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RIMom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RIMom

  1. RIMom
    do a google search, but I'm pretty sure there is one in California. Unfortunately, he may fall through the cracks for camp. In RI, campers have to be 16 or younger and counselors have to be 24 or older. I would encourage you to help him find a local support group and a few restaurants that have gluten-free menus. good luck.
  2. RIMom
    Yes, it's great. I was a counselor last year and both my girls went too (ages 7 and 10 last year). I'm happy to answer any questions you have. The kids have a blast, the food is great... only complaint in my house, was not enough sleep, but it's only a week. You don't say how old you are, but if you respond back with more questions, I can be more specific...
  3. RIMom
    I would like to add to the great list for eating gluten-free in RI. Providence: Kabob and Curry Restaurant, Waterplace Restaurant (a Pinelli Mara restaurant... all their restaurants have gluten-free menus, even though they are not on line), Pizzaria Unos, Red Stripe in Wayland Square (has gluten-free french fries and Redbridge Beer, all their food is fab...
  4. RIMom

    ARCHIVED Seattle Area

    RIMom posted a topic in Gluten-Free Restaurants

    Hi everyone, just wanted to share our amazing success in eating out in Seattle on our recent vacation. We were traveling with two kids and my DH all of whom are gluten-free. We ate successfully at: Blackbird Bakery (yummy gluten-free berry muffins, chocochip cookies, and even fresh bread and rolls) and Casa Rojas (chips are freshly made and gluten-free...
  5. RIMom
    You sound like you are in great hands. Unless your son puts everything in his mouth I wouldn't worry too much. I arranged with school to keep a "goodie" bag of gluten-free treats in the cupboard so that if other children brought snacks to share (ie a birthday), she could have a pick out of her snack bag. We filled it with her choice of prepackaged items...
  6. RIMom
    New cereal spotted at Whole Foods last week. Called Penguin Puffs. It lists Kamut as primary ingredient, does not list Contains:wheat. I went searching on the naturespath.com website for more info. They are claiming that Kamut is gluten free. I sent them an email seeking clarification, but am confused. Also worried that one of the many label readers I have...
  7. RIMom
    interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).
  8. RIMom
    sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.
  9. RIMom
    we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it...
  10. RIMom
    Our local supermarket uses a Tsunami brand in store sushi maker guy. My daughter and husband successfully eat veggie combos (has seaweed wrapper, rice and veggies inside, they have single veggies or mixed ones). They can also usually eat the shrimp california roll (as long as it's not tempura or fried). The nice thing about getting it in the supermarket...
  11. RIMom
    I thought McDonald's french fries are not ok now..... Maybe the list is out of date. Can someone clarify
  12. RIMom
    Does anyone have a list of ok candy? I don't usually let my kids eat much candy, so I'm totally unprepared to deal with bags of unmarked candy coming in the door for Halloween. I know ingredients are on external packaging, but you don't get that. I really don't want to spend hours doing research or tell her she can only have M and M's. Anyone have an active...
  13. RIMom
    I challenged our doctors' insistence my daughter have a endoscopy. I said we had a positive response to a gluten-free diet and I didn't want to put her through it. He said the official line is he has to tell us to, but that "the most definitive diagnosis was a positive response to a gluten-free diet". He said if her symptoms come back or there are other concerns...
  14. RIMom
    I apologize for my earlier response, it was before I read about your other sensitivities. But, yes I agree, try the diet, and call the drug companies to ensure the drugs are gluten free if you insist on trying them. For many kids, gluten is an addiction and makes all so much worse for them. Make a huge deal about anything he tries, my friend calls it "no...
  15. RIMom
    It's all about substitution. my daughter was 4.5 when diagnosed. We went cold turkey. For the most part the whole house. I kept a few of my other daughter's favorite things, if and only if I had a comparable substitute for her. I use Tinkyada pasta, Whole Foods brand Sandwich bread, Lara and envirokids bars. Lots of rice, fruit, veggies and dip (she loves...
  16. RIMom
    We decided to make our house basically gluten free in December. As my 4 year old was diagnosed and my husband suspects he is Celiac as well. I keep a few whole grain things around for my 8 year old b/c I feel they are healthier (ie whole wheat bread w/ separate side of toaster oven) and granola bars with oats in them. But substitution is the name of the game...
  17. RIMom
    We were just there with no ahead reservations for any meals, and it was spring break. None of that mattered. Everywhere we went we were treated amazingly. Walk up to any cashier and they have a book with all ingredients for all foods served there. Identify yourself as having a child/family member with a food allergy/sensitivity. You will be immediately ushered...
  18. RIMom
    My 4 year old was diagnosed in December. The name of the game is substitution and being prepared. She never got really ill either, so talking about it "making her sick" doesn't work for us either. We do talk about her body not liking it even if her tongue or mouth does. The biggest confirmation you are doing the right thing is how she will act/look almost...
  19. RIMom
    I haven't done one yet, but my friend whose daughter has a nut allergy just did one in my daughter's second grade class. She brought in lots of food product packages and after explaining the allergy, she taught them to read labels and had them hunt for which ones were safe and which were not. The kids loved the "hunt" and my daughter now knows how to read...
  20. RIMom

    ARCHIVED Fabulous Protein Bar!

    RIMom replied to CMCM's topic in Sports and Fitness

    Go get those Lara Bars..... the reason the fat content is high is they are whole food, good fats, not bad or synthetic. They are full of nuts (depending on which one it would be walnuts, cashews, almonds, all of which are loaded with good fats your body needs). They have no trans fats or saturated fats, they are whole foods mashed together and they are really...
  21. RIMom
    I'm doing one next week and yesterday I went to www.babyshower101.com. they had great games, favors and much more. we are all set now. Good luck
  22. RIMom
    Find a local Chiropractor, nutritionist or Naturopath who sells professional grade supplements. I personally recommend Metagenics. They gear all their supplements away from gluten and have a very high rate of dissolve-ability. You can contact Metagenics directly if you search them on the web and ask if they have a distributor in your area (this will be a...
  23. RIMom
    My 4 1/2 year old was just diagnosed in December by blood test. We also got a lot of pressure from family and others saying it wasn't celiac until you did a biopsy. Finally met with the pedi gastro this week, and he said I have to tell you that this is the only true way to confirm it. He also said that having a positive blood test and having a positive response...
  24. RIMom
    Thanks, now that I think about it, she eats bananas pretty much everyday with peanut butter. The few days her legs really hurt, I think we were out of ripe ones. In anycase, we haven't had any complaints for the past few days and she is eating her bananas. She takes other supplements too, which I think helps. Sarah
  25. RIMom
    Has anyone experienced this with their Celiac Kids? My daughter (4 1/2 yr old) often says her legs hurt, especially at bedtime. Seems to be below the knees and above the ankles Used to be that was the time of day her tummy hurt, now no more sore tummies, but sore legs. Just wondering?
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