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nora-n

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Everything posted by nora-n

  1. nora-n
    research paper on gluten reactive CD4+ T cells a pdf on the bottom of this page Open Original Shared Link
  2. nora-n
    positive is above 10, and yours was almost there. Now the antibodies are locally in the intestines, and only the surplus ends up in the blood where it can be tested. Also, how much shows up in the blood varies from person to person. The intestinal damage does not really correlate with the blood work numbers.
  3. nora-n
    I think you have a typo, one of those is Ttg IgA Maybe you should have had the DGP test as well One of the tests is almost positive, so if you can get a biopsy done maybe go for it
  4. nora-n
    The lab´s comment was right! Good they ran the total IgA.
  5. nora-n
    On one of the forums I am on, there are two with lack of the enzyme to break down fructose. That causes a lot of gas and intestinal symptoms. it usually takes several years before a doctor tests for that. And several on th forums have non-celiac gluten sensitivity, for which there are no tests. It is probably an intolerance to some complicated starches...
  6. nora-n
    spinch, you work in a lab, you can ask the pathologist to perform the immunohistochemistry tests. The biopsy can look completely normal (but yours are not normal there are signs of inflammation . You had increased number of IEL or those inflammation cells I mentioned ) Bit if the imunohistochemistry is positive for immune cells, then it is a definite celiac...
  7. nora-n
    I have seen other numbers, like 20% are Ttg negative when there is total villous atrophy and 40% are negative on Ttg when there is patchy celiac (the most common form nowadays) The antibodies are made locally in the intestine, and just a little spills over into the blood, and the amount can vary a lot. Additionally, there is a rather high cutoff because...
  8. nora-n
    Someone on the delphi celiac forum had negative biopsies because of steroids. He/she was close to death but biopsy was only showing increased inflammatory cells
  9. nora-n
    Someone here posted about two-three years ago and was angry he later got diagnosed with microscopic colitis. His Enterolab tests had been positive for gluten sensitivity....and he could see no connection. We answered, that is what the tests initially were developed for. But that Fine also saw that the tests were positive for many others. He could not dismiss...
  10. nora-n
    The biopsy for DH will mostlikely be negative if it is near the blisters; it should be taken far from the blisters, and they recommend behind the knees or inside the elbows. The reason is the rashes use up IgA and they must biopsy a spot with IgA still intact
  11. nora-n
    the trans-DQ2,5 someone commented about, is made up from DQ2,2 AND the 05 alpha chain from DQ7,5. Obviously you have DQ9 and not 7. But DQ2,2 (the 0202 beta chain) in itself is a celiac gene, but 10x less than DQ2,5. DQ9 is also a celiac gene. Open Original Shared Link
  12. nora-n
    the celiac blood tests are antibody and IgA type tests, and the sickest patients do not make enough of those antibodies for the tests to work. I even saw references that 20% of biopsy proven celiacs with total villous atrophy have negative blood tests
  13. nora-n

    ARCHIVED Dh On Face?

    nora-n replied to Porcelina's topic in Dermatitis Herpetiformis

    There are also some posting on DH forums who have i inside the mouth. Ouch.
  14. nora-n
    the chest thing could be costocondritis (a typical symptom of hypothyroidism, and hypothyroid is connected to gluten since gluten trigger thyroid antibodies) I had that
  15. nora-n

    ARCHIVED Dh On Face?

    nora-n replied to Porcelina's topic in Dermatitis Herpetiformis

    Hairline behind ears and in the back here. By the way, Hidradenitis suppurativa is gluten-related too. But there probably has been no reseach verifying this.
  16. nora-n
    This is not an old test! the DGP test is the newest kind of tests. There are many discussions about the DGP tests, and often it is the DGP-IgG that is discussed.
  17. nora-n
    My daughter was in the hospital long time ago with severe stomach pains, so it could be pains because of celiac several people have mentioned left-side pain high liver numbers are also typical for celiac
  18. nora-n
    it could take several months off gluten to get well! Yes, one needs to stay on gluten till all the testing is done
  19. nora-n
    of course the biopsy will be negative after a while off gluten!! Where was that? Do they really tell patients their celiac went away?
  20. nora-n
    Everywhere in Italy they know about celiac, so you do not need any guidebook for eating out. just look at this discussion: Open Original Shared Link and other forums say so too
  21. nora-n
    over at a hyperparathyroid gb page, several are celiacs. They found some info and studies that also found some correlation. PTH draws the calcium out of your bones to keep blood calcium within tight ranges. But sometimes the parathyroids get stuck somehow and send out PTH without stopping.
  22. nora-n
    The immunglobulin A test is just a test for total IgA, not a celiac test, in case you wondered. All the others are celiac tests. Good you got all of them.
  23. nora-n
    I felt terrible as soon as my TSH went above 2. Don´t be fooled by the ft3, and the reason it is okay-ish is because when thyroid hromone is scarce (which the high TSH shows, as normal TSH is very close to 1) , the body increases teh amount of an enzyme that makes more t3 in order to squeeze out more active hormone from tight resources. The low ft4...
  24. nora-n
    There have been several postings about that here before, and even a low-normal total IgA can skew the IgA based celiac tests they said here. I do not know about the last question.
  25. nora-n
    There is a slightly elevated risk for hyperparathyroid for celiacs! (you mentioned stones) Get your calcium checked and glance at www.parathyroid.com
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