 0201-0202 ) Now before, they could not discern between DQ2,5 and DQ2,2, and the DQ2,2 people were considered celiac prone too. now they can discern, so first they said DQ2,2 was not a celiac gene, but then they said some do have DQ2,2. Anyway, there have been several DQ2,2 with celiac symptoms...
  4. nora-n
    IgA and IgG are just some general immunglobulins, the celiac tests are something like tissue transglutaminase IgA or IgG, or gliadin IgA Ab or the IgG version
  5. nora-n
    I ahve double DQ1 too, and usually we test negative on blood tests. But I have DH too (no diagnosis) and that does not need DQ2 or 8. The antibodies for DH are ttg-3, and for gluten ataxia are ttg-6 (there are tests for those but I have never heard of any one getting them)
  6. nora-n
    Here about the "biopsy was done some years ago and was negative" : Open Original Shared Link "Abstract AIM: To make a prospective assessment of close family members of patients with coeliac disease (celiac disease) by testing their endomysium (EMA) and antigliadin antibodies once a year over a period of 12 y and to investigate whether and when they...
  7. nora-n
    I have just done a search using gluten challenge in pubmed, and the time and the amount of gluten varies widely, from four weeks to a year till relapse. (probably even way more than a year too) It varies how long one needs to eat gluten for a positive antibody test, because the antibodies are made in the gut after the villi are damaged, and then the damage...
  8. nora-n
  9. nora-n
    Here in Europe we often do the gluten challenge and get an official diagnosis, but on this forum the views are that if you definitely feel better off gluten, you most probably have celiac or gluten intolerance. I think the S. Ceravisliae AB test is just for candida or the like and has little to do with celiac (but several of us do have antibodies to yeast...
  10. nora-n
    You have DQ5 and DQ7,5. The half DQ2,5 is the ,5 in the 7,5.....(the alpha chain) The DQ1 (which is DQ5 and 6) might make you very sensitive to gluten, by the way, even with neuro symptoms from gluten. There are even some forums with several DQ1 people and neuro issues from gluten. About the 0,5 grams gluten question above, I found my reference Open...
  11. nora-n
    Okay, must look for the 0,5 grams recommendations, I think I found it on pubmed, but there are several on 0,3 grams on pubmed. The 0,5 gram recommendations was the latest I found.
  12. nora-n
    yes you are lacking the IgG versions of the tests. Especially the deamidated gliadin IgG version. This one is very specific for celiac by the way.
  13. nora-n
    yes I think they want to rule out other things. You have had a "diagnosis" of IBS before so they want to check.
  14. nora-n
    a biopsy done years ago does not prove you cannot have celiac! What IgG tests were positive?
  15. nora-n
    To decipher the DQ genes, you can look at the chart at wikipedia, there is a good chart under HLA DQ and also one under HLA DR. Now you have "DQ Alpha 1 01,05 DQ Beta 1 03,5:01" From the charts you see they missed your 05 alpha chain, which is half a celiac gene, you are half DQ2,5, the alpha part. There have been some with half genes here...
  16. nora-n
    Recently they discovered that in parts of northern Aftica, up to 7-8% have celiac, and in the mediterranian countries 1% or more, and in India and Iran also. Just that they do not get tested because doctors only suspect celiac with northern Europeans. By the way, there is much celiac in Austria, which is not northern european.
  17. nora-n
    That positive test is the latest and most specific test for celiac, besides the old EMA test. It was developed to catch patchy celiac disease (since the EMA and the ttg tests are designed to catch total villous atrophy but nowadays most newly diagnosed celiacs have patchy celiac)
  18. nora-n
    I remember from the old days, people got the U of Maryland (where Fasano is) to review the slides and they got the diagnosis with symptoms and slight changes in the biopsy samples
  19. nora-n
    As far as I know, it is just another word for total IgA. Open Original Shared Link
  20. nora-n
    maybe they by mistake switched the biopsy samples.....because some of these blood tests are very specific for celiac.
  21. nora-n
    I heard of others with mild blunting, and they got diagnosed with celiac. Also, several people have gotten diagnosis with just increased intraepitelial lymphocytes. Did they ever count them? How many samples did they take?
  22. nora-n
    Many places in Germany have lowered the upper end of normal for TSH down to 2,5 years ago, and some have 2,15....I got very fatigued as TSH went above 2, so that is more like it is in real life.
  23. nora-n
    I was gluten free for 7 months befoere I woke up one morning and was not so terribly tired anymore. 4 weeks would be too short a time.
  24. nora-n
    I took a IgG test for 118 foodstuffs, and I was not eating gluten or milk, which I do not tolerate at all. Of course they were negative. Yeast was high, the only high thing. Next kiwi.
  25. nora-n
    Hemochromatosis is on the same gene as celiac.... So many on HH forums have to go gluten-free because it causes gluten intolerance anyway. Here is lots of info on HH, and you can be anemic and have hemochromatosis. The joint pains tend not to go away. Open Original Shared Link and go and read the forum there. HH is not so uncommon! And...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.