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April in KC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by April in KC

  1. April in KC

    ARCHIVED PANDAS

    April in KC replied to Bmann42's topic in Coping with Celiac Disease

    This is a very old thread, but I haven't been on the boards for several years. I logged on to look for more info on this. My husband and I both have Celiac Disease. We have three gluten-sensitive kids, and one of them also has PANDAS. I have met two other parents whose children have both Celiac Disease and PANDAS. They're both autoimmune conditions; I...
  2. April in KC
    You're sweet - my husband and I both have Celiac, and we hope when our sons grow up, they find such sympathetic girlfriends. Find out whether she wants you to attempt to cook for her at first, or if it will just make her feel nervous and pressured. Better yet, offer to cook WITH her, i.e. you'll cook if she hangs around to supervises. We do get so...
  3. April in KC
    If you're going shopping in a typical store (not a health food store with a special gluten-free section), here are some things to look for: Breakfast * Chex Cereals - there are five kinds that are gluten free. They will say gluten free on the box if they are gluten free. Lunch * Progresso Soup - if you do a search here, you can find out which Progresso...
  4. April in KC
    Sorry for posting something technical, but since I'm not a doctor, I wanted to go with a somewhat trustworthy source. Open Original Shared Link I'm sure there are better sources, but the abstract for this clinical research seems to imply that the inflammation from Celiac Disease itself can be partly to blame for cancers. I do think some of the increased...
  5. April in KC
    Welcome! Sounds like you could definitely be gluten sensitive. Yes, barley contains gluten, and yes, I think your old bread machine might have glutened you. The quantity of gluten Celiacs can safely consume is estimated by some as 20 ppm (parts per million) and by others as none at all! Unfortunately, the human immune system can be very sensitive...
  6. April in KC
    I went gluten free three years ago. I have Celiac Disease (30-lb weight loss) and DH, but some of my worst symptoms were neurological - dizziness, brain fog, stumbling, headaches, etc. When I first went gluten free, I felt great, but when I got accidentally glutened, the symptoms were terrible - I would fall asleep hard and have trouble talking/being coordinated...
  7. April in KC
    For years, my husband's symptoms were not very definite, but he definitely had "GI issues." He never thought he could tie it to a specific food, and he never knew when he was going to get sick. After going completely gluten free, he no longer gets sick. If he gets glutened by accident, his worst symptoms are always the morning after. It took going...
  8. April in KC
    Vitamin A deficiency can cause skin bumps almost identical to keratosis pilaris. Night blindness is another symptom of vit A deficiency.
  9. April in KC
    There are little "disposable" blood sugar kits you can buy at Wal-Mart (probably other pharmacies) for about $25 or less, much less expensive than a nicer permanent meter with memory. They have a limited number of test strips, but they do the trick if you just want to test your blood sugar for about a week. You should test first thing in the morning...
  10. April in KC
    Hi Fiore - I have read that a low-oxalate diet may help some women with vulvodynia. If you haven't already given this diet a try, you might scan the "high oxalate" foods on this list and avoid them: Open Original Shared Link (Please note that this list does not show a distinction between gluten free and non-gluten free foods.) I'd also encourage...
  11. April in KC
    I showed my dermatologist my thin, splitting/peeling nails, and she mentioned that Biotin (B7) helps some people, especially if their nails were not always like that (for some it's hereditary). I take a Kirkman multivitamin, but it only provided 15% of the RDA on Biotin. I recently added a 1000 mcg lozenge sublingually. It will take a few months for the...
  12. April in KC

    ARCHIVED Iodine

    April in KC replied to Mack's topic in Dermatitis Herpetiformis

    I guess I'm on both sides of this one. I found it very helpful to lessen iodine exposure for about six months after going gluten-free. It helped my DH go away and stay away. I would get noticeble flares after salty food or seafood. After avoiding iodine for some time, I developed some minor thyroid issues - I was starting to feel a lump when I swallowed...
  13. April in KC
    Marcia, I haven't tried salt loading, but I'll read up on OI and salt loading to see what it's about. My orthostatic hypotension is really minor...it happens a lot, but usually just causes me to feel funny and lose vision for a little while. I've noticed that inhaling/exhaling restores eyesight very quickly - the lights always come back on the exhale breath...
  14. April in KC
    Ding-ding-ding! Vitamin E was probably WHEAT germ oil.
  15. April in KC
    I had a lot of fatigue and insomnia issues prior to going gluten-free, and things got better but also really weird for about a year after going gluten free. I'm about 2 years in now - still have some issues, but overall things are better and better. I don't pull as many late-nighters now, don't take as many naps. RLS seems gone unless I'm glutened. I...
  16. April in KC
    Hypoglycemia and hypotension are worth checking out for the original poster...but I don't think they're the cause of my similar incidents. I do have occasional bouts of hypoglycemia, but the sensation is not quite the same for me. When I'm hypo, I feel lightheaded, shaky and very weird - but the glutening narc attacks are more like someone shot me with...
  17. April in KC
    The first year I was gluten free, "sleep attacks" or "narc attacks" (as a friend calls them) were a VERY common experience for me - always after eating, so the suspected cause was accidental glutening. Typically, I would start to feel sleepy 15 minutes to 1/2 an hour after eating. It would come on very suddenly. I'd have about 10 minutes where I could...
  18. April in KC
    If your DH is coming back, it would seem like the answer has to be gluten. I know it sucks, but what else is going to cause DH and mouth sores? I have both with gluten, and the only thing that causes them for me is gluten. (I tried a new brand of potato chips this week and started getting itchy - no more of those.) Could you get your Celiac antibody...
  19. April in KC
    Some might kill me for asking this, but have you ever done an intentional gluten challenge? My suspicion is that you would find out pretty quickly whether you have gluten sensitivity or not. Maybe not in a day or two, but probably within a few weeks.
  20. April in KC
    Hi Janelle - I have spent some time thinking about this. First I should say that my entire household is gluten-free, but it's a no-brainer as my husband and I both were diagnosed with Celiac Disease within one year of each other. Our kids' pediatrician wondered why we had more than one gluten-sensitive child - well, now we know! Such coincidences...
  21. April in KC
    A few thoughts: 1. Rice and potatoes have a high glycemic index. You might have subtle or not-so-subtle insulin issues, such as pre-diabetes or metabolic syndrome, or even undiagnosed diabetes. For pre-diabetes, it's not as simple as just checking your blood sugar. To study this possibility for yourself, you might look for a list of high and low glycemic...
  22. April in KC
    Yes, I can tell within half an hour, especially during my first year gluten free. I am a little less sensitive now that I've been gluten-free for much longer. Sounds like he doesn't get it or quite believe that it can be a significant problem. Perhaps take him to an "official" website like the National Institutes of Health (a government website...
  23. April in KC
    I recommend further reading here - and perhaps get a good book. Celiac seems to have a genetic component and also some unknown trigger, perhaps other genes, stress, illness, increased exposure to gluten, etc. If you draw a big circle with 100% of the population in it, you could draw a smaller circle with all of those with the HLA-DQ2 or HLA-DQ8 genes necessary...
  24. April in KC
    Sinecox - I just read your second post - I wanted to add a bit to my reply. It sounds like meals out, especially lunch, are high risk times/environments for you. I think you need to have a frank conversation with your supervisor about what you are going to do to make sure you're not glutened as frequently at lunch. I have a career where I need...
  25. April in KC
    I think I understand what you're saying. I have never intentionally glutened myself, but you are confirming something that I have suspected - that the same way that the seriousness of reactions can increase when you're completely gluten free, it can also eventually decrease when you get glutened frequently. However, you're finding it hard to control the...
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